Pocket duties please!

dibdab
dibdab Member Posts: 1,498
edited 11. Oct 2012, 15:25 in Living with Arthritis archive
Would really appreciate some pocket company please. I have a rheumy appointment this afternoon at 4-6 months into gold injections but not sure that they are having real benefit and because I have bronchiectasis associated with the RA he wont prescribe biologics- haven't a clue what happens next! Been at home for a month (I teach 5 year olds) after a chest infection triggered mega flare, my lovely GP offers sympathy and pain dullers but I feel guilty about work and truly fed up of the constant battle. Sorry all that sounds terribly self indulgent :? . Any way, I'm just about to write a symptom list to take with me, but I've cleared the tissues and crumbs out of my pocket if anyone is available to hop in for moral support.
Thanks
Deb x

Comments

  • Jo90
    Jo90 Member Posts: 68
    edited 30. Nov -1, 00:00
    Deb
    I can fully understand the guilt about work, but it won't help you get on top of the problem, so park it and just get on with focusing on YOU and getting YOU better.
    Am with you, let us know how you get on.
    Jo
    x
  • stickywicket
    stickywicket Member Posts: 27,761
    edited 30. Nov -1, 00:00
    I'm in. Shame you cleared the crumbs out but not to worry - I'll make my own.

    Not self-indulgent at all. Just naturally worried as the the rheumatologist is one who can, hopefully, change things, not the GP. They only dish out dullers and sympathy.

    Hopefully he can chuck something else into the mix. I'll be there watching.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • Numptydumpty
    Numptydumpty Member Posts: 6,417
    edited 30. Nov -1, 00:00
    I'll be there Deb.
    You really shouldn't feel guilty, you have no control or choice over the situation. If you did, you would choose to be healthy, and able to do the job you clearly love.
    I hope all goes well at your appointment.
    Thinking of you,
    Numpty
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Deb
    Dont you dare feel guilty, put yourself first for a while till you get some relief, I will be in your pocket...and wishing you well with it all,please let us know how you get on xx
    Love
    Barbara
  • mig
    mig Member Posts: 7,154
    edited 30. Nov -1, 00:00
    Ready for pocket duties.Mig
  • PowerOn
    PowerOn Member Posts: 200
    edited 30. Nov -1, 00:00
    May I join the pocket party?
    May also add to the crumbs, but will keep quiet except to say, why feel guilty if you are ill and in need of care then what is to feel guilty about, shame that is easier said then done but we can keep trying.
    Best joke I ever read, "With that information and a diagnosis of spondylosis, your doctor can develop a treatment plan‏" or back in reality totally ignore you. Is ok I have a sense of humour and a boxing glove, not defeated yet.
  • bubbadog
    bubbadog Member Posts: 5,544
    edited 30. Nov -1, 00:00
    Oh Deb, you've been through the wars! But don't feel guilty! Think at least I'm not passing any germs from my bronchiectasis to the kids! Will be in your pocket with a flask of hot soup to keep me warm!
  • kentishlady
    kentishlady Member Posts: 809
    edited 30. Nov -1, 00:00
    Hi Deb. Will be in your pocket if there's any room? Hope all goes well for you. Beryl
  • Jo90
    Jo90 Member Posts: 68
    edited 30. Nov -1, 00:00
    Bubbadog, could you pass me some of that soup please ? And let's try not to spill it on the others in here :D
    (Still in here Deb, will try not to slurp loudly !)
    x
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    Am I too late? I hope not - budge up everyone! DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
    Count me and the Great White Dope in as well.
    Best of luck :D
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • LignumVitae
    LignumVitae Member Posts: 1,972
    edited 30. Nov -1, 00:00
    I'm here too! Soup is lovely. Good luck and leave the guilt behind, there's no need and also the thoughts of self indulgence, hardly, you arent even trying to be self indulgent in my book! Good luck.
    LV xx
    Hey little fighter, things will get brighter
  • dachshund
    dachshund Member Posts: 9,083
    edited 30. Nov -1, 00:00
    Hello Deb
    i will be there for you i hope it all goes well.
    joan xx
    take care
    joan xx
  • dibdab
    dibdab Member Posts: 1,498
    edited 30. Nov -1, 00:00
    Thank you all for your company- just home and maybe feeling a bit more hopeful.
    In summary the rheumy listened thoughfully and suggested that the gold isn't working :? . So we're abandoning that but he isn't willing to try the biologics because of my bronchiectasis. So....... he proposes monthly steroid injections to keep inflammation at bay until easter when I hope to take early retirement, then adding in methotrexate again to see if I cope better with it when I'm not surrounded by coughing and sneezing ankle biters. On the positive side- at least I wont be getting big rainbow bruises on my btm from the gold injections :D. It makes things feel better when you can walk away feeling as if the professionals have listened and want to help.

    Hope that you are all having an okay kind of day- thanks again for your support and encouragement- this forum really does make a difference because folks here understand in a way that our friends and family can't because they don't have the experiences of living with the relentless frustrations of the disease.

    Deb x
  • tjt6768
    tjt6768 Member Posts: 12,170
    edited 30. Nov -1, 00:00
    sounds like a plan to me... Really hope it helps hun. :D
    e050.gifMe-Tony
    n035.gifRa-1996 -2013 RIP...
    k040.gif
    Cleo - 1996 to 2011. RIP
  • villier
    villier Member Posts: 4,426
    edited 30. Nov -1, 00:00
    Hi Deb sorry I couldn't be there today for you as I had a rendevouz with a 6 foot doctor with a scalpel. I am glad that you feel positive about your app, hope your retirement comes round quickly for you so you can get a well dserved rest..........tc..........Marie xx
    Smile a while and while you smile
    smile another smile and soon there
    will be miles and miles of smiles
    just because you smiled I wish your
    day is full of Smiles
  • ang12
    ang12 Member Posts: 30
    edited 30. Nov -1, 00:00
    Hi Deb I'm their for you anytime.I hope it all goes well.
    Take care and big hugs Angela :-) x
  • stickywicket
    stickywicket Member Posts: 27,761
    edited 30. Nov -1, 00:00
    That sounds like a good appointment and a plan. I hope things will be better from now on.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Deb,

    I another late comer but it does sound like a plan. Hang in there and again sorry I's some late. Cris x