Unexpected glitch

arfaitis

This afternoon, my doctors surgery telephoned to ask me to make an appointment. Why I asked, the hospital had sent them a letter saying they wanted to alter my meds :shock: a bit of a shock as I have felt great for some time now.
They think maybe they might want to stop my furosemide, which is a water tablet I take because of my heart.
Now they have got me worried, because it stops my lungs filling with fluid, which caused a heart attack last time.
It does make me wonder whether the the rheumy dept. is talking to the cardiac dept.
I hate being pushed from one young GP who doesn't know me, to a rheumy doctor who also doesn't know me, I like to deal with the top dogs.
My guess is my sodium levels are down, which they always have been, which according to top dog is normal for me.
Well I have made a telephone call to my help line to see if they can give me a clue, but I have also made an appointment to see my GP, and one for the top dog at rheumy.
I go into hospital on November the 14th for 2 more stents, which should improve my circulation.
Just going to have to keep my fingers crossed.

Arfa

valval

this not good hope it all sorted easy with no problems val

mig

Fingers crossed it goes fine for you.Mig

stickywicket

That must be quite a worrying situation for you though you are clearly very clued up on these things, having arranged to contact all three people.

To be honest, in my experience, hospital departments rarely talk to each other so it's good that you can speak up for yourself.

I guess we all prefer to deal with top dogs when possible but that's not how the NHS operates. However, I've often been pleasantly surprised by how clued up young docs are. I hope you will be too. I also hope all goes well for you on 14th Nov.

skezier

Hi Arfa,

It may not be those tablets they are after but its good you have made the appointments. See what they say and you can ask them to not do or change things if you are not happy.

I ho0e it will go well for you.

Have to say that some younger docs can be very good and also well clued up and though the departments don;t seem to work together my consultants held a conference about me recently so they can do it and maybe its time yours did as well?

Fingers crossed your gp will be able to put your mind at ease when they see you and hope that it all will go well. Cris

arfaitis

Thank you folks for your good wishes, I feel on top of the world at the moment, the best I have been for years.
As for junior doctors I have been used for training purposes all my life, because I have Felty's Syndrome, a rare occurrence of rheumy. See Here
I have been prodded and poked about many times, and I don't mind, but I draw the line when it comes to drug trials, which I have been asked to go on.
Drugs trials are fine, but they don't necessarily give you a drug, you could be on the placebo side of the trial, and I am not prepared to risk that.
One of the worst things that happened to me was when they first discovered I had Felty's, I was packed in ice for about 10 minutes, my that was cold, and then when they uncover you you get the opposite you get hot.
My that was awful, like being dunked in a lake in the middle of winter, that treatment only was only tried for a fortnight.

Arfa

barbara12

Hi Arfa
I really do feel for you, its great when you get things on a balance then to have someone want to change your meds must be so scarey for you.
I do hope you get some proper answers has to why,hopefully your GP will be able to help,what worry's me is how different some of these doctors think.
I do wish you well with it all, you have gone through so much,
Please let us know how you get on x
oops sorry the print is bigger than I meant.... :?

stickywicket

arfaitis wrote:

I was packed in ice for about 10 minutes, my that was cold, and then when they uncover you you get the opposite you get hot.
My that was awful, like being dunked in a lake in the middle of winter, that treatment only was only tried for a fortnight.

Arfa

You'd never make a modern sportsman, arfaitis An ice bath is standard treatment now to help the body recover more quickly. (Just for the record, I'd hate it too )

arfaitis

I have heard from the hospital, and my help line folks told me, yes my sodium is down a bit, but not enough to worry about, and there is no need for my meds. to be changed.
As I expected a junior doctor has picked up on my blood tests, and started to panic.
Now when I go to my doctor tomorrow, he is going to be quite angry that I am wasting his time, but I have another problem to talk to him about, so perhaps a good thing for me.
I will let you know the outcome.

Arfa