Need advice please
nearlybionic
Member Posts: 1,899
Hi
I am trying to get my head round the phone call I got from my GP yesterday. The phone rang at 8.10 am and my GP told me he was not working but wanted to speak to me before he goes on holiday.
I was diagnosed with bilateral hip dysplasia at 39 following nearly 20 years of hip pain with associated knee and back pain. When I was in my early 20`s I started to have pain mainly in my right hip and was told by my first surgeon that a fracture in my knee in which I have Osgood schlatters disease was the cause. So being naive I had the surgery, which did not help so I got a second opinion. The 2nd ortho did lots of tests, xrays, MRI etc and told me I had a psoas bursa which was inflamed and needed injecting or removing. However it was by my femoral artery and may cause fatal bleeding! So I declined! I was also told my symptoms would improve if I was pregnant. (not a long term cure though!)
So I carried on for years with pain killers until I could cope no more. Then after xrays was diagnosed with the bilateral dyplasia with OA, bone on bone in left hip which was replaced. I am now waiting for the other replacing.
Anyway.. the GP has asked me to get a copy of my first MRI in 1993 to see why the dysplasia was not found then, as it something you are born with. If diagnosed early enough it can be corrected surgically and hopefully avoid OA & THR. So I think my GP is suspecting misdiagnosis. Has anyone got experience of looking into this sort of thing?
I have spoken to 2 hospitals for copies of reports etc.. ad am getting them sent to me. I am interested to see what the reports say, but am surprised at my GP ringing me like that!
NB
I am trying to get my head round the phone call I got from my GP yesterday. The phone rang at 8.10 am and my GP told me he was not working but wanted to speak to me before he goes on holiday.
I was diagnosed with bilateral hip dysplasia at 39 following nearly 20 years of hip pain with associated knee and back pain. When I was in my early 20`s I started to have pain mainly in my right hip and was told by my first surgeon that a fracture in my knee in which I have Osgood schlatters disease was the cause. So being naive I had the surgery, which did not help so I got a second opinion. The 2nd ortho did lots of tests, xrays, MRI etc and told me I had a psoas bursa which was inflamed and needed injecting or removing. However it was by my femoral artery and may cause fatal bleeding! So I declined! I was also told my symptoms would improve if I was pregnant. (not a long term cure though!)
So I carried on for years with pain killers until I could cope no more. Then after xrays was diagnosed with the bilateral dyplasia with OA, bone on bone in left hip which was replaced. I am now waiting for the other replacing.
Anyway.. the GP has asked me to get a copy of my first MRI in 1993 to see why the dysplasia was not found then, as it something you are born with. If diagnosed early enough it can be corrected surgically and hopefully avoid OA & THR. So I think my GP is suspecting misdiagnosis. Has anyone got experience of looking into this sort of thing?
I have spoken to 2 hospitals for copies of reports etc.. ad am getting them sent to me. I am interested to see what the reports say, but am surprised at my GP ringing me like that!
NB
0
Comments
-
Hi
I think you have an exceptionally conscientious GP who wants to completely understand your history. It's good that you've been able to get access to the reports so quickly. Does he want to see the actual MRI images as well as the reports?
Will be interested to see what happens next but have to say your GP is impressive.
Shula0 -
Hi Shula
He is very good, and it shows when trying to get an appointment to see him! Booked up for ages!! He said report , so I suppose it depends what it says. I was surprised that they found it so quickly and said it would be posted yesterday. Especially considering it would have been in my paper records.
I will request my old records too if necessary, but know there could be a cost implication.
Watch this space!
NB0 -
Hi NB
A very strange call.....but very good. He must be an excellent GP
I wouldnt know where to start to get my records if it was necessary
It will be interesting to find out what the outcome of all this is
Love
Hileena0 -
Gosh NB
Your GP should have explained more,but he does seem to be very good, was he your GP at the time of the first MRI,mind you he would have taken the consultants word has to what was wrong.
Do you have any idea if you were born breach, I was asked this once and I have found out I was, apparently it can cause hip probs later on,this wasn't official but came off a nurse I know.
I do hope its good news whatever it is...xxLove
Barbara0 -
Thanks Hileena
It is not that difficult to do, it can take some time I`ve heard and some hospitals charge.
I will keep you posted
NB0 -
Hi Barbara
No I wasn`t with this practice then, I moved a few years later. But the GP`s often only get the letters from the consultants and not the report (unless the GP requests the MRI)
I wasn`t breech. But hip dysplasia is more common in first born girls and breech presentation can increase the risk too.
NB0 -
Wow, you do have a good doctor there. Ours is much the same. Like the old type family dr. If your dr feels this could have been sorted out ages ago. You are lucky to have found you're reports of years ago.
My hubby had an op years ago. It went wrong. And the hospital now say they have no record him. Thats even with his specialist asking for the notes etc.
Good luck and keep us informed.Karen xx0 -
Gosh what a great Doc you have there NB, you were also very lucky to get your scans after all this time, very interesting to see what will happen next, keep us informed...................Marie xxSmile a while and while you smile
smile another smile and soon there
will be miles and miles of smiles
just because you smiled I wish your
day is full of Smiles0 -
Hi
Thanks Karen and Marie
I am looking forward to the post man tomorrow! I hope my letter with the MRI report arrives then I can see what thye found back then!
I have had a terrible nighy, very little sleep, pain with every move despite my MST at 10pm and Oromorph in the night. I am having a duvet day in front of the TV today. Sad not to be watching my son play football for his team but I would not manage the walk from the car to the pitch or standing for a couple of hours in the cold. I will have text updates from Mr NB instead.
NB0 -
I too have to say gosh!!!
and I am the 3rd to say it!!! Nearly DO let us know what happens - hope the postie brings news.
Love (a very interested)
Toni xx0
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