can't sleep

villier

Sorry, this is not arthur related but been up all night worrying, got a letter yesterday from my neuro telling me to get to my GP and get my bloods done again, I was at hospital last week for treatment and my bloods have shown my white blood cell count is dropping and an increase c marker of inflamation in my blood, also have to get them repeated the week after before I go back for next treatment. I am probably worrying over nothing and will feel like a woose when all comes back clear, when I read white blood cell count I had visions of my dear mum who had Leukemia, as I said probably worrying over nothing, when you live on your own and don't have anyone to talk things over with your mind goes into overdrive, sorry for being such a drama queen.....Marie xx

Petitesse

Hi Marie,

Oh it is horrible to worry and being on your own. Sending you some warm (((HUGS))).

It is understandable that you worry over the drop in white blood cells and link it to the cancer your mum had. But, as I am sure you know, the drop in white blood cells can have many other reasons.
What is your diagnosis and treatment?
I hope you can get to see your GP soon and ask him to explain further, so you don't worry so much.

Hugs Pia.

kellerman

Hi Marie
I know its so easy for me to say don't worry. Its hard for you being on your own and having no one to talk to.
Its good that it was picked up about your white blood cells.....it really doesn't have to be anything nasty. You can get an infusion to pick them up again if needed.....it really means you'll be more prone to picking up bugs...ie common cold.My white cells are up and down all the time.I've never had an infusion as they right themselves within a week.
You take care and please try and relax and get some sleep.
May

stickywicket

I agree with the others, Marie. There are all sorts of reasons why the WBC can go up or down. I also agree that these things always seem worse when one is alone and especially when one is alone in the early hours. However, you are by no means being a drama queen. Get thee to a doc, get those bloods done and explain your worries. They are the people best placed to reassure you. (())

villier

kellerman wrote:

Hi Marie
I know its so easy for me to say don't worry. Its hard for you being on your own and having no one to talk to.
Its good that it was picked up about your white blood cells.....it really doesn't have to be anything nasty. You can get an infusion to pick them up again if needed.....it really means you'll be more prone to picking up bugs...ie common cold.My white cells are up and down all the time.I've never had an infusion as they right themselves within a week.
You take care and please try and relax and get some sleep.
May

Hi May thanks for replying, your post has made me feel a lot better and I'm sure by the time I get the next lot of bloods done things will have setted down, I get bugs all the time I need an ever ending supply of antibiotics I feel a lot more relaxed now and I am sure I will get a good sleep tonight thanks again........Marie xx

LignumVitae

I too chose the early hours to panic and things usually seem HUGE and insurmountable around then so do not call yourself a drama queen. We all worry about bloods and it sounds like you have reason to understand such worries more than most. I hope it is just a glitch, meds can do this to you quite easily, that's why they get monitored so closely. It sounds like somebody is doing a good job of keeping an eye on you, I once had a low wc count and they retested and all was well, just been a bit run down and over doing it. Big hugs and lots of support and hand holding whilst you are at the doctor today. Thinking of you xx

villier

LignumVitae wrote:

I too chose the early hours to panic and things usually seem HUGE and insurmountable around then so do not call yourself a drama queen. We all worry about bloods and it sounds like you have reason to understand such worries more than most. I hope it is just a glitch, meds can do this to you quite easily, that's why they get monitored so closely. It sounds like somebody is doing a good job of keeping an eye on you, I once had a low wc count and they retested and all was well, just been a bit run down and over doing it. Big hugs and lots of support and hand holding whilst you are at the doctor today. Thinking of you xx

Thanks very much LV I am sure it will just be a glitch, I had had a uti infection the week before although I had finished the course of antibiotics there was maybe still infection lurking about. The hospital I attend does look after you well and they check my bloods all the time. I am afraid the hand holding will have to wait until monday as the powers that be have decided it will be the nurse that is doing the bloods, at least I will see my consultant soon thanks again........Marie xx

villier

stickywicket wrote:

I agree with the others, Marie. There are all sorts of reasons why the WBC can go up or down. I also agree that these things always seem worse when one is alone and especially when one is alone in the early hours. However, you are by no means being a drama queen. Get thee to a doc, get those bloods done and explain your worries. They are the people best placed to reassure you. (())

Sticky I did reply to you (honest) don't know where the post has gone, thanks for your reply, I have to see the nurse on Monday to get my bloods done GP didn't want to know, at least I will see my consultant in a couple of weeks who is very aproachable, I just want to mother him his shirt tail is always hanging out bless, lovely young man. I feel a lot better now due to you guys once I get a sleep tonight I will be back on form thanks again SW..........Marie xx

villier

Petitesse wrote:

Hi Marie,

Oh it is horrible to worry and being on your own. Sending you some warm (((HUGS))).

It is understandable that you worry over the drop in white blood cells and link it to the cancer your mum had. But, as I am sure you know, the drop in white blood cells can have many other reasons.
What is your diagnosis and treatment?
I hope you can get to see your GP soon and ask him to explain further, so you don't worry so much.

Hugs Pia.

Pia I did reply to you earlier I don't know whats happening with this computer today..... Thank you for your hugs and kind words I am sure it will be nothing to worry about, I feel a lot better all down to you guys. I have a very rare neurological condition that affects my sensory and autonomic nerves and with arthur on top as everyone knows life is not very good at times. I get intravenous imunne globulin(human Plasma) treatment every few weeks it helps keep the pain bearable, when I see some of the people in the ward especially young ones getting various treatments(especially for MS) I count myself lucky that I am mobile for the moment, my treatment seems to have slowed things way down, once I get a good sleep tonight I will be back to my old self tomorrow thanks again.......Mariexx

julie47

Hi Marie

I don't think you are being a drama queen at all you are just worried and things keep going around in your head. I would be the same , I can worry at the slightest thing and can even worry for others

I just wanted to send you hugs ((((((()))))) and say I am sure everything will be ok and I hope you sleep better tonight.

Love Juliepf x

hileena111

It must be awful being on your own and no-one to talk to when you are worried. Of course the middle of the night is the time things like that hit all of us.
I dont know much about WBC but it could be just them being over cautious and having you back for a check up just in case!!!! not because anything is wrong.....things are better caught quickly.
My BP was sky high when I was in hospital for a day procedure. They said to see my practice nurse when i got back.....saw a doc and it was still up and I've been going back every couple of months to have it checked. The way I looked at it was at least it was better caught early than late...as it happens its going down....Got one tomorrow.
Talk to us.....and keep us up top date with what happens
sending (((((())))

Love
Hileena

villier

julie47 wrote:

Hi Marie

I don't think you are being a drama queen at all you are just worried and things keep going around in your head. I would be the same , I can worry at the slightest thing and can even worry for others

I just wanted to send you hugs ((((((()))))) and say I am sure everything will be ok and I hope you sleep better tonight.

Love Juliepf x

Julie thank you for your reply and hugs, as we say in Scotland have had a good greet to myself, I am overwhelmed by everyones kindness which is the best medicine ever I certainly will have a good sleep tonight thanks again.......Marie xx

villier

hileena111 wrote:

It must be awful being on your own and no-one to talk to when you are worried. Of course the middle of the night is the time things like that hit all of us.
I dont know much about WBC but it could be just them being over cautious and having you back for a check up just in case!!!! not because anything is wrong.....things are better caught quickly.
My BP was sky high when I was in hospital for a day procedure. They said to see my practice nurse when i got back.....saw a doc and it was still up and I've been going back every couple of months to have it checked. The way I looked at it was at least it was better caught early than late...as it happens its going down....Got one tomorrow.
Talk to us.....and keep us up top date with what happens
sending (((((())))

Hi Hileena thanks for your reply and hugs, you are probably right about them being over cautious, and you are also right if there is anything amiss it will be caught early.......gosh that's not so good about your BP although good that its starting to come down, did they put you on beta Blockers? have they got to the route of what's causing it? I have the opposite my blood pressure is on the lower side and having been getting dizzy spells and I am on Beta Blockers for palpitations neuro not happy about it, so waiting to get a tilt table test done, hope all goes well tomorrow will be thinking of you let us know how you go............Marie xx

stickywicket

villier wrote:

Sticky I did reply to you (honest) don't know where the post has gone,

There is an AC Lost Posts Mansion, marie. Lots of my posts have ended up there too

I hope you can sleep a bit better tonight as stress and worry help nothing - not that that ever stops any of us :roll:

At least the bloods will be done and the (schoolboy ) consultant will soon be visited.

Take care.

dreamdaisy

Bloods do all sorts of odd things every now and again - one of the reasons for the monitoring is to pick up the first signs of something POSSIBLY being amiss so it can be even more carefully observed. I've had some dodgy bloods in the past but all has been well, everything has settled after a meds tweak or meds abstinence. It is very easy to say 'don't worry' (and almost impossible not to) but I try to take the view that fretting when I need to is better than fretting when I don't. Come and talk to us, villier, most of us auto sorts have been there and know what it's like. I wish you well. DD

barbara12

Hi Marie
You are not being a drama queen, like the others have said bloods do allsoughts of strange things, I wont say dont worry because you will anyway, but we are always here for you to talk to whatever it is.
you take care (((((()))) xx

villier

DD thank you for taking time to post a reply in your time of stress when you should be trying to take things easy........I try not to let myself get stressed but lately all I seem to do is go to hospital appointments, for instance last week treatment, surgeon for finger, tomorrow to get a heart monitor next week bloods to be done, see cardiologist also a lip biopsy done(test for sjogrens syndrome) and the list goes on, normally I can usually take everything in my stride but the letter yesterday was a bit all to much, I think the reason I was so worried was they haven't found what is causing the neuropathy although it started 8 years ago it is only the past couple of years that things have seriously moved on and they couldn't even give me a dx so I was sent to London to see a professor at the Hamersmith Hospital, between him and my neuro I finally got a proper dx, inbetween arthur started playing up so here I am today I can't thank everyone enough for all the kind words and support I have been given as friends don't understand the pain you go through............sorry for rambling on.... DD saw your new post will catch you over there thanks again........Marie xx

villier

barbara12 wrote:

Hi Marie
You are not being a drama queen, like the others have said bloods do allsoughts of strange things, I wont say dont worry because you will anyway, but we are always here for you to talk to whatever it is.
you take care (((((()))) xx

Awww thanks Barbara I really feel so much better now, everyone has been so kind, as I said earlier I have been so overwhelmed I have never met as many lovely people in the one place thanks again.........Marie xx

Numptydumpty

Hi Marie, I'm sorry I've only just seen this.
Anyway, the others have said it all.
We're always here to listen to and hopefully comfort you.
(((())))
All the best,
Numpty

villier

Thank you so much Numpty I can't get over how much support I have had being so new here, i would like to thank everyone again for being here for me today it is greatly appreciated.......oh boy will I sleep tonight.......Marie xx

stickywicket

villier wrote:

oh boy will I sleep tonight.......Marie xx

You certainly will, Marie, because I have here the forum lump hammer which we keep for special needs You have been warned

Seriously, you have much to be stressed about and it's gone on a long time. No wonder things are getting to you.

villier

Hahahahahaha thanks pet xx

arfaitis

One vital thing that hasn't been mentioned, our blood readings are affected by what we eat and drink, if you are not on a strict diet.
I agree what other members have said, but please remember we are all different.
A good example is myself, I regularly get a junior doctor panicking because my sodium reading as changed {UE's}now I am so used to this happening that it doesn't bother me anymore, but it did at first.
The reason for this is my diuretic which I take for my bad heart, but it usually turns out a storm in a teacup.
Good luck.

Arfa

villier

arfaitis wrote:

One vital thing that hasn't been mentioned, our blood readings are affected by what we eat and drink, if you are not on a strict diet.
I agree what other members have said, but please remember we are all different.
A good example is myself, I regularly get a junior doctor panicking because my sodium reading as changed {UE's}now I am so used to this happening that it doesn't bother me anymore, but it did at first.
The reason for this is my diuretic which I take for my bad heart, but it usually turns out a storm in a teacup.
Good luck.

Arfa

Thanks Arfa.........this is the first time there has been any problem with my bloods so obviously panicked a bit, have been speaking to a pharmacist friend and he says that the anti-biotics that I had been on could be the cause of the falling blood cells they were really strong ones as the uti that I had was pretty severe and the inflammation that has shown up could be down to arthur, so feeling a lot more positive now........ I do eat quite a healthy diet lots of low fat food and drink lots of water, I do have an occasional treat although I don't get enough exercise so I am carrying a bit of weight, three and a half years ago I was out running most nights...........thanks for your kind wishes.......Marie xx