Hi, Welcome!

The community is a safe space for people living with and connected to arthritis to ask questions and share experiences. Get started by registering here and posting your first comment or question!

Sign In with a Versus Arthritis account

Help us improve our website, chatbot and online community
We’d love your help to improve our digital services. It’s important to us that our website, chatbot and online community continue to support and provide information people with arthritis in the right way. We’re excited to be doing research to understand more about what’s working for you and what’s not so we can continue to improve what we’re doing.
You don’t need to be familiar with our digital services or a digital native to take part. The research will take one hour and will be run by a research consultancy SnapOut. Simply fill in the survey below to get involved. Together, we can continue to do more for people living with arthritis.

Fill in this survey to take part

Another one new here but not to the condition... (PsA)

VickioVickio Posts: 18
edited 21. Apr 2014, 16:51 in Say Hello Archive
Hi all;

I've posted on the main forum asking for some advice but though I'd say a quick hello here.

I'm Vicki, 42, and I live in North Wales (although I'm originally from the NE) and I was diagnosed with PsA 10 years ago. I'm currently on Leflunomide, having previously been on Sulfasalazine and Methotraxate; but I have had a really bad flare up and am now going onto another tyoe of meds as well to add to the Leflunomide. (My inflam markers went from 11 to 90 in one month).

I've always tried to manage the condition and for the most part have succeeded, but recently have been really down and feel worried for the future and my ability to have a decent life, stay working etc.

So hello all, and I hope I can get some advice/support/friendship or whatever here. Feels like no one irl 'gets it' at all most of the time. My husband tries but don't think you can truly understand unless you go through it.

x

Comments

  • dreamdaisydreamdaisy Posts: 31,567 ✭✭✭
    edited 30. Nov -1, 00:00
    Hello, it's nice to meet you but I am sorry you have had to find us. I am starting my eighteenth year of PsA and along the way I've also developed osteoarthritis and fibromyalgia. I am struggling at the moment with my asthma so won't be around for long - when it's better I'll come back and answer properly. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • mike26mike26 Posts: 416
    edited 30. Nov -1, 00:00
    Hi vikio pleased to meet you
    sorry your having such a rough time,and it does get to us from time to time
    and yes we do know what means to live with this disease .
    i to have PsA started when i turned 50, and forced to stop working at 60
    only i couldnt understand why it was getting harder and harder to work, then
    diagnozed with inflamatory arthritis just 2 years ago.
    im now 62.
    im on leflunomide, methotrexate, and humira.
    the meds have helped me to walk more.
    i consider myself fortunate that i got to 60 before it stoped me from
    working. it must be very hard for people that are younger with morgage
    to pay.
    my markers are more controlled at moment , are you on a bios yet.
    look forward to hearing from again.
    mike.. :roll:
  • Francie7532Francie7532 Posts: 40
    edited 30. Nov -1, 00:00
    Hello Vickio,

    Sorry you are suffering. It's hard when you don't know what's coming up. Our bodies change throughout our life so our diseases and our medications have to be adjusted from time to time. I see my pain management specialist twice a year and often he changes my meds and I usually feel a lot better for it. The time of year seems to make things worse for me, winter and spring are killers for me, but summer is glorious. So I would like to say, there is lots of hope (just read some more posts from other arthritis sufferers) and you will get this thing under control and back to life!!
  • Boomer13Boomer13 Posts: 1,931
    edited 30. Nov -1, 00:00
    Hi Vickio;

    Nice to meet you. I have PsA too and left work before I had a diagnosis. That was 4 years ago and I had worked the previous four in a lot of pain. I take triple DMARDS at the moment and things are partly under control. In a few months I will start Enbrel but I'm having a MRI of my head first as I've been having inner ear symptoms and a painful neuropathy so my doctor wants to rule out a couple of things before I start on antiTNFa drugs.

    I really hope you find a treatment that will help you. Hang in there and know we are always here if you need help or to chat.

    xxAnna
Sign In or Register to comment.