Pocket duties please!

dibdab

Would really appreciate some pocket company please. I have a rheumy appointment this afternoon at 4-6 months into gold injections but not sure that they are having real benefit and because I have bronchiectasis associated with the RA he wont prescribe biologics- haven't a clue what happens next! Been at home for a month (I teach 5 year olds) after a chest infection triggered mega flare, my lovely GP offers sympathy and pain dullers but I feel guilty about work and truly fed up of the constant battle. Sorry all that sounds terribly self indulgent :? . Any way, I'm just about to write a symptom list to take with me, but I've cleared the tissues and crumbs out of my pocket if anyone is available to hop in for moral support.
Thanks
Deb x

Jo90

Deb
I can fully understand the guilt about work, but it won't help you get on top of the problem, so park it and just get on with focusing on YOU and getting YOU better.
Am with you, let us know how you get on.
Jo
x

stickywicket

I'm in. Shame you cleared the crumbs out but not to worry - I'll make my own.

Not self-indulgent at all. Just naturally worried as the the rheumatologist is one who can, hopefully, change things, not the GP. They only dish out dullers and sympathy.

Hopefully he can chuck something else into the mix. I'll be there watching.

Numptydumpty

I'll be there Deb.
You really shouldn't feel guilty, you have no control or choice over the situation. If you did, you would choose to be healthy, and able to do the job you clearly love.
I hope all goes well at your appointment.
Thinking of you,
Numpty

barbara12

Hi Deb
Dont you dare feel guilty, put yourself first for a while till you get some relief, I will be in your pocket...and wishing you well with it all,please let us know how you get on xx

mig

Ready for pocket duties.Mig

PowerOn

May I join the pocket party?
May also add to the crumbs, but will keep quiet except to say, why feel guilty if you are ill and in need of care then what is to feel guilty about, shame that is easier said then done but we can keep trying.

bubbadog

Oh Deb, you've been through the wars! But don't feel guilty! Think at least I'm not passing any germs from my bronchiectasis to the kids! Will be in your pocket with a flask of hot soup to keep me warm!

kentishlady

Hi Deb. Will be in your pocket if there's any room? Hope all goes well for you. Beryl

Jo90

Bubbadog, could you pass me some of that soup please ? And let's try not to spill it on the others in here
(Still in here Deb, will try not to slurp loudly !)
x

dreamdaisy

Am I too late? I hope not - budge up everyone! DD

tjt6768

Count me and the Great White Dope in as well.
Best of luck

LignumVitae

I'm here too! Soup is lovely. Good luck and leave the guilt behind, there's no need and also the thoughts of self indulgence, hardly, you arent even trying to be self indulgent in my book! Good luck.
LV xx

dachshund

Hello Deb
i will be there for you i hope it all goes well.
joan xx

dibdab

Thank you all for your company- just home and maybe feeling a bit more hopeful.
In summary the rheumy listened thoughfully and suggested that the gold isn't working :? . So we're abandoning that but he isn't willing to try the biologics because of my bronchiectasis. So....... he proposes monthly steroid injections to keep inflammation at bay until easter when I hope to take early retirement, then adding in methotrexate again to see if I cope better with it when I'm not surrounded by coughing and sneezing ankle biters. On the positive side- at least I wont be getting big rainbow bruises on my btm from the gold injections . It makes things feel better when you can walk away feeling as if the professionals have listened and want to help.

Hope that you are all having an okay kind of day- thanks again for your support and encouragement- this forum really does make a difference because folks here understand in a way that our friends and family can't because they don't have the experiences of living with the relentless frustrations of the disease.

Deb x

tjt6768

sounds like a plan to me... Really hope it helps hun.

villier

Hi Deb sorry I couldn't be there today for you as I had a rendevouz with a 6 foot doctor with a scalpel. I am glad that you feel positive about your app, hope your retirement comes round quickly for you so you can get a well dserved rest..........tc..........Marie xx

ang12

Hi Deb I'm their for you anytime.I hope it all goes well.
Take care and big hugs Angela :-) x

stickywicket

That sounds like a good appointment and a plan. I hope things will be better from now on.

skezier

Hi Deb,

I another late comer but it does sound like a plan. Hang in there and again sorry I's some late. Cris x