I'm aware it's been a while since I poked my head around the door. Who knew a degree that included a work placement would be so time consuming?!
With 21,000 words due in May, I imagine life will remain busy for the next few months.
Anyway, I wanted to post a little message of hope to those who have tried lots of different medications and still haven't found any relief.
I've been on the combination of leflunomide, methotrexate and celebrex for 4 months. I'm off prednisolone but more importantly, I managed my first day in over 3 years without any codeine.
This is a big deal for me! I'm still taking paracetamol regularly but it's wonderful not needing such strong pain relief. I'm under no illusions and I'm sure there will be days I need stronger drugs but this was quite a momentous occasion for me.
My joints move better and are less swollen. My pesky Sjogren's Syndrome is still bothering me but hopefully it will settle down. It's not a 'miracle cure' combination but it's huge progress. I didn't think I would get to this point. After 3 years, I assumed I would always be in a terrible state with my RA. Don't get me wrong, I still get pain and the other symptoms but it's far more manageable. I can cope with life like this, whereas before, I felt far too ill to function. I've learnt that stabilising inflammatory arthritis is a long and lengthy process and it's taken me a long time but finally feel "yes, I can cope with low level symptoms and the occasional flare".