Hi all, I am new.
I am Julie, 40 years old. I am married with 2 boys. I was diagnosed with seronegative inflammatory arthritis in April after it taking just over a year to get officially diagnosed.
I have it mainly in hands, wrists, fingers, feet ankles, shoulders and elbows. I also suffer from disc degeneration in my spine.I have lost 4 discs at lumbar level.
I have tried sulfasazaline, methotrexate and plaquenil in the year all leading up to my diagnosis as my blood CRP and ESR have continually been raised and still are today. i have had no break from the start form swelling, pain, and now the stiffness is getting worse.
All the DMARDS didnt agree with me, and My rheumy changed and she said to try methotraxate again and I begrudingly did, but could not cope with it at all. I took the bold move after an awful lot of consideration talking to hubby etc that I just wanted painkillers as DMARDS only supress the disease. I realized that none of the stopped it, it can not be cured, so i decided rather than put myself through any complications I wanted just pain relief. So I am currently on Buprenorphine patches to help control the pain.
I was told I am too young for biologics, so even though my rheumy wasnt happy she left me with an open appt as she said once you come off the steriods ( i wanted to wean myself off them) as they made me out lots weight on, that my symptoms would come back tenfold...so hence the open appt.
I am scared of the future and the pain getting even worse, but I feel I have this dautoimmune disease and it isnt going away.
Has anyone been through this, or made these choices, didnt get on with DMARDS offered etc? I feel so alone.