Could I really be this unlucky?

189101113

Comments

  • thistlegirl
    thistlegirl Member Posts: 229
    edited 30. Nov -1, 00:00
    I have been staying with my parents the past few days for some respite and I am back home now.
    It has been very helpful having my meals made for me etc but I haven't appreciated being back to a house with stairs, happy to be back in my wee flat.
    My mum pointed out that I was moving stiffly compared to last week and asked when I can get back on my meds, I knew I was getting worse but I guess she can see the change more than me.
    We are all so good at just getting on with things that it sometimes takes a person on the outside to set us straight.."you couldn't go back to work like this, what do we need to do to get the meds started?"
    I am going to do what my mum tells me to (for once) I am at the GP in the morning, I doubt she will be able to do anything without talking to the consultants but hopefully she can get the ball rolling. I won't be able to get anything til after I get my test results but I am thinking some steroid injections in my shoulders would be really nice-trouble getting dressed in the morning is not fun :(

    Oh and I got official notice that my full sick pay is over at the end of Feb, nothing better than trying to get healthy on a deadline :?

    Another ramble today but feel I am gaining problems instead of solving them, and I don't like it!

    Jenny
  • thistlegirl
    thistlegirl Member Posts: 229
    edited 30. Nov -1, 00:00
    Tomorrow I am at the hospital and I finally find out if I the cancer is gone. I have been quietly been going crazy these past few weeks, I just want to know if I can get on with my life.
    I honestly am at the stage that I don't care if I need chemo or not, I am just done with being in limbo.

    If anyone has time tomorrow to be in my pocket it would be appreciated.

    Thanks

    Jenny
  • ouchpotato
    ouchpotato Member Posts: 453
    edited 30. Nov -1, 00:00
    Jenny, even if I was busy I would drop it to be in your pocket with you tomorrow. What time is your apt? I will be thinking of you

    x
  • Lubs
    Lubs Member Posts: 155
    edited 30. Nov -1, 00:00
    Hi Jenny,

    I will be in school, but would happily drop that to be in your pocket tomorrow! Especially the year 10 class where I'm supposed to be completing some sort of GCSE Assessed Chemistry Practical!

    Hope it is all good! Will be thinking of you ()

    Lubs x
  • Megrose489
    Megrose489 Member Posts: 782
    edited 30. Nov -1, 00:00
    I'll be thinking about you too, Jenny. ((())) Everything crossed that it's good news.

    Meg
  • phoenixoxo
    phoenixoxo Member Posts: 625
    edited 30. Nov -1, 00:00
    Jenny, I've always time for pocket duties :)

    With very best wishes,
    Phee
    PsA (psoriatic arthritis) and other things since 1990. Happy to help when I can :-)
  • petals
    petals Member Posts: 217
    edited 30. Nov -1, 00:00
    Got everything crossed for you, fingers, legs, eyes, good luck for tomorrow you really deserve good news.

    Love Petals x
  • thistlegirl
    thistlegirl Member Posts: 229
    edited 30. Nov -1, 00:00
    Thanks guys, my appointment is at 10am tomorrow. I have visions of x factor results show:

    And the result of your PET scan is. ....it was a close one. .........the scan showed ....da da da dum!!!!

    not been sleeping well this week, think I will put on bbc pride & prejudice and hopefully sleep on the couch :roll:

    Jenny

    edited by Mod YEH no spaces so it thought it was all one word! I've edited out dots and put in a couple of spaces :P
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I'm in, Jenny. I'll be thinking of you very much and sending lots of positive vibes.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • thistlegirl
    thistlegirl Member Posts: 229
    edited 30. Nov -1, 00:00
    keeping with the x factor theme we will find out the results after this short break.
    basically the doc said the scan looked clear but there was a question raised about one of the lump sites so they are going to discuss me this afternoon at there board meeting- get second opinions.
    He is going to call me tonight or tomorrow with the results.

    I still feel in limbo and very grumpy again.

    Jenny
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hello Jenny
    Gosh you have so much to contend with, and now you have to wait for a phone call...I really hope the news is good...sending you positive hugs and love..will be thinking about you..(((()))xx
    Love
    Barbara
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    Oh string vests! (As a friend used to say when in polite circles :wink: ) Will the tension never end? We'll sit it out with you, Jenny. Fancy a brew?
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • Megrose489
    Megrose489 Member Posts: 782
    edited 30. Nov -1, 00:00
    Waiting is dreadful - I really feel for you. I do hope that the news is good when you get that phone call. Thinking about you. ((()))

    Meg
  • petals
    petals Member Posts: 217
    edited 30. Nov -1, 00:00
    Hang in there, the waiting is nearly over.

    Positive thoughts coming your way.

    Love Petals x
  • thistlegirl
    thistlegirl Member Posts: 229
    edited 30. Nov -1, 00:00
    I am officially in remission :D:D:D
  • Megrose489
    Megrose489 Member Posts: 782
    edited 30. Nov -1, 00:00
    And breathe! That's just wonderful, Jenny. So, so pleased.

    Meg
  • phoenixoxo
    phoenixoxo Member Posts: 625
    edited 30. Nov -1, 00:00
    YAY! I'm so happy for you, Jenny :D

    Best wishes,
    Phee
    PsA (psoriatic arthritis) and other things since 1990. Happy to help when I can :-)
  • kentishlady
    kentishlady Member Posts: 809
    edited 30. Nov -1, 00:00
    That's great news Jenny. Sleep well tonight. Beryl. (((())))
  • petals
    petals Member Posts: 217
    edited 30. Nov -1, 00:00
    Brilliant, just brilliant x
  • ouchpotato
    ouchpotato Member Posts: 453
    edited 30. Nov -1, 00:00
    oh Jenny that is fantastic news!!! I am so happy for you! That has given me a real lift.

    Hope you sleep really well tonight.

    x
  • dibdab
    dibdab Member Posts: 1,498
    edited 30. Nov -1, 00:00
    Wow. That's awesome news and I am so pleased for you! Sleep well and thank you for sharing your joy, I'm sitting in bed catching up with posts and now have a huge smile on my face.
    Deb xxxxx
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    :D:D:D:D:D:D

    Well done!
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • thistlegirl
    thistlegirl Member Posts: 229
    edited 30. Nov -1, 00:00
    Miracles do happen, I thought I had used up all of my luck getting into remission but apparently I had a little left.
    I called my rhumy's secretary to say that i was struggling without meds now that Arthur is deciding to flare. Could I have steroid injections or medications that she thinks necessary. The secretary said she would email the doctor as she is at another hospital until Wednesday and she would get back to me then.
    I got a call back a couple of hours later "dr wants to see you this Thursday morning, she says we have lots to discuss" you could have knocked me down with a feather :shock: It is tough to get your 6 month check up within 7 months let alone see the doc within the week!
    Hopefully I have some luck left to get some relief for my shoulders and hands on Thursday?

    Jenny
  • dibdab
    dibdab Member Posts: 1,498
    edited 30. Nov -1, 00:00
    Hope it's a good appointment Jenny, your kind of positive news is what we all need to hear.

    Deb x
  • phoenixoxo
    phoenixoxo Member Posts: 625
    edited 30. Nov -1, 00:00
    Good luck with your appointment, Jenny. I'm happy to report for pocket duties if required! :)

    Best wishes,
    Phee
    PsA (psoriatic arthritis) and other things since 1990. Happy to help when I can :-)