Jeremy Vine - Lupus

elainebadknee

Hi

The above is discussing Lupus on the radio...Its very interesting and as I myself have an auto immune disease (idiopathic urticaria and angioedema) I didnt realise the reason why I no longer got colds...Its because the meds we/I take to supress the condition so basically you cant catch common colds (according to radio) but can get other more severe things in case of Lupus..
Very interesting...

Elainexx

wall1409

Interesting I am still under investigation for an inflammatory form of athritis but I do have problems with my immune system, hence, I keep getting hives as well as other problems and have the flu jab every year

stickywicket

I didn't hear the programme but the 'colds' thing sounds odd. The meds that I take for my RA are deigned to suppress an over-active immune system. Hence, while on them, I'm more susceptible to colds and infections and less able to deal with them. (Writes she in a paroxysm of coughing.)

P.S. That should have read 'are designed to suppress' etc but they do seem the sort of meds that deign to help you in one way whilst scuppering you in others :roll:

mellman01

I missed it as I was in Oxford sxrewfix after doing an on line order that wasn't there although it was on their system?, they messed about so long it was over by the time I got back in my car!.

suzygirl

Interesting as the most common cause of death in lupus patients is infections. Being on immune suppressants themselves make you more susceptible to infections and then SLE lowers certain cell counts which also make infections more likely.

However it is also true that some lupus patients find their bodies so busy causing havoc with joints or organs that they rarely catch a cold.

Elaine I did not realise that you had lupus, which immunosuppressants do you take? I have SLE as well as a lot of other very dreary conditions.

I did not catch the programme myself, but I understand it was not exactly accurate in parts. However anything that raises the profile of SLE is good.

mike26

hi elainebadknee
sound right stickywicket
mike26 :roll:

elainebadknee

Hi Wall

Ive often wondered if I should have flu jab with having auto immune disease but havent bothered yet as can honestly say havent had a cold since having been diagnosed...I get hives and rashes aplenty, have a nice bout at mo!

elainexx

wall1409 wrote:

Interesting I am still under investigation for an inflammatory form of athritis but I do have problems with my immune system, hence, I keep getting hives as well as other problems and have the flu jab every year

elainebadknee

Hi Sticky

It made sense to me as havent had so much as a tickly cough or nothing for over 2 plus years...Do have constant runny nose with allergic rhinitis however which is a bit of pain....

Elainex

stickywicket wrote:

I didn't hear the programme but the 'colds' thing sounds odd. The meds that I take for my RA are deigned to suppress an over-active immune system. Hence, while on them, I'm more susceptible to colds and infections and less able to deal with them. (Writes she in a paroxysm of coughing.)

P.S. That should have read 'are designed to suppress' etc but they do seem the sort of meds that deign to help you in one way whilst scuppering you in others :roll:

elainebadknee

Ah Mell

You missed an interesting one...catch up on ipplayer?

Elainexx

mellman01 wrote:

I missed it as I was in Oxford sxrewfix after doing an on line order that wasn't there although it was on their system?, they messed about so long it was over by the time I got back in my car!.

elainebadknee

Hi Suzygirl

First of all I aint got Lupus, I do have auto immune disease called idiopathic urticaria and angioedema plus allergic rhinitis...PHEW!!!!I take fexofenadine and levocetrizine for them....
The radio show today said that lots of Lupus sufferers seemed to get lots of kidney/liver infections and one woman diagnosed her daughter (they both had it) as she looked at her swollen legs and could tell right away....
I found it a very interesting show and it must have been quite accurate as there was the resident doctor Sarah commenting on it too....

Elainexx

suzygirl wrote:

Interesting as the most common cause of death in lupus patients is infections. Being on immune suppressants themselves make you more susceptible to infections and then SLE lowers certain cell counts which also make infections more likely.

However it is also true that some lupus patients find their bodies so busy causing havoc with joints or organs that they rarely catch a cold.

Elaine I did not realise that you had lupus, which immunosuppressants do you take? I have SLE as well as a lot of other very dreary conditions.

I did not catch the programme myself, but I understand it was not exactly accurate in parts. However anything that raises the profile of SLE is good.

elainebadknee

Hello!!! Not sure what else to say!

mike26 wrote:

hi elainebadknee
sound right stickywicket
mike26 :roll:

villier

elainebadknee wrote:

Hi

The above is discussing Lupus on the radio...Its very interesting and as I myself have an auto immune disease (idiopathic urticaria and angioedema) I didnt realise the reason why I no longer got colds...Its because the meds we/I take to supress the condition so basically you cant catch common colds (according to radio) but can get other more severe things in case of Lupus..
Very interesting...

Elainexx

I will certainly have a listen Elaine xx

tkachev

suzygirl wrote:

Interesting as the most common cause of death in lupus patients is infections. Being on immune suppressants themselves make you more susceptible to infections and then SLE lowers certain cell counts which also make infections more likely.

However it is also true that some lupus patients find their bodies so busy causing havoc with joints or organs that they rarely catch a cold.












That makes sense. I once had a bout of sickness and my arthritis pain totally went away for those 2 days and I could leap out of bed and run to the loo.

Elizabeth

elainebadknee

Yes I know it said they could get infections in places such as liver, kidney and heart which could be fatal but not a common cold.....It really is fascinating and it can be a vicious disease I beleive..

Elainexx

tkachev wrote:

suzygirl wrote:

Interesting as the most common cause of death in lupus patients is infections. Being on immune suppressants themselves make you more susceptible to infections and then SLE lowers certain cell counts which also make infections more likely.

However it is also true that some lupus patients find their bodies so busy causing havoc with joints or organs that they rarely catch a cold.












That makes sense. I once had a bout of sickness and my arthritis pain totally went away for those 2 days and I could leap out of bed and run to the loo.

Elizabeth