Enthesitis everywhere??

Keren

Hi guys,

Well, I posted here three years ago (crikey, time flies)when I was diagnosed with osteoarthritis in my thumbs. Since then, my arthritis has steadily got worse, appearing in all my fingers, my wrists and my toes, but just with pain and no synovitis. I've also had bouts of achilles tendonitis, plantar fascitis, and costochondritis. :? The doc has now referred me back up to the rheumie in March.

****'s law, the day after I saw the doc, I started getting bad tendon pain down behind my outside ankle bone and under my foot where the tendon inserts, as well as knee pain. After a bit of reading around, I think I have enthesitis, but it's now got worse and is all over the place - it's on the insides of both elbows, in my groin at the top of my leg bone, in my buttocks (I think it's sacroiliac joint pain, so it hurts to sit down), in my ankle, both knees, where my toes join my feet, and on the outsides of my wrists. And I keep discovering new sore spots. Aaaaargh!!

Has anyone else had such a generous helping of enthesitis all at once, and is this normal or should I be freaking out?! Apart from the general pain and inability to do anything much at all, I'm feeling panicky about it and wondering if there's something dreadfully wrong. I have another appointment to see my doc next week so will hopefully know more then, but just wondering if anyone has experienced anything similar?

Thanks guys,
Keren x

frogmorton

Hi Keren

I remember you!!

It would be nice to be able to say 'how are you?' But clearly you are having a rough time of it

Such a shame you started extra symptoms the day after you saw the doc :roll: typical! I once was 'fine' when I saw the rheumy, but on the way home my rT hand swelled up :roll:

I haven't much to say to help, other than welcome back and good that you are seeing the doc soon AND have the rheumy apt in the pipeline

Love

Toni xxx

constable

I'm unable to help you with this one. But just to wish you luck with you're appointment with the doctor. I know with oa for me it is spreading to all new areas.

Keep us informed of how you get on with the doctor though,wont you.

stickywicket

Hi Keren. I don't know anything about enthesitis but it sounds nasty if that's what you've got. Mr Google isn't always right though I'm glad you have a rheumatology appointment as that should get to the bottom of things and hopefully get you on some meds which will help.

villier

Keren sorry don't know anything about it either hope you get your Rheumy app soon......................tc.................Marie xx

Lrcjvl

I also have enthesitis everywhere. I find it very difficult to find ways to improve it. One thing that has helped me is voltaren gel. I apply it to my heels, ankles, tops of feet and base of toes. I also apply it around my knees. I try to stretch my tendons before getting out of bed. Also have stiffness from plantar fasciitis. Findings shoes that did not hurt my feet and ankles was difficult. I only wear clog type shoes with no back to rub against my achilles tendon. Crocs have been a lifesaver for me! The tops of my legs hurt, have sacroiliac pain and sometimes elbow, wrist and finger issues.

I take naproxen, methotrexate injections, humira injections, voltaren gel for pain, stiffness and inflammation. I also take b12 injections, b1, iron, folate, biotin, vit d, and calcium for malabsorption. I have a reclast infusion once a year for osteoporosis. I also take gabapentin for nerve pain/sciatic issues and omeprazole for stomach.

My diagnosis so far is seronegetive inflammatory polyarthritis. I have a family history of psoriasis (mother and brother). I understand enthesitis is a hallmark of psoriatic arthritis. I have some nail issues but no psoriasis yet.

I don't have much joint swelling and heat- enthesitis is mainly AROUND the joints. It took a long time to diagnose.

I am no longer able to work. Fatigue is a big issue. Hurts to stand for more than a few minutes. Walking is painful after a block. However, water walking in warm pool does help keep my tendons stretched out.

Best of luck to you- hope you can get some relief!

stickywicket

Hello lrcjvl. It's nice to meet you and kind of you to try to help someone else on your first visit to us.

If you start a new thread and introduce yourself I'm sure others will want to welcome you.

Keren

frogmorton wrote:

I remember you!!

Awww, it's nice to be remembered!! I suspect it has something to do with the somewhat odd name - as a kiwi living in the UK, nobody knows how to pronounce it, but it's a fairly common handle in NZ.

Keren

stickywicket wrote:

Hi Keren. I don't know anything about enthesitis but it sounds nasty if that's what you've got. Mr Google isn't always right though

Thanks for the gentle reminder stickywicket - for me, part of feeling in control when I have worrying symptoms and no diagnosis is trying to decide what I might have, so I spend waaay too much time googling. :oops:

Keren

Lrcjvl wrote:

I also have enthesitis everywhere. I find it very difficult to find ways to improve it. One thing that has helped me is voltaren gel. I apply it to my heels, ankles, tops of feet and base of toes. I also apply it around my knees. I try to stretch my tendons before getting out of bed. Also have stiffness from plantar fasciitis. Findings shoes that did not hurt my feet and ankles was difficult. I only wear clog type shoes with no back to rub against my achilles tendon. Crocs have been a lifesaver for me! The tops of my legs hurt, have sacroiliac pain and sometimes elbow, wrist and finger issues.

I take naproxen, methotrexate injections, humira injections, voltaren gel for pain, stiffness and inflammation. I also take b12 injections, b1, iron, folate, biotin, vit d, and calcium for malabsorption. I have a reclast infusion once a year for osteoporosis. I also take gabapentin for nerve pain/sciatic issues and omeprazole for stomach.

My diagnosis so far is seronegetive inflammatory polyarthritis. I have a family history of psoriasis (mother and brother). I understand enthesitis is a hallmark of psoriatic arthritis. I have some nail issues but no psoriasis yet.

I don't have much joint swelling and heat- enthesitis is mainly AROUND the joints. It took a long time to diagnose.

I am no longer able to work. Fatigue is a big issue. Hurts to stand for more than a few minutes. Walking is painful after a block. However, water walking in warm pool does help keep my tendons stretched out.

Best of luck to you- hope you can get some relief!

You poor thing - sounds like you've not had it easy! A lot of that does sound worryingling familiar. Hohum. Will just have to see what the doc and rheumie say.

lizzy100

i think its fairly common to get one type of enthesitis. but not to get it everywhere. hope they find out whats happening. good luck

stickywicket

Keren wrote:

Thanks for the gentle reminder stickywicket - for me, part of feeling in control when I have worrying symptoms and no diagnosis is trying to decide what I might have, so I spend waaay too much time googling. :oops:

I think it's OK if we stick to sites we know are reliable eg AC, NHS, usually self-help groups for any illnesses or diseases. But it's a vast unpoliced area out there so no point in fretting over stuff that's likely to be inaccurate.