My 2 yr old son after 8 weeks of limping, plaster casts, MRI's, scans, etc, etc has finally been diagnosed with JIA. I was feeling actually quite calm about the whole thing and trying not to jump the gun and get carried away with worrying about the unknown. Today I met with someone at the hospital who basically just explained it all in more detail than the consultant and gave me info to read, well now i'm panicking!
I hate not knowing what is coming next, whether it will spread, whether the steroid injection will work and for how long, whether its going to make him immobile (he did have it in just one ankle 2 weeks ago but now has spread to the other too) and how much its going to affect him and for how long. I dont want to worry unneccessarily but equally i dont want to pretend like nothing is wrong when it clearly is.
Is it potentially going to be at least temporarily fixed with a couple of steriod injections or is that wishful thinking?? Poor little sausage had a new scooter for christmas and hasnt even used it yet! We cant take him outside really as he struggles with shoes at the moment as his feet are almost slightly deformed from it at the moment and he'll pay the price for it the next day. At least once the summers here, he can go in nice soft shoes! I know there are some children who are suffering ten times worse than he is - should i be grateful for small mercies in that its only in 2 joints?
Any advice or support greatly appreciated - think the reality is just hitting home now!