Finding it hard

suzygirl

Sorry to moan, they will write that on my gravestone!!!

The pain in my elbow and shoulder has extended to hand and wrist. It is agony, I have a contracture (dupuytrens) already, which doesn't help. My arm won't straighten., lift or anything. It really, really hurts!"!

I have tried everything to help and nothing does. Finally in desperation I have called rheumy help line. ( Had fever and various other symptoms for over 5 weeks). Went to get bloods yesterday, hoping not a flare as already had injection into elbow and not sure how many allowed.

Don't often say this, but pretty miserable. Pain intolerable despite best efforts and not sure rheumy nurse can help really. Stupid disease, feel rotten generally as well, which doesn't help.

I know it get's too the best of us, but I do hate to give in. I won't bore anyone with the myriad of other symptoms occurring also, but it is enough.

I am also aware that due to lack of posting, no one on here, 'knows' me anymore. I am sorry, but have been really struggling. Hi to anyone I have missed, and to a anyone I already 'know'.

stickywicket

I 'know' you, Suzygirl. And I know you don't 'moan' lightly. I'm afraid I'm slightly the worse for wear having had a good night out with friends :oops: but I send you some of these (((()))) and hope that things will ease up for you and that the helpline will come up with a good and helpful suggestion.

salamander

Hi Suzy, moan away! Sorry to hear you are so down in the dumps but hope you get some help from rheumy department. x

frogmella

Suzy - please feel free to moan. It sounds like you are more than allowed a good moan at the mo. I can't offer any advice just a big, virtual ((())).

stickywicket

Morning Suzygirl. I have no suggestions to offer but a lot of hopes and a few more of these. ((()))

suzygirl

Thanks, the rheumy nurse called first thing this morning. They are going to give me an appt, hopefully in the next couple of weeks. In the mean time she said see the gp, but they may prescribe steroids and I am dieting. :roll:

I will try and get an appt tomorrow though. Maybe the contracture needs treating, I am wondering if it is causing the pain as unlikely as it sounds.

Sticky, hope you had a great night out.

dreamdaisy

Steroids have a role to play in helping us over various hurdles and it sounds as though this is one hurdle where they could be of real benefit. Any weight gain isn't instant (well, not in my experience) but it comes off quite rapidly when one stops the pred, which can be viewed as another bonus. You may not be on them for that long either, Suzy, so don't be afraid to have a short course, it could make a difference. DD

salamander

You can lose weight whilst on steroids. I have done it. Just had to be extra careful about snacking and filling up on fruit and veg. xx

frogmorton

suzygirl wrote:

Thanks, the rheumy nurse called first thing this morning. They are going to give me an appt, hopefully in the next couple of weeks. In the mean time she said see the gp, but they may prescribe steroids and I am dieting. :roll:

I will try and get an appt tomorrow though. Maybe the contracture needs treating, I am wondering if it is causing the pain as unlikely as it sounds.

Sticky, hope you had a great night out.

Suzygirl

I just wanted to say I know you!!!

I am so glad that you have an appointment soon to be in the pipeline. I agree about the contracture - what if is IS that?!

Take care of yourself now

Love and ((()))

Toni xxx

suzygirl

Thanks everyone, I will try to get an appt with the gp tomorrow. Had to ask everyone all the time to do everything for me, they must be so fed up!!!!

I know it is silly to worry about weight gain, but I have worked so hard to lose weight. If steroids it has to be then so be it!!!

Toni, I know you too!!!

stickywicket

Good decision, Suzygirl. Sometimes these things just have to be done. You've battled on enough with this now and, if will-power alone was going to fix it, it would be fixed by now.

You won't necessarily put on weight with the steroids. I have old photos of me with the awful moonface over a slim body. Nowadays my face is thinner and my body thicker - to match the brain cell

nearlybionic

Hi Suzygirl
Sorry to hear that you are having a bad time. (and I remember you!! )
I hope the appointment comes through soon, and that the steroids help to ease things in the meantime.
Take care xx
NB

suzygirl

Thanks Sticky, I had a peer at my elbow and it is extremely swollen, which may explain a few things :roll: I can't be like this over the weekend. At this rate I may even be smiling at the steroids!!!!

Hi NB, nice to hear from you. Its a bit of a pig this arthritis malarkey hey

tjt6768

hi Suzy, really sorry you are suffering so much...

Hope the gp can help.

Yorkshire Blokey Hugs coming your way
Xx

LignumVitae

Hi Suzy,

I hope the GP offers some relief, in the mean time, please moan away, you will only get support in response! Big (((((()))))) to help you through this tough time, it must be awful, elbows really know how to hurt when they get going and swollen ones particularly...whoever named that bone a funny bone?!
LV xx

barbara12

Suzy I am sorry I'm late seeing this...gosh I can feel your pain...its awful when we are in so much pain and cant even take the edge off it.....I do hope you get some relief very soon....and please let us know how you are...and you are not moaning ..you just need some help ((((()))) xx

stickywicket

Have you managed to get an appointment, Suzygirl? I hope so.