Radio isotope scan results

Mummyof3
Mummyof3 Member Posts: 18
edited 9. Feb 2013, 11:50 in Living with Arthritis archive
Hi everyone, not sure uf anyone remembers me but I developed ReA in April and its still not gone :-( and the consultant doesn't know why. well I had my radio isotope scan....and the results came back showing nothing. So now I don't know what's next because I was hoping that would show something. Is this normal that the results can be negative even though I'm still in pain. What is my next step? I dont see my consultant until march as he's off on paternity :-(
I've had a ultrasound in my hand that showed nothing and my bloods are only slightly raised.

Comments

  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I remember you :) I'm not quite sure what is supposed to show up on this scan. What I do know is that the results of scans x-rays etc often bear little relationship to the amount of pain experienced. Your GP might be able to explain things.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I remember you and I'm afraid I cannot help. I've never had one of these scans and don't know what they are supposed to show / achieve but obviously for you it isn't been much help.

    ReA is a tricky one because (as I understand it) it can go away only to be triggered again by another bug or virus. Quite how one would treat it therefore I don't know - the meds that us 'usua'l auto-immune types are ongoing thus lacking a dip-in-dip-out option but maybe that wouldn't apply. March isn't too far away so I hope you will be able to see him and I know from experience that although bloods and scans can be wonderful the pain and discomfort can be in inverse proportion. I don't usually advise research ont he net but in your case - and using only reputable sites - it may be worthwhile. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I think, having looked it up, that this scan would be measuring bone damage. It might be - hopefully - that they got on top of yours before it could cause any. Everything will still hurt though.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • frogmorton
    frogmorton Member Posts: 30,057
    edited 30. Nov -1, 00:00
    Hi Mumof3 nice to see you

    Sorry the test hasn't 'proven' your pain :( If it is designed to only show damage then that ought to be good news.

    I do hope that the consultant, when you see him next month, will be able to explain what it actually all means :?

    All in all very frustrating.

    I hope someone else might have more info

    Love

    Toni xx

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