Is Anyone else stressed??
Hi.. My 7 year old daughter was diagnosed with poly JIA in Aug and its all been very full on! She's had infusions twice and is now on Methotrexate inj weekly, folic acid, tummy settler and is just coming to the end of a 10 wk course of steroids! Her joints are still not fully under control, and there is talk of her going into Great Ormond Street for steroid injections! My daughter has become very needle phobic and kicks off every week with her inj which takes me about 3hrs to do now and she kicks off with blood tests! I'm finding this very stressful myself and I'm worried sick! I have been told that I'm not alone and that my daughter is not the only child who behaves like this! Can anyone tell me how my daughter can overcome these fears and what I can do to help her and myself! I just wanna cry! I'm a single mum so haven't got the support of a partner, and although I have great support from family and friends, none of them really know how I'm feeling! Can anyone help me, please? x x