stopped the hydroxy a week ago
mig
Member Posts: 7,154
I stopped the hydroxy a week ago on rheumatology nurses advice,I was feeling sick all day,things haven't improved yet,I am having strange sensations in my thighs and upper arms,I am also sweating a lot and sometimes have a slight panicky feeling,only been out once in the last three weeks as I feel so sick.I don't think it's the humira as I started feeling sick before I started it,swellings have all gone down and I am virtually pain free.Got to speak to nurse tomorrow to find out what happens next.
I have been looking in so please take for granted all pocket duties.I am thinking of you all.Mig
I have been looking in so please take for granted all pocket duties.I am thinking of you all.Mig
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Comments
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Hi Mig,
Sorry you're having such a tough time. It's awful feeling sick without knowing why, so I hope you'll get as much support as you need from the nurse tomorrow. In the meantime, I'm sending lots of positive vibes your way.
Best wishes,
PhoebePsA (psoriatic arthritis) and other things since 1990. Happy to help when I can :-)0 -
I'm very sorry you're still feeling so rough, mig. I think speaking to the nurse is the best thing to do. I hope she comes up with something helpful. (())If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Hi Mig
I hope the nurse has some suggestions tomorrow....sorry you are still feeling so "grotty"
Love
Hileena0 -
Awe mig sorry you are feeling so rubbish hope you can get something sorted out tomorrow............thinking of you..........Marie xxSmile a while and while you smile
smile another smile and soon there
will be miles and miles of smiles
just because you smiled I wish your
day is full of Smiles0 -
I too am sorry you have been having a rough time, Mig, but the glimmer of light is that the humira may be doing something to help matters and that is a good thing. Take care. DDHave you got the despatches? No, I always walk like this. Eddie Braben0
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Urgh, Mig, that sounds horrible, I hope the nurse comes up with something helpful. Hydroxy left me feeling just like that, I didn't stay on it long and can't remember how long that feeling last when I came off it but I hope they can sort you out. One step forward and another back, I hope they humira wins through.Hey little fighter, things will get brighter0
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I'm thinking of you, mig.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
I have to see GP tomorrow as rheumatology don't seem to know what's happening with me,they don't think its the humira and neither do I,I have got myself so stressed that I think is a big part of the problem.Nurse told me to hold off on next jab (its due tomorrow)till I have seen GP in case I have a bug of some sort.Mig0
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I know I’d be stressed in your shoes, mig. Uncertainly is always scary. I have absolutely no suggestions to offer and I hope the GP has. ((()))If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Hi Mig,
I'm sorry to hear you're feeling poorly.
I hope the doctor has some answers for you, and you feel better very soon.
Numpty0 -
Hi Mig, so sorry to hear you're feeling "Yuk"- sometimes there's no other word. Hydroxy makes me feel dodgy too. Hope the GP can help you and that things start to improve really quickly.
Take care.
Deb0 -
How did it go Mig? Hope they had something helpful up their sleeve. LV xxHey little fighter, things will get brighter0
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Hi Mig
Sorry I am late,but I do hope you have got some answers...and hopefully something to help you (((())) xxLove
Barbara0 -
I hope the doctor was able to help, Mig, and that you are feeling better / re-assured about things. DDHave you got the despatches? No, I always walk like this. Eddie Braben0
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Sat in the waiting room for 2 hours ,then saw a young man who looked like he should be in school,after going through everything he came to the conclusion that it's anxiety,he gave me some propranolol to try ,upto 3 per day,so we will see what happens.He did seem to know a little about thehumira.At the moment I feel like a wet rung out rag.Mig0
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Ah yes, these infant doctors! Still, if we was clued up that's a good thing.
I can well imagine that you feel shattered now, mig. You know the drill. Feet up and take it easy with a cuppa.
I do hope it helps. The good news, I guess, is that, if it wasn't the humira or the hydroxy causing it, you can still take both.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Forgot to add had a whole range of blood tests so got to hold off on the humira and hydroxy till the results are in ,he's not expecting them to show anything.Mig0
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Hi Mig,
Hope the propranolol helps and that you won't have to wait too long for your blood test results.
Best wishes,
PhoebePsA (psoriatic arthritis) and other things since 1990. Happy to help when I can :-)0
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