Rituximab not working.......

PhillyCee
PhillyCee Member Posts: 35
edited 8. Apr 2013, 05:49 in Living with Arthritis archive
Hi Folks,

Does anybody have any suggestionsabout medication??? I'm a bit stuck at the minute and realy dont know whats left for me to try....

I started Rituximab 2 years ago and to be honest felt like poo after the first infusion. The joint pain was bad and struggled to walk because of it, I was given a 2 week course of Prednisilone and it seemed to do the trick. I had a good 5 months. The 2nd infusion was pretty similar but without the additional Prednisilone. The third infusion however, although went well, only helped me for 4 months. The 4th infusion must have helped for 2 months at best. I am back to square 1 and am in constant pain again. I will not be having any more infusions.....

If it works for you then its great, pain free and able to lead a normal life, however I did feel rough for about a week after each infusion.

I have been on Methatrexate, Leflunamide, Enbrel and various other drugs.

Not sure what the answer is now as I seem to have tried everything else. Does anybody have any ideas? Or any experience of the same issues?

Thanks
PhillyCee

Comments

  • premierscfc04
    premierscfc04 Member Posts: 57
    edited 30. Nov -0001, 00:00
    Sorry to hear that rituximab isn't working for you..
    I was recently offered it but opted for Toxilizumab which is also a biologic therapy but it is given every 4 weeks by infusion, I'm still waiting for the benefits to last more than a couple of weeks, but it's still early days as I've on had 3 doses so far.

    I hope you don't have to wait to long to start a new therapy!

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