shandy4greenday Member Posts: 344
edited 25. Apr 2014, 14:48 in Living with Arthritis archive
Please can anyone advise me what to do as this itching has gone on for weeks now and nothing seems to be working.I rang Rheumatology almost 2 weeks ago as I was getting no where with my GP.i was taken off my Hydroxy but still it wont go away. I have had the odd days here and there with it not there but almost everyday it wont stop until I have taken antihistimines.I have tried everything from changing washing powder to wearing different trousers.Should I ring rheumatology again or my GP as I dont know if it is anything to do with medication or not.Please help it's driving me mad now.


  • stickywicket
    stickywicket Member Posts: 26,174
    edited 30. Nov -1, 00:00
    I can feel your desperation and iI know persistent itching just grinds one down but, with the best will in the world, I don't see how we can help. If you think it's meds-related you'll have to ask the rheumatology team and, if not, your GP.
    "The deeper sorrow carves into your being the more joy you can contain." Kahlil Gibran
  • bubbadog
    bubbadog Member Posts: 5,544
    edited 30. Nov -1, 00:00
    I suffered from the itching side effect from the Hydro, it was horrendous I was scratching day and night! I was given this lotion that was just like calamine lotion and had to dab it on the worst itching area's by my G.P and on advice from my Rhummy Nurse reduce my dose of my hydro which I did and after a couple of weeks the itching calmed down. So you need to see your G.P and call your Rhummy Nurse or speak to your Rhumatologist. I hope it eases soon as I remember how horrible it was.
  • dreamdaisy
    dreamdaisy Member Posts: 31,558
    edited 30. Nov -1, 00:00
    I remember the itching caused by my eczema when I was a child - it wasn't fun. Bathe using aqueous cream, moisturise with that too (E45 is another option but I found it made my skin worse) or use coconut or almond oil. You may need a steroid cream such as Betnovate but we are not the ones to advise; if anti-histamine tablets are helping then that hints at an auto-immune problem. DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • barbara12
    barbara12 Member Posts: 21,052
    edited 30. Nov -1, 00:00
    Hello shandy I do feel for you itching is horrible ..hopefully you will be able to find something that will help you would think your Rheumy would know of something..there have been a few people lately on here complaining of itching wounder if the warm weather has sparked it off..I do hope you can get some relief very soon x
  • DebbieT
    DebbieT Member Posts: 1,033
    edited 30. Nov -1, 00:00

    I have itchy skin 24/7 so I know how you feel. Some days I almost, but not quite, forget about it!! :wink:

    Mine is a combo of different things .... One can be prickly heat. I can get it in the dead of winter as I don't seem to have any control of my own temp, another maybe meds but if so I can't come off of any I'm currently on so I suppose that's it on that front but the two main & persistent culprits I have are .... Psoriasis ... Even if my skin is 100% clear (yeah right :lol:) my skin still feels like I've bugs crawling all over me & last but by no means least ... Fibromyalgia .... It's one of the many varied & extremely unpleasant problems, added illnesses, syndromes etc etc etc it's given me :shock: :? :x

    I think if ure lucky enough to have some relief from antihistamines then I'd keep using them, if ure gp etc are happy with that!!

    I do hope it all settles asap!! It really does seem like ul lose ure marbles :( I invested in a 99p ( :lol: ) back scratcher .... Bliss :D


    Xx xX
    Healing Hugs
  • shandy4greenday
    shandy4greenday Member Posts: 344
    edited 30. Nov -1, 00:00
    Thankyou all,Creams like E45 and Zero Base just makes it worse.I spoke to rhummy today who is also quite puzzled and will speak to the doctor when he is back as he is on leave for a week.We both in the meantime came to the conclusion to try taking the antihistamines 3 times a day as prescribed as I have only been taking 1 a day due to it settling by lunchtime.Rheummy thinks it could still be the hydroxy and can take up to 3 months to get out of the system so taking the antihistimines may help in the meantime.I have been asked to try this for a week if still no improvement to try my GP again as I may even have to be referred to a dermatologist if nothing improves.I still find it strange as it just started suddenly about 4-6 weeks ago now with no change and it's effecting mainly my legs and first thing in the morning.Maybe it could be autoimmune but Rheummy does not want to take me off the Methotrexate as I am tolerating that quite well now.I just hope it stops soon as I don't want to go out anywhere until it settles and taking the kids to school is hard when you have to keep stopping when your itchy all the time even though I try to do stuff to take my mind off it I find it really difficult.
  • shandy4greenday
    shandy4greenday Member Posts: 344
    edited 30. Nov -1, 00:00
    I first started taking Hydroxy about 18 months ago I had it increased back late last year but started to get bad itching then so it was reduced back down again which helped up until about 6 weeks ago.I was taken off Hydroxy 2 weeks ago now.I have had the odd days where I have had no itching but it's mostly there everyday and some days its awful.Thank you for the tip I will look into trying that too.
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