Does anyone know ......

kentishlady

Hi all. Does anyone know how May is getting on? I often think about her. Any news will be welcome.

Beryl

barbara12

Hi Beryl sorry I cant help...I am another one that is worried...xx

villier

Was just thinking about her yesterday xx

hileena111

Hi
Don't know about May...I have wondered and debated about going to see her but decided against it and I cant get in touch with her


Love
Hileena

maria09

Hi
No I haven't heard anything for awhile
I hope she's doing ok
Maria

Starburst

Another one just checking in on May. Hope you're hanging in there, May! x

stickywicket

I, too, have been wondering. I've not heard anything.

kellerman

I'm here.....I have actually got as far as signing in once only for John to do a walkabout and panic set in.
I seem to have spent nearly all of August and this month between 2 different hospitals for appointments for both of us.Might explain why I'm exhausted.
First I'll start with John. What happened to the lovely man I married so many years ago? This is no longer my husband......swearing under his breath...temper tantrams like a two year old. I know I know oh so well how frustrated he must be not to be able to see much and having to rely on me but to lose his temper with people with people that are trying to help like the lady I pay to come in and help him have a shower and even go as far as to tell her to get out of his house doesn't help anyone.
He can have his eyes tested mid October when he actually thinks a miracle is going to happen. Its not......
His specialist has even said its highly unlikely but he won't accept this.Goodness knows what will happen when he meets reallity.
Now me. Official AS. I seem to have spent hours having scans for one thing and another. Blood tests too. The good news on the big C front is the useless onco is leaving at Christmas and I now officially have the lady one. I'm just being kept an eye on for the time being. The effects of the last chemo have't complely gone as my back is still peeling.
My pain...mainly back but hip and both knees not far behind. Stress levels are at a all time high so I'm taking anti deps on a regular basis now.
I thank you all for your concern.....Please don't worry although its wonderful that you are thinking of me.
I promise I will get back to you all as soon as I can.Please take care you wonderful people....Better go I'll be crying in a minute. Love to you all May xx

hileena111

Oh may
It's great to hear from you
I'm so sorry about John and how frustrated he is and what you have to put up with {although it is understandable}
We all know how stress affects our arthritis
At least he onco is leaving ...that's good and the big C seems to be oK at the minute
As for your arthritis.....well there will be others on to give advice.
Love
Hileena

phoenixoxo

Hello May,

I'm sorry things are so difficult for you. I can only echo Hileena's kind words, together with lots of gentle hugs.

Best wishes,
Phee

dibdab

Oh May, we do miss you, but you know we're here when you need to unload-absolutely no pressure to sign in otherwise.

I'm so sad to here how you're husband is struggling, and it's so difficult when you can't help those you love to cope with life as it is.

Just sending positive thoughts, loads of care and gentle hugs {{{{{ }}}}.

Deb x

Toots

Just wanted to add my hugs for you both, May - I'm new here but your reputation as someone much loved on this forum precedes you, so I wanted to add my support xxx

stickywicket

I don't know where you get your inner strength from, May. You somehow manage to keep all the balls in the air though anyone else would have dropped the lot ages ago. OK, I would have dropped the lot ages ago.

I've no idea which is the most difficult right now but, on a purely emotional level, it must be so unbearably tough seeing John as he is. It must also be so tough for him, more so, I guess, because he's a bloke and has had to switch so suddenly from caring husband to being cared for.

I have no words of wisdom. I can only, once again, send my admiration and some (((())))

villier

Just want to send you some (((()))) I don't know where you get the strength from you truly are one inspirational woman...............Marie xx

mig

(((()))) Mig

kentishlady

Hello May. It was lovely to hear from you but am so sorry you are having such a tough time. It is obviously frustrating for John but equally so for you having, as you say, 'lost the man you married'. I do so hope you are getting all the help you possibly can.

Please don't worry about posting on here, just pop in whenever you want to or feel able to. We all understand how difficult things are for you. Do take care of yourself and rest whenever you get a chance.

Am sending a few ((((())))) to help you along just a little.

Beryl. xx

dreamdaisy

Oh my darling girl, just how tough can things get? I can understand his distress and I am not surprised that he is lashing out - I think I would be too in his position. I'm sure that your John is still in there somewhere but finding him again will take some time. All the understanding in the world does not help you in the slightest ('cos it's not practical assistance) so keep up with the anti-deps, they are a useful weapon in the fight. And make sure you get all the help you need from everyone who can supply it. DD

hileena111

Hi May
Still thinking about you and John and sending ((((())))))
I know John from times you have been talking about him to me
I'm can understand how frustrating it must be for him...going from carer to being cared for apart from anything else.
I can also imagine how frustrating it must be for you was well
So sending loads more (((((((()))))))) and you know where I am

Love
Hileena