Stamina.

dreamdaisy

I know what it is, and I used to have it, but it's long gone. I can manage the arthritis, I can cope with the pain, but the complete and utter lack of stamina is irksome. I suppose it's the debilitating result of the combination of the disease, pain and the drugs but I do miss that feeling of knowing that I can do what I want, when I want and for how long I want.

We are going out tonight with friends and to that end I have ironed a frock and had a shower. Collapse of stout party. :roll: I can at least claim I am watching the tennis from Eastbourne as the reason for being on the sofa but when that ends, what then? No matter, this is part of life with arthritis, the-not-having-what-you-want and not-being-able-to -do what you want. Hey-ho. DD

stickywicket

I don't remember stamina. It sounds like fun I do know what friendship's like though and no way can arthritis take the good ones from us - it can only sift out the lukewarm and/or bad. Enjoy your evening and enjoy being with your friends even if the 'stout party' does collapse later

kentishlady

Have a good time DD. I've forgotten what stamina is too. If you find it, please let me know! You've got another good excuse for sofa use for next 2 weeks - Wimbledon starts on Monday Beryl

barbara12

I think we should all go out partying... can you just imagine us all....the conga....all leaning on one another...or do they not do the conga now...shows how long its been...I am tired thinking about it... :roll:

salamander

Hi DD, I so know what you mean. It's one of the hardest things to deal with for me too. I've watched a lot of tennis lately. Good job I like it but I don't always want to spend the day on the sofa.

Hope you enjoy your evening!

LignumVitae

I decided stamina was over-rated. I prefer a short burst of wonderfulness instead and I bet you can do that DD. have a magic time

suzygirl

I remember stamina! Those were the days. I hope you enjoy your evening, we all need time with friends

Rest up tomorrow, I am sure the changeable weather isn't helping anything.

ruby2

Thought I was doing well on the stamina front (well for me that is)..
Having backed out twice from going to concerts (just in case I got too tired) I pushed myself to go and see Robbie Williams this week...daughter and friends in tow I set out at 1.30 p.m....socialised till 6.00 p.m. went to get my standing place and stood for 5 hours craning my neck.... (ouch ouch ouch...don't spoil it for the others ) Don't get me wrong I absolutely loved it... The lack of traffic control meant it took me 3 and a half hours to make a 35 minute journey home....result No energy no life for the past 4 days..and continuing
STAMINA I miss you!....... But Robbie you were worth it! I have spent the past few years protecting myself from exhaustion, but sometimes you have to go and enjoy life and pay back later...don't let it beat you every time..give it a kick back every now and then.

mig

Hope you have a good evening DD and Mr DD. Mig

jacqmun

Wow!! DD... You must be a mind reader!?!?!.. I was only saying to a friend of mine this week that I can cope with the pain and the 'pay back' if I do over do it...but this cursed fatigue is the pits!!!!!
Surely there is a drug out there that can help?!?! I am not too old or 'blinkered' to know that there's the illegal drug, namely Whizz or Speed... whatever, is there not a legal prescription drug that could deal with this??? I am so fed up of looking at things that need doing and thinking 'later'. This is not how I am, this is not me!!!!!!!!!!!!!!!!!!!!
I could cry!!
Jacqui x

applerose

Hope you managed to have a good evening DD, despite the fatigue.

stickywicket

ruby2 wrote:

I set out at 1.30 p.m....socialised till 6.00 p.m. went to get my standing place and stood for 5 hours craning my neck.... (ouch ouch ouch...don't spoil it for the others ) Don't get me wrong I absolutely loved it... The lack of traffic control meant it took me 3 and a half hours to make a 35 minute journey home....result No energy no life for the past 4 days..and continuing
STAMINA I miss you!.

Bless you, Ruby2! I know we're all different and I know this isn't a competition but I think I probably last stood for 5 hours in 1960, the year before my RA was diagnosed. I can't imagine what it feels like but I'm very glad you enjoyed the concert and feel it was worthwhile. It's important to keep accepting the challenges.

lily

Morning

Oh I so remember stamina but mine got up and left..Once upon a time I did 2 jobs(fulltime and parttime) and managed to bring up 5 kids on my own now........well I cannot even mind a grandchild on my own anymore.

Im always hopeful that stamina will miss me so much that it will come back

Take care
Lily x

stickywicket

Unsure wrote:

Stamina, noun:
Physical or moral strength to resist or withstand illness, fatigue, or hardship; endurance.

Actually, under that definition, I think we all have stamina in abundance. We resist and withstand the disease (and sometimes the meds too :roll: ) every day.

So, well done everyone! We might not have strength but we do have stamina

mazbaz

Stamina what a word! Yes I used to have this in abundance, I could leave most people my age (50's) standing a few years ago. I used to do a part time stressfull reception job and 20 hours self employed domestic cleaning every week! And go out Saturday nights til the early hours............
They were the days!

As for concerts, heres a little tip... I really wanted to go to see Keane in concert but I knew I couldnt stand up for hours on end so I borrowed a wheel chair for it. I booked a ticket for the disabled area and my OH came free as my carer!
It felt a little weird being sat in the chair all night but we had a great view and thouroughly enjoyed the night and I wasnt particularly exhausted afterwards.
Theres ways round some things if you really want to do it! xxx

dreamdaisy

We had a very good evening, 'im indoors and me got there early, we ordered a bokkle of champers and, when our guests arrived we all got stuck in. Three hours later we walked back to our friends' house and ended up staying the night as it was nigh on impossible to get a taxi. I was planning on going into town today but, as I can barely move, I've decided against. Damn, damn, damn.

I think that every day is an endurance test, we are repeatedly challenged by the easy and mundane tasks of life and we overcome those challenges. What is so frustrating is the impact on the rest of our lives when the effect of those challenges comes to pass. DD

Numptydumpty

DD, I think the important thing is, you still face those challenges, and for the most part, come out on top, even if the payback makes you wonder if it's all worth it!
I'm pleased you had a good evening, and hope the payback isn't too long lived.
You posted earlier, on Sticky' s thread, about her positive attitude towards not being thwarted. That is true, it's also true of you.
Numpty

applerose

I think you are so right there Sticky.

Glad you enjoyed your evening DD. I think Numpty is right. You do find ways round what you want to do. I think that is what Unsure's definition of stamina for us is all about.

dreamdaisy

It was a special treat - they are celebrating their silver wedding anniversary and this was our 'thank you' for their wonderful kindness towards us over the years - exemplified by their offering us a bed (albeit two floors up with nastier stairs than ours!)

It's easy to find the will to do what we want to do but far harder when it's stuff we don't. :roll: DD

hileena111

Hi DD
I'm so glad you enjoyed your evening/night out.
I bet it was worth the payback really
Forgetting about arthritis and all the other rubbish....you've had a pretty awful few months of it
You'll bounce back ..if I know DD
Take care pet
Love
Hileena

dreamdaisy

I'm 'bouncing' with Roger Federer (oh, if only ). DD

kentishlady

Oh DD, what are you trying to do now, get yourself on Centre Court? Let me know if you do and I'll come and join you.

Glad you had a good weekend. It's the 'payback' afterwards that is so rough isn't it.

Take care. Beryl