Just wanted to say hi. I have been diagnosed with Sjogren's syndrome (an autoimmune disorder), inflammatory arthritis in the hands and RA. I am taking 4 sulfasalazine a day. I also have CKD (kidney disease). At first the sulfasalazine tablets helped to get the swelling down in my hands but they are now swollen all the time, making daily life difficult. I have regular blood tests ESR is 2 i.e. below range, red blood cell 3.5 (below range) mean cell volume 105 (above range) mean cell haemoglobin 36 (above range). My GP doesn't seem concerned about these figures and I don't see my rheumatologist until next Feb. My feet and ankles are very painful and my toenails have become very discoloured and several have come off. Had test for fungal infection of the nails which came back negative. Any help, advice or just a friendly note would be appreciated.
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I'm afraid I don't 'speak blood tests'
I get tired so easily and quite sad (wouldn't say depressed).
Its good to chat. Thanks.
do you have access to a rheumatology helpline? I do; and therefore rheumatology nurses who I can ring for advice. Just a thought - I agree with Stickywicket that February is a long way off if you are struggling.
Love
Toni xxx
Toni xxx
I to have very nasty toe nails thick and flakey my condition is PsA.
it does get us all down sometimes,but i always think it could be a lot worse :!: keep chin up and good luck mike26 :roll: :?