This is my first post so firstly hello to everyone out there. I just wanted to ask if anyone had advice regarding extreme (it feels extreme anyway!) fatigue and the group meetups. I’m 27 so realise I’m older than the 25 age limit but feel that am probably much younger than the others in the main forum area and hence different life stage with all the problems that brings!
I guess I should set out my illness to keep in tradition with a ‘newbie’ post though. So anyway I have been diagnosed with psoriatic arthritis for 6 years and yes it has been a battle – the failed meds (until I finally got on humira which has been a god send), the sleepless nights lying in bed in agony, the loss of friends (one year without alcohol due to being on methotrexate does this to you at my age). I have had to change my lifestyle completely but realise that parts of this have been for the better – I’ve given up smoking, I rarely drink now (except Fridays!), fallen in love with swimming, go to about 20 gigs a year (friends aren’t that bothered about not drinking at a gig whereas they feel awkward meeting up in a pub if you are not boozing with them), started drinking tea (green of course lolz) and try to read books as much as possible (energy levels provided). However house parties are a no go, same to general meetups with mates due to lack of energy after work. Life can feel very dull and mundane at times! Although I did go to a festival last year which I was worried I wouldn’t cope with energy wise but in the end I was fine. I feel that I have aged 20odd years at times. However I am still not in the acceptance stage – very few friends know of my illness and nobody at work has a clue (which when a flare up means I can’t type with my left hand causes issues!). I recently told a close friend of the battle I’ve had over the last few years and she shook her head in disbelief and said, “You think you know someone.”
That is the bare bones of the story but apologies if even that was too waffly! So anyway after reading through other posts on here I realise that I am very lucky at being more mobile than some and also at being able to hold down a full time job. But does anyone else feel totally drained of energy when they stop for a moment (I crash at weekends and in my evenings) and any advice they can give?
Finally has anyone been to any if the group meetups in their local area (mine would be a London one) and would you recommend them – what happens at them? I envisage if I went that I would be the youngest by about 30 years and hence very different issues having to deal with! And luckily I have a very dark sense of humour but I’m not sure listening to everyone moan about how awful their lives are would be that uplifting!! I am joking of course as it would be nice to talk to people who fully understand the illness I think I should quickly add but you know what I mean.
Thanks in advance!