Hi I'm new here! My 5 year old daughter was diagnised with jra in April 2011 when she was 2.5. We were very lucky and it was just in her knees and other than 2 x 48 hour flare ups, she had no pain or restricred movement. They eere very swollen tjough and by thr august the worse kneevhad caused a slight leg length difference so at the end of September that year she had steroid injections into both knee. These worked well and the swelling has never returned but in March last year uveitis was found in her left eye at her routine eye check. This was such a shock as she was ana negative and the GOSH rheumy had given us the false sense that the injections might put the whole thing to bed and it may never come back.
Since then she has been on steroid drops in the affected eye ever since. We tried to come off them once for 2 weeks but it flared back up and every time we've dropped down to every other day its flared up again. So now the opth at GOSH wants to put her on MTX. I was dreading this but having read some posts on here I already feel a bit better about it.
So it would be great to hear from anyone in a similar position. I know we're so lucky that she is as unaffected as she is but that kind of makes it harder to see the sense it putting horrid chemicals in her body - even though I know its what's nfor the best long term.
also can anyone tell me how often I can expect her to need blood tests once shes on it please?