Humira injection tomorrow.

Milly8
Milly8 Member Posts: 114
edited 10. Oct 2012, 14:42 in Living with Arthritis archive
It my hurima injection day tomorrow and I can't wait.i have noticed that the second week that I don't feel as good as the first week.needing more pain killers and no engery the last few days.roll on tomorrow .seeing the rheumy nurse on Thursday so will mention it to her.but life is still way better that before hurima so please not think I am moaning as I grateful to be having theses jabs.never thought I would be looking forward to injecting myself.get to have my crp levels checking at the doctors now( never did that before) will get my bloods done this Thursday at the hospital and again in the doctors week Thursday.so will be able to see if levels go up in the second week after injection.
Hope you are all keeping as well as can be.
Bye for now
Milly

Comments

  • stickywicket
    stickywicket Member Posts: 27,763
    edited 30. Nov -1, 00:00
    You sound very positive, Milly, and that's always good. I hope the humira works well for you for a long time.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    Good that you are so positive about humira,you have really encouraged me my hands are feeling quite good at the moment.Thanks.Mig
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I'm on the thin end of my humira wedge at the moment, and will be staying there as I won't be doing it thanks to a very nasty cold / possible chest infection. I get five or six days of slightly-better mobility then that tails off. Hey-ho, as long as it has slowed the progress of this malarkey then that is what counts, that's what I keep telling myself. :wink: Good luck with the injection and I hope you feel its benefit by the week-end. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • kentishlady
    kentishlady Member Posts: 809
    edited 30. Nov -1, 00:00
    Hi DD. Hope you will soon be feeling better from yr chest infection/cold. That's all you need at the moment! Got my pain patch increased to 15 micrograms when saw Dr last week - she thought it was worth trying - and changed over on Sunday (my normal day). However, within a few hours it had 'crashed' me out totally and was falling asleep every 10 minutes. So just that small increase made such a difference. I seem to have adverse reactions to so many options we've tried and feel very fed up with it all but know lots of you on the forum have same problems.Have now ditched the extra one and will have to stay on the 10 mcg one, but it doesn't seem to do much to help with the pain. Am sorry to moan as I know so many of you have it far worse than me, but it does seem to affect everything I try to do. Am off to hairdressers later, which always makes me feel better. Wishing you well soon DD. Beryl
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    The trouble with this malarkey is that it does affect everything we try to do and the meds we take can also do the same. It's a very wobbly and extraordinarily narrow tightrope we balance on and all we can do is to keep trying different things until we find the combo that broadens the rope, even just a little. I think it sounds as though Milly and me are sharing similar ropes - the humira broadens it for a while then it narrows it again! DD

    PS. Your hair's looking good, Beryl. :wink:
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • Loulou11
    Loulou11 Member Posts: 86
    edited 30. Nov -1, 00:00
    Hi milly8 I'm in the same boat, about 5 days before I go into a slight meltdown and two days before have to take to my bed to conserve energy. I'm injecting tomorrow and can't wait for it to kick in Friday, But at least it's around for us to use!
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    How are things Milly, are you feeling the benefit now? I certainly hope so. Good luck for tomorrow, loulou11. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Milly
    I do wish you well with the injections...and good luck on Thursday.. hopefully the rheumy will be able to help xx
    Love
    Barbara
  • Milly8
    Milly8 Member Posts: 114
    edited 30. Nov -1, 00:00
    Thank you for your replies .i am feeling I bit worse for wear today as my daugther was home from the isle of wight for a few days and I helped her make welsh cakes to take back as her friends have not tried them.i was standing in the kitchen for 2 hours so my lower back is not happy and not even tamadol helped last night.this morning we went to the train station to see her off again and that's an hours bus ride there and an hour back from my home.but it was all worth it to see her.the last time her came home said went back early as she said she missed her friends,but when she came this time she said part of the reason she went early was because she could could not stand to see me in so much pain as I had been so much worse than the last time she came home,but even with the humira wearing off into the second week she said she could see I big difference in me so she had gone back happy.she will be home in a month for three months and going back February.
    This arthritics lark is such a roller coaster and it plays with your head so much .never know where you are one day to the next but I do know that without hurima i would be so much worse and so grateful I was one of the lucky one who can take it.well see what rheumy nurse says tomorrow.does anyone else have to fill in a questionnaire sheet when they go to das clinic.only been once but the lady next to me says we have to fill them out every visit.Time for a little rest now so bye for now
    Milly.
  • stickywicket
    stickywicket Member Posts: 27,763
    edited 30. Nov -1, 00:00
    You've had a hectic time, Milly, and sound to be in need of a good rest. Kettle on and feet up, my girl. I don't humira so can't advise on that but I hope it will all go well.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Hello Milly,

    So pleased you had such a lovely time with your daughter - and well done for managing to make the Welsh Cakes, despite the back pain! I'm dead impressed! You are so right about arthritis being a roller-coaster Milly and about the difficulties with not knowing where you are day to day. But I think you should take heart from the fact that you are already feeling the difference from the Humira and that your daughter noticed a difference in how you were as well. It's early days with the Humira and, hopefully, if it continues to help you, it will help to keep things on a more even keel for you.

    Re the questionnaires - every time I go to the anti-tnf clinic the waiting room is full of people ticking and muttering about having to fill in the questionnaires. It amuses me to sit and listen to others voicing the same things I am thinking - "why do we have to do this every time" "I don't know", "what a daft question, I couldn't do that even if I didn't have arthritis" etc etc. And I don't think, at my hospital, anybody ever looks at them anyway! I don't know if they are standardised questionnaires but they don't appear to me to have any particular relevance to monitoring of the effectivenes of the meds. :roll: I guess it's just "one of those things they have to do".

    Good luck at the hospital tomorrow Milly.

    Tilly xxx
  • Loulou11
    Loulou11 Member Posts: 86
    edited 30. Nov -1, 00:00
    Your not alone, but the das scoring does show up if things are not working and it's better than being used as a second hand pin cushion. Good luck for tomorrow I do mine at home so it's injection and back to be for me good luck, I'm thinking of you xx
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