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Nicchick
Nicchick Member Posts: 191
edited 4. Oct 2012, 09:50 in Living with Arthritis archive
I finally got the radiology notes that had been removed from my x-rays! How hard do the records office make it eh?

Definite erosion in the heads of the second metatarsals in both feet, so not 'no significant changes' then as I was told by the rheumatology nurse...

The hip x-ray I had when I had that awful pain the day I saw my consultant showed bone spurs in my left hip and given that I get the same pain in my shoulders and the right hip I'm guessing that's what is occurring there too.

I've had such pain in my joints even though I'm on celebrex which works brilliantly on the swelling, I have none! Tramadol is barely denting it and when the GP who job shares with mine asked me if I have morning stiffness I laughed and said 'I'm bloody stiff all the time!'

Vampire this AM and then consultant next Wednesday where I'm not leaving until he refers me to the pain clinic!

*grumpy but putting on a brave face*

Nic x

Comments

  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Morning Nic

    So pleased you have, at last, got the x-ray notes and that you now have the full set of information.

    You are completely right about "morning stiffness" being a misnomer!

    Good luck with the vampire :lol: and really hope you have a positive appt with the consultant next week and are able to get the pain-clinic referral without having to stage a "sit in" :roll:

    Thinking of you - and well done for "putting a brave face on it"!

    Tilly xxx
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    Glad you got your notes at last,hope things turn out well for you.Mig
  • stickywicket
    stickywicket Member Posts: 27,763
    edited 30. Nov -1, 00:00
    I am - seriously - starting to wonder about that phrase 'no significant changes' as a lot of folk on here say it has been used on their x-ray notes when they themselves feel there has been a lot of change. Maybe the word 'significant' means something in med-speak. Maybe a change is only significant if it requires surgery. Just a thought.

    Tilly, it's finally happened. I'm going to disagree with you :o Please note date and time of this unprecedented occurence :) i don't think 'morning stiffness' is a misnomer. We are all stiff all the time but I think the quality of morning stiffness makes it a totally different beast and the really irritating thing about it is that it just has to be ploughed through to get to the heady heights of normal sodding pain and stiffness :lol:
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • PowerOn
    PowerOn Member Posts: 200
    edited 30. Nov -1, 00:00
    Hello Nic,
    I hope now that x-rays have shown changes you get some proper care.
    Why the doctors tell us different information to what is found I do not know, makes me angry.
    My GP lies so often.
    I tried getting my hospital notes, I got some but others were harder to get, the ones where I was told "nothing wrong" thenm was told I have a birth deformity were hard to get, they are also not clearly written.
    One set of notes from a particular appointment have gone missing.
    I have been told I can not have my GP notes- will not go into that too long. Am going to ask elsewhere why etc.
    Sit tight and demand proper care.
    Best joke I ever read, "With that information and a diagnosis of spondylosis, your doctor can develop a treatment plan‏" or back in reality totally ignore you. Is ok I have a sense of humour and a boxing glove, not defeated yet.
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Nic
    I am glad you have your results, you get such different views off each consultants, if only they would all talk to each other it would help.
    I do wish you well with it all, and hope you get some relief very soon xx
    Love
    Barbara
  • ShulaArcher
    ShulaArcher Member Posts: 174
    edited 30. Nov -1, 00:00
    Hi

    I've just had to leave my job working in a Radiology Dept where I was dealing with X-ray, MRI, etc reports every day. The phrases "No significant abnormality" or "No significant change" are ones which are used frequently. I don't want to comment because I'm not a medic. However, my GP this week told me something which I found very interesting. He said, with osteoarthritis, reports could show severe changes when a patient was not in pain; or a patient could be in pain but the diagnostic tests didn't find any reason.

    In my own case, I had sudden severe pain in both hands in April 2011. When they were X-rayed, the X-rays showed severe osteoarthritis on the left and less severe changes on the right. It's obvious these changes didn't happen overnight and, although I had experienced pain in years past, I had literally gone from "no pain" to "severe pain" overnight! Also, my left hand was worse on the X-ray but I had more pain on the right. So, some things just can't be explained.
  • stickywicket
    stickywicket Member Posts: 27,763
    edited 30. Nov -1, 00:00
    Thanks for that. It's interesting. We keep telling everyone 'we're all different'. I guess this is just another example of that.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • Nicchick
    Nicchick Member Posts: 191
    edited 30. Nov -1, 00:00
    Thanks everyone!

    It is good to actually have some proper analysis and I've been onto them again today as some x-ray notes are missing. The postman has started to be much nicer to me since he's seen me with a stick and he used to be a right a******* to me - my dog is a little *ahem* feisty!

    As far as I'm aware the damage is done because of the swelling and stiffness - if only we were believed when we first present with these things - my pain isn't quite as bad as it was yesterday but still ever present...I think that may be how it will be from now on.

    Asked AGAIN today by someone I am teaching to make curtains if I had seen the Food Hospital - led to a long boring discussion about ESR levels and testing...that'll teach them!

    I got my MRI sent to me and am having a peek now - fascinating!

    Nic x