So hullo there!
I'm 24 and was diagnosed with Psoriatic Arthritis just before my 24th
birthday, almost a year ago now. I'd been suffering with minor joint
pain for some years before but never enough to think that I might have
Over the course of last summer I started noticing that my
wrists/fingers/knees/back was tender/painful, lifting things, opening
door etc made me wince in pain, walking started to become difficult
and I just felt constantly worn out and irritable. Convinced I was
dying, I went to see my GP who referred me to a rheumatologist and I
was quickly diagnosed from there...
I'm now undergoing treatment for my arthritis and I'd say I'm about
halfway there, I very much doubt I'll be 'the same' again (i.e. I
doubt I'll be playing 5-a-side anymore, my ambition of becoming a
professional guitarist looks pretty much dead in the water) BUT I'm
definitely heading in the right direction. Which leads me to my
Whilst the rheumatologists have been great in talking to me about
treatment options etc, the one thing they can't do is talk to me as
someone who REALLY understands not only what it's like to suffer from
arthritis, but to suffer from it at such a young age. They could read
every textbook ever written on the subject and still not understand
for even a second what it's really like, anyone reading this will
likely know that the physical aspect of the condition is only a part
of the effect it really has on us.
I'm looking to get a 'group' of similar aged people together, maybe
all add each other on facebook or something. It'd be great if there
were people to talk to who really 'got it,' who've been on the
receiving end of THAT
look when you tell someone you can't make
a night out/planned activity, and just like me, wish they had some they
could moan to who can respond with "yeah I know, I've been there" instead
of "well you look fine to me."
So yeah, post on here, drop me a PM, smoke signal etc