DAS assessment on Thursday

Nicchick

Actually worried that I won't pass this time. My PsA/RA (or whatever!) always settles into a slight remission this time of year - January I was jogging, now I hobble about.

It seems so wrong to be hoping to be ill, goes against my usual way of looking on the bright side! Celebrex has changed my outlook dramatically as it has brought down the swelling so much that I can wear shoes although I still have joint pain and now can see the joints twisting as my fingers are no longer like fat sausages in a pan!

I don't know how I will cope if I don't pass as I have had two and a half years first on Sulfa and then Mtx and there is damage in my feet, spurs in my hips and I suspect shoulders (pain is the same) despite the Dmards.

I've also properly killed my laptop due to spilling a drink on it, I hate being clumsy! I dropped some eggs at the allotment last week and they are so scarce right now as the hens are all either too young or moulting...I cried because I couldn't put the henhouses back together...just p*****d off right now!

I also told OH about a man in a grey car following me about the other day and he said it was 'the man from the ministry' checking up on me! he warned me not to look too happy when moving around - I ride a bike, it hurts my hips to get on but saves my feet and knees a bit! I hope he's joking....

He has lent me his laptop for a while, brave man that he is, I was feeling a little isolated without it!

Hope everyone is keeping warm right now....x

dreamdaisy

Despite all the meds I was on when being assessed I still passed my DAS test for the meds and I now pass it to stay on the humira because it's low. HJopefully your rheumatology bods know you well enough by now to get a true picture of how things are with you at the moment - also base your answers to any questions about matters with how things are on a bad day.

It's very easy to be clumsy, I find I have to concentrate much more now when doing things - my right wrist at the moment is very miserable and I am wearing my working splints much more than usual. Having the challenge of doing ordinary, every-day things thrown against us far more than is fair is certainly frustrating but as Sticky so wisely said it isn't so much 'I can't' as 'How can I?'

I hope things go well for you on the DAS assessment - and look after OH's lappy! DD

barbara12

I just want to wish you well with assessment..and to say I have OA and I am forever dropping things lately..including my precious coffee mug... :roll:
Please let us know how you get on x

stickywicket

You sound quite wound up about this and I can well understand why. So much hangs on these things. Remember pocket duties are always available, nicchick.

I have my clumsy days. They are easily identified by the state of the kitchen floor :roll: I can't reach it so, anything that the grabber won't pick up is still there when Mr SW returns. I find cold weather makes my fingers virtually pack in altogether and pegging out clothes is a long, tricky business. It's being unable to do the little, apparently simple, things that is so frustrating and dishearteneing.

However, you have a good man if he's prepared to lend you his laptop after what you did to yours On the whole I think I'd rather have my own good man than a fully functioning body.

Nicchick

Ah, cheers everyone!

Typed out a reply, went to serve and when I got back it had gawn....but it's much the same for everyone - having to prove how ill you are to various bods is so draining and not at all positive!

As for laptops, this one was an insurance replacement....OH killed the original one with a glass of wine and has never lived it down! I'm just gearing myself up to ringing the insurance company again...:-/

Nx

Nicchick

I passed!

Even the nurse said 'I've put it off as long as possible but it's time to do the counting bit' really stiff this morning and had to ask the folks to swing by the allotment so I could do the chickens as we were due to leave at 8, luckily my bb arrived in the post yesterday so we could park nice and close...but still surprised as I have been feeling a bit better.

I chose Humira, it was easy really - out of the 3 options it was the only one my hands could manage to do!

Just waiting for the prescription to be signed off and I'd lost 1.5 kgs since last month as well as my ALT being lower

So relieved and ready to do this evening's workshop, thanks for good wishes everyone and hope all as well as can be.

Nic x

fowls48

well done i'm really pleased for you .


Fowls xx

villier

Well done Nic thats great............Marie xx

Nicchick

Thanks Marie and Fowls!

It takes up all yer bleeding energy and time this being ill business.

Nx

dreamdaisy

Welcome to the humira gang, I hope you manage it OK and that it does what it should. I am so pleased you passed today, that is good news. DD

Nicchick

Thanks DD!

What will we all do when you are incommunicado?

Nx

dreamdaisy

I suspect you will all heave huge sighs of relief. And hold a party. DD

Nicchick

Could we have a whip round and hire you a PA for the duration? You could dictate your words of wisdom...:)

dreamdaisy

You are kind but I reckon a break will do me (and all of you) good. I probably won't be feeling that wonderful and it's difficult to be positive for strangers when one is not doing too well oneself. Hey-ho, we'll see, yes? DD