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joon51
Member Posts: 221
Hi everyone I have not been on forum for a while although I do keep looking in. Thought I would update you on how I was doing or not. Was diagnosed with ra three years ago now my meds are mtx 20mg by injection 2x200 planquil folic acid adcal and amitripilene excuse the spelling. Been injecting mtx for well over a year now dose keeps changing as I kept getting high LFT figures although that seems to have settled now. I am due to see my rheumy in 3 weeks. Since about Christmas I have noticed quite a change in myself I have started dropping things, it feels like I have no strength in my body, also I have started to feel the way I did before I was diagnosed (achy,tired, not able to sleep well pain) I take my mtx on a Monday night it completely wipes me out I am like a bear with a sore head I get so angry with myself and others. It is hard to put into words but I feel like my body is telling me its giving in to arther, I get angry when I try to do something that I use to find so easy to do and now find it so hard. Whilst in bed I put my arm round oh he then put his hand on my hand I had to pull it away as it hurt I didn't say anything to him. I'm still in full time work which I am starting to find difficult every week I am on the verge of walking out but being me I soldier on. Has anyone else found that after a while there meds don't seem to work as good as they did? Sorry to go on and on.
Wishing you all a pain free day as possible
June xx
Wishing you all a pain free day as possible
June xx
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Comments
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Hello, I remember you and it's good to hear from you again, albeit with not very good news.
I think this is par for the course, Joon, the meds do their bit for only so long and then the body kinda 'adjusts' to them and they begin to lose their effectiveness ( if they ever had any to start with ). I began with just sulph, then over the years various meds have been added and subtracted while things have steadily deteriorated, I think that there are very few of us on here who manage to stay on only one med. (I can think of one, that's it.)
RA is a pernicious disease, it perseveres in a way I almost envy - it's stubborn, intractable and downright nasty. The only way to 'fight' back is to keep with the medication and gradually adjust our lives to fit around it - to keep fighting against it only gives it further opportunities to affect us. It may be time to start thinking about adjusting your working life and a chat with your rheumatologist about some different meds would appear to be on the cards. I wish you well. DDHave you got the despatches? No, I always walk like this. Eddie Braben0 -
Hello June
And yes I remember you...I am so sorry you are suffering like this..has DD says maybe its time to have a rethink..not always easy when you have to work.
Its so blinking unfair this arthritis..sometime you think you are getting there then it lifts its ugly head, but don't let it win.
You go and see your rheumy, and hopefully you will get a change of meds that will help..((((())))xxLove
Barbara0
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