what do you think DAMARD,S OR BIOS.

mike26
mike26 Member Posts: 416
edited 6. Sep 2013, 09:12 in Community Chit-chat archive
hi all
im not to sure!
im going to see my roomy in a few weeks about my PsA,
im on my 3rd damard and im probably as stable with the condition
as possable(BUT WHO KNOWS :?: )
my question is what do i do go on to the bios or stay on the methotrexate & lefiunomide damard,s.
not sure what to do the bios are very expensive £10 to £12 thousand
pounds for the year i think.
:? :? mike26...

Comments

  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I don't think you will be the one making the choice, Mike; you can always ask but be prepared to be turned down. Your rheumatologist will take a good look at the over-all picture and he or she will make the decision. I was put onto them because the DMARDs were not having a significant effect on my inflammation levels, the first two weren't much cop on that front but the third one has done the trick, albeit it too late for any true benefit to be felt. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I agree with DD, Mike. I don't think it will be your choice. The consultants usually decide these matters. If your disease is under control I doubt the biologics will be offered. However, if your rheumatologist thinks you need them don't worry about cost. That's the great thing about the NHS. We should never take it for granted but it's wonderful to have it when we really need it.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • frogmorton
    frogmorton Member Posts: 29,826
    edited 30. Nov -1, 00:00
    Hi Mike

    I hope all goes well at the rheumy's

    If asked I would be of the opinion that, (for me), I would want to stay on the least possible meds for as long as possible so that I have something up my sleeve for the future.

    Unless of course it was absolutely necessary. Then I would try whatever I was advised.

    Love

    Toni xx
  • mike26
    mike26 Member Posts: 416
    edited 30. Nov -1, 00:00
    thanks all
    dd yes see what u mean , my inflamation levels are still high
    (not as high as thay were)

    stickywicket yes see what u mean,thay will know more than me.
    but my condition has got better than it was :?:

    frogmorton i think your opinion sounds good,
    I will have talk with them try to lower dosage of meds.
    thankyou all for your help.
    it must be difficult to get on the wright medication for everybody.
    mike26 :? :x :?
  • frogmorton
    frogmorton Member Posts: 29,826
    edited 30. Nov -1, 00:00
    When is it you go Mike?

    I didn't mean necessarily to lower your dosage - rather to keep the biologics up your sleeve incase the DMARDs don't work in future.

    It's good that you are thinking about it ready for your appointment with the rheumy. He/she is the expert and together you can decide what's next.

    Take care

    Toni xx
  • numptynora
    numptynora Member Posts: 782
    edited 30. Nov -1, 00:00
    I agree with everyone else too, my meds have been reduced since I went on the biologic one and I'm still stable'ish

    good luck
    Numps x
    Pets come into our lives, and then leave paw-prints on our hearts.
  • mike26
    mike26 Member Posts: 416
    edited 30. Nov -1, 00:00
    hi all
    yes frogmorton i go in a few weeks time, i like your idea
    that if stable at moment whats the point of and not knowing if bios will
    be any better :?:
    after all i do feal better than i was i think it changed when i started taking
    injections,from tabs.
    but i do want to drop steroid dosage down daily,and i want to drop
    lefiunmide down daily..
    i think numptynora ill try and keep bios in reserve ,my body does feel somewhat better than it was(well most of the time) :?
    thanks for that mike26 :roll: :? :roll:

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