Hi, I'm new to the forum and I hope you don't mind me getting a few things off my chest.....
I'm 20, in my second year of uni in London and was diagnosed with seronegative inflammatory arthritis just before Christmas. It all started in the summer holidays just with pain in a couple of fingers, which spread to both hands. Since that time it has spread to my jaw, my elbow, my knee and possibly some parts of my feet. I was shocked how fast the pain developed until now I need a walking stick to get around and I walk slow. It feels like stairs are the bane of my life!
They've got me on sulfalazine, and vitamin D. I am taking naproxin and the stomach protector for that but I still feel in a lot of pain. Its hard to know if the pain is getting worse as you start to adapt to it. I have no idea if naproxin really does much? They have offered the steroid shot but said they don't like to give it to young people because of the side effects - do you guys think its a good idea? Do you know if I'm entitled to any help like physiotherapy, an OT or hydrotherepy or something? Are there any that people have found really useful? I'm just on the NHS at hammersmith hospital and I feel a bit disappointing they haven't really offered much support other than the basic meds.
I've applied for DSA and am trying to fill out DLA but its so long and I have no idea if people with similar problems to me get it. All the forms and practicallties start to get really stressful :C
I'm finding uni incredibly difficult now. I feel so stressed and painful I'm starting to miss some of my deadlines. I really don't want to have to drop out but its starting to look like more and more of a likelyhood as my concentration is completely off this term as things have got worse. I don't even like my course much anyway and the arthritis just makes everything so much worse. I feel so isolated at university, I don't have any close friends there and it doesn't help that my department is full of narrow stairways. I find it even harder to socialise through uni now because lots of the activities involve standing a long time or walking to various pubs around london. After a couple of hours at uni and knowing I have an hour commute home I just feel exhausted all time.
Such a long post already and I feel I've barely scratched the surface