Evening everyone!
Silly, I know but despite being prescribed these after seeing my consultant in November I'm only now starting to use them, first one today.
I've been feeling so well, first on Celebrex and then the Humira that I stopped all pain relief and even stopped the Celebrex but a few days ago (maybe a little longer) my feet and hands started complaining - it's not rheumatoid pain, I'm guessing it's the eroded joints that are causing the agony.
I popped a Q on Twitter as I don't know anyone who uses pain patches and the thought of something almost permanent feeding drugs into me scared me. Two rather sweet and reassuring ladies offered up their experiences with them to me, both positive!
So...here's hoping!
I know people (who don't have RA) are alarmed by the strength of the drugs we need to take but if they were using my feet right now then they wouldn't hesitate to take whatever was offered! I couldn't bear to take Tramadol again, the tolerance built at an alarmingly fast rate, it made me sick and zombiefied, not nice!
I've set my alarm as I'm expecting a good snooze......
Nic x
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Take care. Beryl
I am on the fentalis patches, and like you took a while to start using them,especially has I found out they are much stronger than morphine, so far I am not having much joy with them, at first I felt quite sickly but that has passed just waiting for them to work... :?
Good Luck with them I know others on here have had a lot of relief from them,please let me no how you get on with them x
Barbara
I haven't had any relief yet and did resort to some additional Tramadol this afternoon which the doc did say was ok and had a couple of hours where the pain was bearable.
I always count it as a bonus if there are no horrid side effects but am waiting to see if there's any positive effects after 3 days - I'm abandoning ship if there isn't!
Poor you Beryl! I'm ok taking most things and I suspect that it is all my fault for stopping Celebrex as I was feeling so well - doh!
Barbara, it is scary and as I know no-one who is on the sort of drugs we have to take I had to 'speak' to some people who had before I was brave enough to try!
I'll report back tomorrow as I feel an early night coming on - it's been a long day!
Nx
just read your post, don't know much about the meds and patches as it is OA I have although I have used Lidocaine patchesin the past for neuropathic pain, keeping fingers crossed you will get some relief by tomorrow............tc..............Marie xx
smile another smile and soon there
will be miles and miles of smiles
just because you smiled I wish your
day is full of Smiles
Until yesterday afternoon I would have said that it hadn't been much different but then I did feel in slightly less pain feetwise which in comparison to normal was bleeding marvelous - then I got all stupid and did far too much again and feel ropey as anything this morning!
The Humira is definitely doing something as I can do 3 'jobs*' in a day instead of spreading them throughout the week!
*making the bed, having a bath or cooking a meal etc.
I think OH is looking in to asking for lidocaine patches for his foot and ankle - he gets a lot of pain post ankle fusion and we both wondered if they would be any good - did they help you at all?
Nic x
smile another smile and soon there
will be miles and miles of smiles
just because you smiled I wish your
day is full of Smiles
i was on those patches they did work i had to come of them
they made me ichy and my clothes stuck to it.
i hope you get some releaf from them.
take care
joan xx
joan xx
I am on bu-trans and have been for a good while now. I don't think they are a miracle BUT they take the edge off for certain and l don't feel so woozy as I did on 'normal' meds :oops:
I don't know what dose you are on, but I am allowed to top up for breakthrough pain with things like co-codamols and paracetamol. You could ask your GP or pharmacist whether you can too?
Love
Toni xxx
Ps I stick them on my upper arms as I think the skin is tougher there than chest area and most of the time they don't show
Toni xxx
I was told by rheummy that codiene medication should NOT be taken with the beutrans. the reason he gave was that they battle against each other through different nuropathways so counter act each other. He explained it in more detail but i cant remember exactly what he said.
Anyhow the advice i would give is dont take anything with codeine in while on patches. Stick them on a dif area each time too.
All the best. x
EEKK!!!
Thanks for that Clare :shock:
love
Toni xxx
Toni xxx
I have those patches to. Ifind they do help, dont take away pain completely but help. And I am able to take tramadol on top as well. I am one of the luck ones, no side effects at all. No sleepiness, nothing.
I've given up on the patches as I think distraction was playing a bigger part in dealing with the pain - I had a couple of trips sitting in cars and found that the pain in my feet after getting out was just as bad as it ever is. I might be wrong but I'll see how things go.
OH is off to see GP about his medication as his arthritis has changed over the years but his meds have stayed the same. He had a hip x-ray yesterday and that showed narrowing spaces and erosion in his hip joints, hence pains!
Nic x
3 months ago I was in unmanageable, unbearable pain every day, was taking 8 Tramadol, 8 Cocodamol, 3 Diclofenac plus ADs and capsaicin cream and the pain was still unbearable. I started on the patches, and now while it's intense, it's manageable. I find that it blunts it and takes the edge off so that I can do other things. I'm lucky but don't seem to have side effects
That said, they don't suit everybody but in order to know if they help or not, you do need to give them a chance.