PIP - Psoriatic arthritis

BeyondTheLimits

Hi

I've been struggling with PsA for the last year since I was diagnosed, my husband works full time shifts and is really struggling with looking after me and our two toddlers.

So I have finally gotten round to applying for a PIP so I can hopefully benefit from any other help that is available (community support seems to be dependant on you receiving the PIP here?) Am seriously worried about being turned down, have heard nothing but bad things about it since it changed from DLA

My health is awful, struggling so much just looking after the kids and getting stuff done. In that I dont get anything done apart from the most basic care of them.

Why is it so hard to find put what help I can get, never mind to actually get it?

DebbieT

Hi,

I really am sorry ure struggling so much I have PsA, OA & Fibromyalgia.

I still get DLA until they decide to change me to PIP. I renewed this year & got a 5 year award of highest care & mobility. I had to fight to get my care award changed from lowest, I previously had it at that rate for 5 yrs with highest mobility. It took me months, they offered to keep my award the same but to make it indefinite ... It was tempting but I knew my care needs had far surpassed lowest rate & with reports from my GP, Dermatologist & Rheumatologist I requested that they looked at it again. It took a week to receive their decision.

I'd suggest asking for help from Citizens Advice Bureau. Also getting reports from ure consultants will help loads.

I really hope you get some help!! ((((hugs)))) x

stickywicket

I don't know anything about PIPs but I do remember a lot about looking after small children while having arthritis. It's tough. All you can do is divide tasks into essential and non-essential. You'll find the 'non-essential' increases rapidly while the 'essential dwindles to feeding, clothing and dealing with illnesses. It does get better as they become more independent. Honest

barbara12

Hello
Sorry I wont be much help, but just to say that quite a few people have got it after appealing so try not to worry...I do wish you well with it all, and please let us know how you get on x