Hi everyone, just want to vent really as I feel I can't anywhere else.
Im 24, I was diagnosed with 'undifferentiated' RA five years ago and I'm still trying to find a treatment that works. I also have hypothyroidism, diagnosed when I was 12 and Raynaud's phenomenon which I've had for 6 years.
My blood tests show a rheumatoid factor but all the other things are negative so I'm apparently not a typical RA patient. I don't really understand completely but my grasp of it is I don't fit I to a box, I have a combination of things, some unknown, so I'm told treatment is difficult.
I've been on steroids (oral and injection) hydroxichloroquin, methotrexate, nefedipine and the most recent one of mycophenolate, none of which have done anything AT ALL except make me miserable with side effects - bad stomach upsets to the point where I can hardly eat anything, feeling/being sick, headaches etc etc
I'm so stressed at the moment, Im so tired all the time but can't sleep, I sometimes can't feed myself because my hands and wrists hurt so much,my food gets cut up for me like a bloody child. My knees and ankles are constantly swollen and painful to the point where I can't even sit comfortably let alone walk.
On top of all that I keep having arguments with my partner, she is really caring and she loves me I just still feel like she doesn't completely understand, I feel like no-one does.
I'm due to start Rituximab (MabThera) in a week which I'm really nervous about. I just wanted someone out there to say its all going to be ok. Im usually an upbeat positive person, my motto is 'things can always be worse' but Im just struggling to keep my positive face on. I just needed to vent I guess. Would like to know that I'm eventually going to be able to actually live my life and everything is going to be ok.
Sorry I've gone on a bit.
Just feeling a bit poo...