Arthritis Sufferers article from the Telegraph

Penny49

Hi, I don't want to spread more doom and gloom for us Arthritis sufferers but my daughter sent me the link below as a point of interest.

The reason this is relevant to her is that she was diagnosed with a leg DVT in April at the age of 37 and is on treatment until October, then they are going to investigate the cause because she doesn't fit into any of the general categories for someone of her age with DVT. She was only saying to me yesterday how both her legs are stiff when she gets out of bed in the mornings and have been for sometime and was wondering if she has the start of RA. She has an apt with the gp on Wednesday to discuss it.

Take care - Penny x

http://www.telegraph.co.uk/health/healthnews/10228066/Arthritis-sufferers-have-far-greater-risk-of-blood-clots-study-finds.html

trepolpen

same story was in the Daily Express this week , they said its people with Rheumatiod Arthritis that maybe affected , there is several of us on here with RA that had it a very long time so dont worry to much

phoenixoxo

Hi Penny,

I hope your daughter's appointment is useful

As for the article, yes, it's a bit doom and gloom, isn't it? I don't have RA, but I do have PsA, another auto-immune type of arthritis causing inflammation. Unfortunately my joints are a bit swollen at the moment as I'm between care plans, but I take the view that it's possible to keep reasonably healthy regardless, just eating sensibly, not smoking, carrying on with the physio programme... the usual sort of thing!

Best wishes,
Phee

Penny49

Hi Phee

Yes I hope they can put her mind at rest.

I am still un-diagnoised, prob got at least 10 weeks before I will know for sure.

Sorry to hear you are in some discomfort at the moment, like you said we need to eat sensibly and keep moving! Some days that is easier said than done though.

Take care & thank you for your message.

Penny

phoenixoxo

You're welcome, Penny

I'm sorry you're still undiagnosed, as I know how frustrating that can feel. Are you waiting for test results? Some things take ages :roll:

Hope you've had a reasonable day,
Phee

Penny49

Hi again Phee

I had x-rays and blood tests done Thursday last week, but unfortunately I couldn't get my ultrasound done on the same day so I am waiting for them to send me an appointment, which I was told could me about 5 weeks. When I've had that done I have to let the Rheumy dept know and then they will call me back to discuss the results.

One thing which I didn't mention to the consultant last week was that I sometimes get a little out of breath, and that's when I am not exerting myself. I am not gasping for breath or anything, it just feels a bit like fast breathing. So when I go back I will mention it, the trouble was I felt a bit rushed last week so forgot to mention it.

I am retired so don't have to go to work, so I just potter around doing chores cooking meals and sitting down in between as I get tired easily.

Hope your weekend and today was good, it looks like the weather is going to be good this week?

Take care
Penny x

Starburst

Did anyone read the comments underneath? Apparently, weed not only cures RA and blood clots but actually prevents them in the first place!

trepolpen

Starburst wrote:

Did anyone read the comments underneath? Apparently, weed not only cures RA and blood clots but actually prevents them in the first place!

read so many cures for RA , if only one would work it would be brilliant

phoenixoxo

Penny49 wrote:

Hi again Phee

I had x-rays and blood tests done Thursday last week, but unfortunately I couldn't get my ultrasound done on the same day so I am waiting for them to send me an appointment, which I was told could me about 5 weeks. When I've had that done I have to let the Rheumy dept know and then they will call me back to discuss the results.

One thing which I didn't mention to the consultant last week was that I sometimes get a little out of breath, and that's when I am not exerting myself. I am not gasping for breath or anything, it just feels a bit like fast breathing. So when I go back I will mention it, the trouble was I felt a bit rushed last week so forgot to mention it.

I am retired so don't have to go to work, so I just potter around doing chores cooking meals and sitting down in between as I get tired easily.

Hope your weekend and today was good, it looks like the weather is going to be good this week?

Take care
Penny x

Hi again Penny,

Yes, it can take a while for ultrasound appointments to come through. I think I waited about a month or so for one back in January.

That's a good idea, to mention the fast breathing to your consultant, or to your GP, if you're worried about it in the meantime. These days I make a list of everything to take into appointments, otherwise things just go out of my head! And it doesn't help if you’re feeling a bit rushed, of course.

Pottering around sounds great! I'm self-employed and it's a bit stressful at the moment. I'm having a bit of a flare and I've become a bit anaemic lately. I keep drifting off to sleep, then waking up in a panic, worrying about meeting my deadlines! But my mum came to see me today and we had a nice chat in the garden, so I feel a bit better for some fresh air and I'm sure I'll sleep well tonight. Off to bed earlier than usual, I think... zzz...

Hope you've had a good day,
Phee

phoenixoxo

Starburst wrote:

Did anyone read the comments underneath? Apparently, weed not only cures RA and blood clots but actually prevents them in the first place!

indeed!

I'll check this out tomorrow

phoenixoxo

*reads Telegraph comments*

Looks like folks just messin'!

* * *
Penny, was it today your daughter saw her GP? I hope it went okay

Best wishes,
Phee

Penny49

Hi Phee

That's good of you to ask

The doctor didn't seem concerned about her DVT leg pain, she said that it's normal to feel pain during treatment as it is breaking down the clot.

The stiffness in her legs in the morning the Dr isn't sure about but thinks it might be due to her walking differently when her leg was bad back at the beginning, which had an impact on them, also my daughter has been going to the gym which might also have affected them, she suggested that she does stretching exercises. They might even do any x-ray when the treatment has finished.

She is feeling much happier now, and is also going on holiday Friday so that will help take her mind off things.

I hope all is well with you (as much as possible that is)

Thanks for remembering

Best wishes
Penny x

lizzieuk1

Ah they just continue to spread the joy don't they!
Interesting article esp the comment ra may cause carpal tunnel well I think that would be the least of my worries!! Burning stabbing pain in virtually every joint would've been a little more descriptive!
I think at a 1% risk I won't be loosing sleep over it prob many more risky things out there

lizzieuk1

Starburst wrote:

Did anyone read the comments underneath? Apparently, weed not only cures RA and blood clots but actually prevents them in the first place!

Ha just read them just highlights how misinformed people r with a comment like 'I have a little in my fingers but fish oil sorts it' errr I think its oa my love d'oh.
As for weed well it 'might' stop it but hey why not fry your brain to stop ra developing or maybe ur just totally unaware u r in pain!!!! Idiots blah.

Sorry rant over

Penny49

Hi Lizzieuk

Very funny comments, so true!

Penny

phoenixoxo

Penny49 wrote:

Hi Phee

That's good of you to ask

The doctor didn't seem concerned about her DVT leg pain, she said that it's normal to feel pain during treatment as it is breaking down the clot.

The stiffness in her legs in the morning the Dr isn't sure about but thinks it might be due to her walking differently when her leg was bad back at the beginning, which had an impact on them, also my daughter has been going to the gym which might also have affected them, she suggested that she does stretching exercises. They might even do any x-ray when the treatment has finished.

She is feeling much happier now, and is also going on holiday Friday so that will help take her mind off things.

I hope all is well with you (as much as possible that is)

Thanks for remembering

Best wishes
Penny x

Hi Penny,

Well, it's good of you to take time to provide an update!

I'm pleased the appointment with her doc has helped to put your daughter's mind at rest and I hope she has a wonderful holiday. I took time off this afternoon for a family visit, back in the garden again, clearing my head! I hope you've had a good day too

Best wishes,
Phee