OH...DIDN'T SEE THAT COMING

sallyann14

well, it appears arthur isn't enough, seems an under active thyroid and vitamin d deficiency wants to stick their two pennyworth in...at this rate i am gonna RATTLE as i walk (well hobble!!) apparently the vitamin d thing is fairly common in arthur suffers, so if you are feeling even more tired than normal - (yes EVEN MORE !!) which i was, then it might be an idea to go for a blood test, this is the advice the dr told me, so i thought i would pass on the info to all you lovely guys. :?
mucho love
Sally.x

barbara12

Hello Sally
Dont you just love it... :roll: like you say all these meds really do get us down...I take vitD with my calcium tablets...apparently if you haven't enough you don't absorb the calcium....I am glad they have pick up on this for you ..and hopefully you will feel the benefit very soon xx

tkachev

I've just been reading this very topic on facebook. One lady was prescribed an intensive months course of supplements and this has helped her. She also said she felt the health shop ones weren't adequate.

I must admit to feeling constantly tired since Christmas. I am one of those that sit in the garden and read books as the sunshine does make me feel better but we didn't get much sun last year and when it did shine the Olympics were on.

Surely it can't be long before that sun starts shining again.

Elizabeth

kentishlady

Hi Sally. Thanks for that info. It's a coincidence you have mentioned that as my Son was telling me the same thing at the weekend when I saw him. He said I needed to dose up on extra vitamins to try and combat this dreadful tiredness, so have acquired some and now waiting for a miracle to happen!!!. It really gets me down and the constant pain is so wearing.

Am having a very bad day with pain and so decided to pay forum a visit to try and distract from pain level which has decided to escalate.

Hope you are having as good a day as possible. Beryl.

dreamdaisy

Apparently lack of vitamin D is one reason why these blasted colds and chest infections can hang around, not only in us but in others too. We're emerging from the shorter, darker days but the outside temperature is hardly conducive to going and sitting outside. DD

DebbieT

As I have FM as well I get my B12 & D vitamins checked at least once a year. I get CFS with all of this so the last thing I need is to feel even more bone weary tired than I already do especially as I'm an insomniac December/January time is wen I tend to get mine checked or if the fatigue seems extra bad!!

I think it's worth making part of an annual MOT

Thanks Sally.x

nearlybionic

Hi
I was diagnosed with Vit D defiency too via a blood test. I am on the off licence drug (with long german name!)taken monthly for 2 years. I did ask if they could prescribe a holiday in the Med but didn`t get one!!
I hope you feel a little better soon x
NB

lily

Hi
I too was diagnosed with vit d defiency early last year, have pro d3 and i too love to sit in the garden when the sun is out, My doc told me that as long as i get minimum 20 minutes at 10am and 20 mins at 4 pm tthat should build up the vit d as well
Good luck
Lily

bubbadog

Thank you for posting this, I know I've been feeling more fatigued than normal and I think mines due to 2 little furry monsters! But other people may be feeling more tired than normal and put it down to arthur making them feel like that. I hope others read the post and go and get blood tests and find out if they have under active thyroid glands or vitamin D deficiency. Hope you feel some benefit soon, take care.

Steph88

Hi,

I have an under active thyroid too. Thought it was just the arthritis but when I physically couldn't stay awake at uni I thought it had to be something more.
Because I'm on the thyroxine for life, I get a medical exemption card so I now don't have to pay for any of my arthritis meds as well. Every cloud has a silver lining!
I may rattle but now it doesn't cost me loads in prescription charges!

Thought I would share in case you didn't know

daffy2

I too am on the VitD voyage of discovery, through trying to find a way forward from a bad OP diagnosis.Having got a test done(as a result of seeing a different GP I think) and then sorted out supplements the next hurdle was how to get follow up tests to find out if it was working, as my own GP refused to repeat the first one on the grounds of cost and said it wasn't necessary anyway. Thanks to a combination of internet searching and the NOS helpline nurses I was able to suggest a suitable test to the GP - him with the(?)7 years training, a computer in front of him, and dealing with a common condition grrrr!
The good news is that the supplements have improved the muscle pain I had been suffering in addition to the usual OA stabs and twangs, and I feel quite a bit better in myself.

lizzy100

having one autoimmune disease makes you more likely to get other autoimmune diseases unfortunately. I kind of have 2.

dizzylizzy13

If you go onto you tube and check out Michael Holick he is the worlds leading expert in Vitamin D and gives lots of advise and lectures on Vitamin D. My twin sister was diagnosed with severe vitamin d deficiency and the hospital consultant put her on Vitamin D (think it was 800 units daily with calcium). This is what is available on the NHS but it is not enough. Having discovered Michael Holick I found an email link to him and emailed him and to our surprise he responded saying that she was being under treated and needed to be on 10,000 units per week for several weeks etc. She told her consultant this information and gave him all Holicks contact details should he need to verify this. The consultant referred to 'vitamin d enthusiasts' and said this is the way we treat deficiency under the NHS and to carry on taking what he prescribed. A few years down the line the consultant she saw has written a piece on vitamin D deficiency on the internet and for treating severe vitamin D deficiency (which my sister had) it needs to be treated with 10,000 units per week for several weeks etc EXACTLY as we had told him previously. It also says that under the NHS 800 IU is all that can be prescribed and the advise it to buy 5,000 or 10,000 units from health shops etc for severe deficiency and 1,000 to 2,000 units if you are not deficient, just to stay healthy. Watch the videos on you tube from Holick, they are very informative. I had mine tested years ago and it came back just over the accepted reference range and this was thought at the time to be adequate, but docs now know different and can be linked to other serious diseases. I was tested several years ago and last year I developed early breast cancer (as well as arthritis) - go figure! I am now on Vitamin D.