Feeling a bit tearful

Starburst

Hello dear forum friends,

I'm afraid we have one tearful Sophie this evening. I'm not really sure why I'm so tearful because I got good news, although as my consultant said, the good news was a double edged sword. My MRI scans showed no active RA, so basically, the anti TNF (cimzia) has done more in 4 months than any other medication has done in 4 years! So, why am I in agony in my feet and ankles? The million dollar question.

To his credit, my lovely consultant spent ages with me. I have some OA in my left foot and ankle and a soft tissue impingement but it's not enough to explain my pain and doesn't explain why my right foot and ankle hurts! He feels there's a chance it may be chronic nerve pain or related to my hip problem (rheumy has arranged an MRI) but otherwise, he's recommending focusing on pain management.

While, of course, I am over the moon that my RA has settled, I'm left feeling lost and miserable about my pain. I really want to move my life forward; be healthy and pain free. There seems to be no end to this pain in my feet and ankles. My walking is severely restricted due to this pain. He's a specialist foot and ankle orthopaedic surgeon and he's stumped. I'm just fed up and tired of it all.

Thank you for hearing me. I needed to get it off my chest.
:xmas_cry:

stickywicket

((((())))) Oh Sophie! It is, indeed, mixed news.

I'm so pleased about the cimzia. That's very good news. Good long-term news.

The feet? Yes, you wanted answers and only got more questions. And this from a real expert. At least he is truthful. I always prefer a straight 'don't know' to a load of waffle. Maybe it is nerves or referred pain. Whatever it is or isn't, surely 'healthy and painfree' is a bit of a pipe dream? I don't mean to be brutal but it just doesn't seem realistic. I'd like to be wrong.

Try the pain management. Maybe your rheumatologist could refer you for surgical shoes. You wouldn't be the first young woman in them. Honest :oops:

I hope things will seem brighter tomorrow. You can deal with this. I know you can. (((())))

Boomer13

Sending you some (((()))) as I really don't know what to say.....Hoping you get some relief soon.

xxAnna

villier

Awe Sophie, you know I don't do your stuff but want to give you some of these (((()))) take care huni hope you feel a bit better soon.........Marie xx :areindeer:

Kittkat

Hello Sophie
That is brilliant news about the cimiza! So sorry to hear about the ankle and foot pain I really hope they sort something out for you so you can get some relief!Take Care xx

frogmorton

Awww Sophie :?

I can certainly see why you feel tearful - you have yet no real explanation for your swelling and pain, so as yet no help with it. I hope the extra tests give you the answers.

I am really pleased to hear how well the cimzia is working for you :areindeer:

Take care and remember this forum is always here

love and ((()))

Toni xxx

Toots

Hugs Sophie x
I'm so glad the cimzia is working for you but disappointed you're still in pain. I have no bright ideas I'm afraid, but do hope things get better for you. You know there will always be someone here with a hug or two to spare when you feel down xxx

barbara12

Oh Sophie...it really is a double edge sword...Im so glad the meds are working on the RA..but still being in so much pain must be hard especially in your feet...I really wish I could offer some help...but has you know we are all good listeners...so hopefully we will help get you through this...((((())))xx

dibdab

Just dropping by to send some hugs
{{{{{{{{{{{{{{{{{{{{{{ }}}}}}}}}}}}}}}}}}}}.

It's great to hear that the Cimzia is helping you, and I understand why you feel down about the foot pain. I really hope you get some answers and some relief really soon. It sounds like your consultant is pulling out all the stops to help you, so don't give up yet- there will be an answer when the medics work out what the right question is.

Deb xx

stickywicket

Hello Sophie. How are you today? I'm thinking of you.

Starburst

Thank you for the kind replies and hugs. I am feeling a little bit less miserable about the whole thing. There's still a chance that it's related to my hip, so there's hope yet. They think there might be a tear in my hip, which is treatable, so the pain may ease up once I stop wobbling all over the place.

Either way, I think I need to psychologically accept that the foot and ankle pain may be longer term. Sometimes I go through phases when I imagine that all I need is a short term fix and the pain will be gone forever. I know better now!

Thank you again. I shall keep plodding on as I always do.
:santa:

barbara12

Bless...I will leave you some more of these...((((())))...sorry its not much xx

Mat48

Sophie - so sorry you are suffering. Sorry too that I've taken so long to read this thread of yours but was off all day yesterday doing other stuff. I do know how horrible ankle pain is - my tendon was really bad in my left ankle at one stage and it meant I struggled to walk on it and couldn't even get my boot done up and my feet are always sore. And my achilles tendons are always tight and sore these days too. So I do know how debilitating pain in this area is at least.

I also relate to uncertainty being more distressing than a clear cut diagnosis - even a bad one. I'm terrible at dealing with the unknown. Big hugs. Mat x

dachshund

Hello Sophie
i'm sorry you are in so much pain it pulls you down and makes you worn out. ((((((((((sophie))))))))))
take care
joan xx

bubbadog

Hi Sophie, I think we can all get alittle low sometimes especially with being limited to what we can do and the realisation that this is it! You see everyone else running about preparing for Christmas and your plodding on getting ready for Christmas and needing a rest every so often because your knackered!! (Yes that was me over weekend!) It is hard and I do have my moments where I just sit and cry but then I give myself a good kick up the bottom (Yes I'm trying to cut down on my swearing!!) and say come on just do what you can, that's all everyone expects of you to just do what you can. Sending you a (()) Merry Christmas! x :rudolph: