Inflammatory eye disease

Littlestar

Hi everyone
I hope your all well.last week I was diagnosed with Uveitis
Which is a autoimmune disease.

I was just wondering if anyone on here also has this?

elnafinn

Hi Littlestar

I am sorry to read your posting. There are quite a few postings on Uveitis and if you go to the Search icon at the top of the page and type in Uveitis it will bring up all the relevant messages about it.

One forum member mentioned this link that you may find of help:

http://www.rnib.org.uk/eyehealth/eyeconditions/eyeconditionsoz/Pages/uveitis.aspx#H2Heading5

I am sure others will reply shortly with more information and support.

Elna x

skezier

Hi Little star,

I am sorry you have that as well. It tends to be one of the things that you can get on the back of the auto imunes.

I have optic neuritis sometimes red eye as well as dry and I hope they are keeping an eye on it and also have they given you anything to help? With the on the mtx helped and if you are on one of the drugs for the atrhtirts it might help the eyes as well?

Really hope it will settle for you and just make sure they are keeping an eye on it. Cris x

Littlestar

Thankyou
I'll take a look now x

Littlestar

Hi
I'm being seen every week at the eye clinic at hospital.
They have giving me steroid eye drops to use every 2hrs & another
Eye drop to keep my pupils dilated.
It is worse in my left eye & when I use the drops for my pupils
I can't see properly for at least 3hrs.
It's getting Me down but I'm plodding on.
Sorry for moaning on x

Littlestar

stickywicket

Hey, you carry on 'moaning'. (Call that a moan? It's just a mini-moan ) I don't have eye problems myself but it sounds nasty. I hope the steroid drops help.

skezier

Hi Littlestar,

Really glad they are doing all that and with luck it will get under control. I understand so much about it getting you down cus the neuritis does me as it effects the vision so much. It also hurts actually.

I so hope that the steriod will help. I have used it for the neuritis a lot and it does damp it down. hang in there and leaving you a ((( ))) and a hope. cris x

villier

awe you moan all you want pet, glad to see though they are monitoring you well, hope things settle down soon...........tc.......marie xx

Littlestar

Thank you everyone,I'm just taking 1 day at a time x

fowls48

Hi Littlestar


Sorry to hear this it sounds very unpleasant , hope the steroids help.


(((())))XXX


fowls

gilly1957

Hi

I had uveitis many years ago after many years with on/off Iritis, I know what you are going through and how painful it is, at the time I had no arthritis.

I was admitted to hospital when I had Uveitis because it was so bad, like you i was put on steroids, eye drops, anti virus drugs in a drip and I had lazor treaatment.

At the time I was living in Surrey and went to Moorfields eye hospital(all they deal with is eyes) in London eventually after being treated in my local hospital at the eye clinic.

If you go on Moorfields web site http://www.moorfields.nhs.uk there is information about Uveitis. They also run a phone service where you can speak to a specialist nurse about your condition, there number is 0207 566 2345 its open 9-4.30 mon-fri.

theres also a website you can get information http://www.uveitis.net.

If you are real,ly worried Moorfields has a 24 hour emergency dept and you can just turn up.

Hope this helps,if you need any more info feel free to message me.

Gill x

Littlestar

Thanks for that Gilly I'll have a look.
I don't feel to good at all today thumping headache ect.
I've seen my GP today & I have protein in my urine so more antibiotics

Whatever next I wonder x

barbara12

Littlestar I am sorry I cant help, but please dont apologies for having a moan, we are all hers to support one another, so you moan away it will do you good to get things off your chest xx

Littlestar

Today I had to visit my rheumy about my eyes & joint pain.
She has took my blood & once she has the results I will start
On methatrexate or sulphazine but I'm not sure which one yet.

Which one has the least side affects???

I hope the snow isn't too bad where you are & you are not suffering
Because of it.
Littlestar x

trepolpen

Littlestar wrote:

Today I had to visit my rheumy about my eyes & joint pain.
She has took my blood & once she has the results I will start
On methatrexate or sulphazine but I'm not sure which one yet.

Which one has the least side affects???

I hope the snow isn't too bad where you are & you are not suffering
Because of it.
Littlestar x

hi , had Scleritis for last 7 months in one of my eyes , cause by my RA .

the two drugs , I am on both , Mtx is the better drug but with loads more side effects but folic acid sorts most of them out

Kerig

Hi Littlestar

Sorry to hear about your uveitis. I was diagnosed with this earlier this year, and like you was initially on eyedrops every hour, then every 2, then 4, then 3 times a day, then twice a day and finally once a day - this over the course of several weeks/months.

I am now on a management programme which means 1 eye drop every day and a check up every 6 months. My specialist has also told me that I cannot go swimming as eveitis destroys the eyes natural defence mechanism and there is a risk of the eye ulcerating if there is something in the water.

I asked about goggles and was told it was a high risk even with goggles as you need to wet them first when you put them on, also it is possible for the water to get into them when you swim.

that being said, once it is under control, and if you follows the advice of your own specialist I am sure you will find it becomes a natural part of your daily routine to take the eye drop. I have the occassional flare up, and I just contact the eye clinic and they see me as an emergency - usually they simply give a stronger eye dropy for a short period of time to get it back under control.

I hope the above helps you feel that you are not alone with this. I know that in the beginning it can seem extremely scary, however once it is under control you almost forget that you have it - just keep taking the drops.

Littlestar

Thankyou Kerig

Your Post has made me feel more at ease.
I'm see my consultant for the first time on Christmas Eve
So not much longer to wait.