My scan saga

mig
mig Member Posts: 7,154
edited 11. Sep 2012, 19:42 in Living with Arthritis archive
Well das score done gone up from 6.00 to 6.95 so qualify.Went through all the info about humira and got all the paper work,told rhemmy nurse about still waiting for liver scan ,who said she would get the sec on to it,she also said as soon as the results are in she will get the ball rolling with the humira.
So nurse phoned me middle of afternoon to say that the sec was contacting the scan people,less than 30 minutes later liver people phoned to say that the liver consultant did NOT think a scan was needed as everything points to it being med related and that letters were in the post to my consultant,gp and myself .To say i was miffed is putting it mildly,i am so cross all this time wasted while my hands and feet were getting worse,i just hope after all this that humira works for me.I took a while to calm down and stop the swearing before posting,Thank-you all so much for your support it means such a lot,sorry if its a bit of a ramble think i may still be a little cross.Mig

Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I'm not surprised you're a little cross (oh OK, absolutely fuming) but it's water under the bridge and things can't be changed. There is a plus side - you are going to start humira soon and I for one hope it proves to be the med for you. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • julie47
    julie47 Member Posts: 6,041
    edited 30. Nov -1, 00:00
    Well all I can say is it is a good job you mentioned the scan at todays appointment and the rheumy nurse started the chase otherwise you could have been waiting till goodness knows when. :roll:

    I now hope that you can start the Humira quickly and I have everything crossed that it works for you. :D

    Take Care
    Love Juliepf xx
  • valval
    valval Member Posts: 14,911
    edited 30. Nov -1, 00:00
    i wonder why they take so long to sort things it does not make sence they could have sent that ages ago no wonder you were fed up we all would have been val
    val
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Oh Mig dont you worry about having a rant,it is well deserved, honestly whatever goes through there brains is beyond me.
    But at last you are getting humira, and I really do wish you well with it, now you try and put your feet up,these appointments take it out of us xx
    Love
    Barbara
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    Ditto to all that, mig. Now that you've run out of expletives (I do trust you've run out by now :wink: ) I hope you can just sit back and look forward to humira success. We'll be rootin' for you.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • LignumVitae
    LignumVitae Member Posts: 1,972
    edited 30. Nov -1, 00:00
    Hooray for the humira decision, grrrrrrrrrr for the run around, how annoyingly pointless. I hope you feel calmly and maybe a bit less sweary now. Hugs n love LV xx
    Hey little fighter, things will get brighter
  • 7worlds
    7worlds Member Posts: 302
    edited 30. Nov -1, 00:00
    Hey Mig. The whole scan thing must have been a real pain, but its good you have now got the go ahead for your drug. Hope it makes a big difference to you.

    7Worlds
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    I have calmed down now took a while and several cups of tea which means I will be peeing all night,the enormity of what I am about to undertake has just hit me,I am very unnerved at the moment .Just got to wait for things to get moving,hope I can sleep tonight.Sorry to waffle better out than in I surpose.Mig
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    Clinic nurse phoned at 2 o,clock to say that she is checking with liver people,if I don't hear from her my next call would be from Home care people to get things sorted for starting humira,she hasn't called back so am assuming it's going through.Very nervous now,need some hand holding.Mig
  • Numptydumpty
    Numptydumpty Member Posts: 6,417
    edited 30. Nov -1, 00:00
    Hi Mig, I hope the Humira works for you. I'll hold your hand.
    All the best,
    Numpty
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I've got the other hand, mig. I'm sure I'd feel exactly as you do. (())
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • LignumVitae
    LignumVitae Member Posts: 1,972
    edited 30. Nov -1, 00:00
    I'll hold onto a spare pinky! It's standing on the edge of something, scary, always scary!! I really hope it works for you though. Love and reassuring hugs, LV xx
    Hey little fighter, things will get brighter
  • Susiesoo
    Susiesoo Member Posts: 358
    edited 30. Nov -1, 00:00
    Two more hands here if required Mig. Hope it works for you.
    Very best wishes, Susie :)
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Mig,

    Flower when you have two or more departments dealing with things they just seem to work against each other..... Its wrong but it does seem to be how it goes. For me its the gastro, pain and rumo depts and they al have their own ideas though thankfully of late the pain and rumo have been in agreement.

    I so hope they are going to start you on the hermira. I know its a bit scary but it really can help some folk and very few seem to not get bennifitis from it so hold that thought.

    Got a bit of you hand for the holding and have dragged in a safety net so you can't fall too far what ever happen. hang in there and so hope it will all come good and work ell fro you. Cris xx

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