Inflammatory eye disease

Littlestar
Littlestar Member Posts: 14
edited 9. Dec 2012, 09:18 in Living with Arthritis archive
Hi everyone
I hope your all well.last week I was diagnosed with Uveitis
Which is a autoimmune disease.

I was just wondering if anyone on here also has this?

Comments

  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Hi Littlestar

    I am sorry to read your posting. There are quite a few postings on Uveitis and if you go to the Search icon at the top of the page and type in Uveitis it will bring up all the relevant messages about it.

    One forum member mentioned this link that you may find of help:

    http://www.rnib.org.uk/eyehealth/eyeconditions/eyeconditionsoz/Pages/uveitis.aspx#H2Heading5

    I am sure others will reply shortly with more information and support.

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Little star,

    I am sorry you have that as well. It tends to be one of the things that you can get on the back of the auto imunes.

    I have optic neuritis sometimes red eye as well as dry and I hope they are keeping an eye on it and also have they given you anything to help? With the on the mtx helped and if you are on one of the drugs for the atrhtirts it might help the eyes as well?

    Really hope it will settle for you and just make sure they are keeping an eye on it. Cris x
  • Littlestar
    Littlestar Member Posts: 14
    edited 30. Nov -1, 00:00
    Thankyou :D
    I'll take a look now x
  • Littlestar
    Littlestar Member Posts: 14
    edited 30. Nov -1, 00:00
    Hi
    I'm being seen every week at the eye clinic at hospital.
    They have giving me steroid eye drops to use every 2hrs & another
    Eye drop to keep my pupils dilated.
    It is worse in my left eye & when I use the drops for my pupils
    I can't see properly for at least 3hrs.
    It's getting Me down but I'm plodding on.
    Sorry for moaning on x

    Littlestar
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    Hey, you carry on 'moaning'. (Call that a moan? It's just a mini-moan :wink: ) I don't have eye problems myself but it sounds nasty. I hope the steroid drops help.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • skezier
    skezier Member Posts: 11,333
    edited 30. Nov -1, 00:00
    Hi Littlestar,

    Really glad they are doing all that and with luck it will get under control. I understand so much about it getting you down cus the neuritis does me as it effects the vision so much. It also hurts actually.

    I so hope that the steriod will help. I have used it for the neuritis a lot and it does damp it down. hang in there and leaving you a ((( ))) and a hope. cris x
  • villier
    villier Member Posts: 4,426
    edited 30. Nov -1, 00:00
    awe you moan all you want pet, glad to see though they are monitoring you well, hope things settle down soon...........tc.......marie xx
    Smile a while and while you smile
    smile another smile and soon there
    will be miles and miles of smiles
    just because you smiled I wish your
    day is full of Smiles
  • Littlestar
    Littlestar Member Posts: 14
    edited 30. Nov -1, 00:00
    Thank you everyone,I'm just taking 1 day at a time x
  • fowls48
    fowls48 Member Posts: 1,357
    edited 30. Nov -1, 00:00
    Hi Littlestar


    Sorry to hear this it sounds very unpleasant , hope the steroids help.


    (((())))XXX


    fowls
  • gilly1957
    gilly1957 Member Posts: 212
    edited 15. Nov 2012, 15:27
    Hi

    I had uveitis many years ago after many years with on/off Iritis, I know what you are going through and how painful it is, at the time I had no arthritis.

    I was admitted to hospital when I had Uveitis because it was so bad, like you i was put on steroids, eye drops, anti virus drugs in a drip and I had lazor treaatment.

    At the time I was living in Surrey and went to Moorfields eye hospital(all they deal with is eyes) in London eventually after being treated in my local hospital at the eye clinic.

    If you go on Moorfields web site http://www.moorfields.nhs.uk there is information about Uveitis. They also run a phone service where you can speak to a specialist nurse about your condition, there number is 0207 566 2345 its open 9-4.30 mon-fri.

    theres also a website you can get information http://www.uveitis.net.

    If you are real,ly worried Moorfields has a 24 hour emergency dept and you can just turn up.

    Hope this helps,if you need any more info feel free to message me.

    Gill x
  • Littlestar
    Littlestar Member Posts: 14
    edited 30. Nov -1, 00:00
    Thanks for that Gilly I'll have a look.
    I don't feel to good at all today thumping headache ect.
    I've seen my GP today & I have protein in my urine so more antibiotics

    Whatever next I wonder x
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Littlestar I am sorry I cant help, but please dont apologies for having a moan, we are all hers to support one another, so you moan away it will do you good to get things off your chest xx
    Love
    Barbara
  • Littlestar
    Littlestar Member Posts: 14
    edited 30. Nov -1, 00:00
    Today I had to visit my rheumy about my eyes & joint pain.
    She has took my blood & once she has the results I will start
    On methatrexate or sulphazine but I'm not sure which one yet.

    Which one has the least side affects???

    I hope the snow isn't too bad where you are & you are not suffering
    Because of it.
    Littlestar x
  • trepolpen
    trepolpen Member Posts: 504
    edited 30. Nov -1, 00:00
    Littlestar wrote:
    Today I had to visit my rheumy about my eyes & joint pain.
    She has took my blood & once she has the results I will start
    On methatrexate or sulphazine but I'm not sure which one yet.

    Which one has the least side affects???

    I hope the snow isn't too bad where you are & you are not suffering
    Because of it.
    Littlestar x

    hi , had Scleritis for last 7 months in one of my eyes , cause by my RA .

    the two drugs , I am on both , Mtx is the better drug but with loads more side effects but folic acid sorts most of them out
  • Kerig
    Kerig Member Posts: 4
    edited 30. Nov -1, 00:00
    Hi Littlestar

    Sorry to hear about your uveitis. I was diagnosed with this earlier this year, and like you was initially on eyedrops every hour, then every 2, then 4, then 3 times a day, then twice a day and finally once a day - this over the course of several weeks/months.

    I am now on a management programme which means 1 eye drop every day and a check up every 6 months. My specialist has also told me that I cannot go swimming as eveitis destroys the eyes natural defence mechanism and there is a risk of the eye ulcerating if there is something in the water.

    I asked about goggles and was told it was a high risk even with goggles as you need to wet them first when you put them on, also it is possible for the water to get into them when you swim.

    that being said, once it is under control, and if you follows the advice of your own specialist I am sure you will find it becomes a natural part of your daily routine to take the eye drop. I have the occassional flare up, and I just contact the eye clinic and they see me as an emergency - usually they simply give a stronger eye dropy for a short period of time to get it back under control.

    I hope the above helps you feel that you are not alone with this. I know that in the beginning it can seem extremely scary, however once it is under control you almost forget that you have it - just keep taking the drops.
    Kerig
  • Littlestar
    Littlestar Member Posts: 14
    edited 30. Nov -1, 00:00
    Thankyou Kerig

    Your Post has made me feel more at ease.
    I'm see my consultant for the first time on Christmas Eve
    So not much longer to wait.