Infliximab reaction...VERY delayed

shaggy
shaggy Member Posts: 14
edited 12. Oct 2012, 04:47 in Living with Arthritis archive
Hello all,
Have been on Inflix for about two years with no breaks. Today I had a sudden allergic reaction to it and have been told I can't have it again. Has anyone else experienced anything like this?

Cheers

Comments

  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    I can't help you but just wanted to say I hope the reaction soon calms down. Cris x
  • stickywicket
    stickywicket Member Posts: 27,761
    edited 30. Nov -1, 00:00
    I've never had infliximab but I had something very similar happen to me when I was on gold injections years ago. That was the end of me and gold and the start of a long and happy relationship with penicillamine. I hope your story has a happy ending too.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • tillytop
    tillytop Member Posts: 3,460
    edited 30. Nov -1, 00:00
    Hello Shaggy

    I am so sorry to hear this. I had exactly the same happen to me after
    5 years on Infliximab with no problems! Like you, I was told that was it, no more Infliximab but I was lucky enough to be moved onto Humira pretty quickly and now on Rituximab.

    Really hope they can get you onto an alternative very soon.

    Tilly xxx
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