Rituximab not working.......
PhillyCee
Member Posts: 35
Hi Folks,
Does anybody have any suggestionsabout medication??? I'm a bit stuck at the minute and realy dont know whats left for me to try....
I started Rituximab 2 years ago and to be honest felt like poo after the first infusion. The joint pain was bad and struggled to walk because of it, I was given a 2 week course of Prednisilone and it seemed to do the trick. I had a good 5 months. The 2nd infusion was pretty similar but without the additional Prednisilone. The third infusion however, although went well, only helped me for 4 months. The 4th infusion must have helped for 2 months at best. I am back to square 1 and am in constant pain again. I will not be having any more infusions.....
If it works for you then its great, pain free and able to lead a normal life, however I did feel rough for about a week after each infusion.
I have been on Methatrexate, Leflunamide, Enbrel and various other drugs.
Not sure what the answer is now as I seem to have tried everything else. Does anybody have any ideas? Or any experience of the same issues?
Thanks
PhillyCee
Does anybody have any suggestionsabout medication??? I'm a bit stuck at the minute and realy dont know whats left for me to try....
I started Rituximab 2 years ago and to be honest felt like poo after the first infusion. The joint pain was bad and struggled to walk because of it, I was given a 2 week course of Prednisilone and it seemed to do the trick. I had a good 5 months. The 2nd infusion was pretty similar but without the additional Prednisilone. The third infusion however, although went well, only helped me for 4 months. The 4th infusion must have helped for 2 months at best. I am back to square 1 and am in constant pain again. I will not be having any more infusions.....
If it works for you then its great, pain free and able to lead a normal life, however I did feel rough for about a week after each infusion.
I have been on Methatrexate, Leflunamide, Enbrel and various other drugs.
Not sure what the answer is now as I seem to have tried everything else. Does anybody have any ideas? Or any experience of the same issues?
Thanks
PhillyCee
0
Comments
-
Sorry to hear that rituximab isn't working for you..
I was recently offered it but opted for Toxilizumab which is also a biologic therapy but it is given every 4 weeks by infusion, I'm still waiting for the benefits to last more than a couple of weeks, but it's still early days as I've on had 3 doses so far.
I hope you don't have to wait to long to start a new therapy!0
Categories
- All Categories
- 21 Welcome
- 18 How to use your online community
- 3 Help, Guidelines and Get in Touch
- 11.9K Our Community
- 9.5K Living with arthritis
- 156 Hints and Tips
- 221 Work and financial support
- 758 Chat to our Helpline Team
- 6 Want to Get Involved?
- 396 Young people's community
- 11 Parents of Children with Arthritis
- 38 My Triumphs
- 125 Let's Move
- 33 Sports and Hobbies
- 20 Food and Diet
- 373 Chit chat
- 244 Coronavirus (COVID-19)
- 32 Community Feedback and ideas