Some hope after today's appt

KateP
KateP Member Posts: 19
edited 15. Sep 2013, 10:07 in Living with Arthritis archive
Well fingers crossed I may be getting somewhere, saw a different rheumy today after my GP asked for a second opinion. he seemed a bit surprised that my medication hadn't been addressed before now. he wants to start me on something called solsomazaoine ??L I think it sounded like that anyway. He agrees that we need to adress the inflamation rather than keep operating, had the usual quota of blod tests and he has requested all the reports on my previous mri scans and X-rays . I hope he prescribes something next week so I can start having some sort of life again. has anyone heard of this tablet and do you know if it works ???? Xxx

Comments

  • elnafinn
    elnafinn Member Posts: 7,412
    edited 30. Nov -1, 00:00
    Hi Kate

    Was it this drug?

    http://www.patient.co.uk/medicine/sulfasalazine

    So pleased to hear that you are being looked after properly now.

    I do not have RA so have never been prescribed this drug.

    Look after yourself,

    Elna x
    The happiest people don't have the best of everything. They just make the best of everything.

    If you can lay down at night knowing in your heart that you made someone's day just a little bit better, you know you had a good day.
  • hileena111
    hileena111 Member Posts: 7,099
    edited 30. Nov -1, 00:00
    Hi
    I don't know anything about that drug {got OA} but that sounds a very positive appointment

    Love
    Hileena
  • dreamdaisy
    dreamdaisy Member Posts: 31,520
    edited 30. Nov -1, 00:00
    I was put onto sulphasalazine as my first med back in 2002. It didn't help the inflammation at all but I have a friend who also has the same kind of arthritis as me and his is controlled by sulph alone. Let's hope you end up like him not me! I wish you well. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hi Kate
    Sorry I dont know anything about the meds, but it sounds like a good appointment, sometime all we need if for our GPs to listen and try to help
    Please let us know how you get on x
    Love
    Barbara
  • stickywicket
    stickywicket Member Posts: 27,764
    edited 30. Nov -1, 00:00
    I do hope it works for you.
    If at first you don't succeed, then skydiving definitely isn't for you.
    Steven Wright
  • Toots
    Toots Member Posts: 483
    edited 30. Nov -1, 00:00
    Hi Kate

    Glad to hear you're making some progress with your new rheumy.

    My doc started me on Sulfasalzine 3 weeks ago, so I'm new to this too. This drug has to be built up in your system, so you're likely to find that you will start on one tablet per day for a week, then onto one morning and evening for a week, next week 3 tabs etc. You must have regular blood tests done to make sure these meds aren't messing with you in a bad way, so make sure you've got that planned whether it be with rheumy or your gp. I've been fine with taking them, although when I up my dose I feel a bit flu-like. I'm now on 3 tablets per day with my next increase due Thursday. I'll be honest, the last couple of days I've felt pretty crappy with a good dose of nausea too, but it's manageable and doesn't mean you'll feel like that.

    From what I can gather, there is no quick fix - the official word on this drug is that you probably won't feel any benefit until at least 12 weeks in - and even then it may take further months to figure if it'll work or not. Trial and error apparently.

    Hope this helps, good luck! x
    Toots x
  • bubbadog
    bubbadog Member Posts: 5,544
    edited 30. Nov -1, 00:00
    Hi Kate, glad you are making positive progress with your new Rhummey. Hope the Sulfasalzine will help you and make things easier. Keep us informed how you get on with it.
  • Kittkat
    Kittkat Member Posts: 309
    edited 30. Nov -1, 00:00
    Hello
    Im not on this but I hope it helps you
    Kat x
    How am I gonna be an optimist about this?
  • mike26
    mike26 Member Posts: 416
    edited 30. Nov -1, 00:00
    hi KateP
    hope the sulfasalazine works for you.
    it didnt work for me 4 weeks in and doctor told me
    to stop.(lowerd my white blood cell count)
    take regular blood tests.
    mike26 :roll:
  • barbara12
    barbara12 Member Posts: 21,281
    edited 30. Nov -1, 00:00
    Hello Kate just wondering if you have started the meds and are they helping...x
    Love
    Barbara

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