Update.....Onco verses Rheumy Oh and ME.
kellerman
Member Posts: 741
Well I knew it was coming. Onco insists I am getting more than enough drugs at the moment and that these drugs are prolonging life.....she's right of course. Rheumy is wanting to add to the mix with...well to be honest I don't know what but to treat the AS.
I'm afraid my thoughts are 100% with the onco.I'm not likely to change my mind so rheumy is a wee bit p******d off.Not sure if I'll have a rheumy after today.
I really could of done without this hassle. I still have an infection in my left eye although I am feeling better in myself and I'm just hoping my bloods are ok for round 2 next Wednesday.
Yesterday within the space of 3 hours most of my hair fell out...well by lunchtime I looked like a clown so today I got a wig. Now I don't know if I'm kidding myself but I think I look 10 years younger.....well I am looking at myself with one eye.
Now I am so tired so going to bed. Take care everyone Love May xx
I'm afraid my thoughts are 100% with the onco.I'm not likely to change my mind so rheumy is a wee bit p******d off.Not sure if I'll have a rheumy after today.
I really could of done without this hassle. I still have an infection in my left eye although I am feeling better in myself and I'm just hoping my bloods are ok for round 2 next Wednesday.
Yesterday within the space of 3 hours most of my hair fell out...well by lunchtime I looked like a clown so today I got a wig. Now I don't know if I'm kidding myself but I think I look 10 years younger.....well I am looking at myself with one eye.
Now I am so tired so going to bed. Take care everyone Love May xx
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Comments
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Oh May, you could do without the professionals falling out! I hope that your rheumy doesn't take it personally.
I have two friends who both wear wigs because their hair has thinned as they've aged. They both look great, as I am sure you do, too.
Look after yourself.
Meg xx0 -
Aww May
Just something else!!!!!
You're probably right about the onco and the drugs but what a decision.
One eye or not I bet you look great in the wig....I know a few people that wear them for the same reason and they look good
You take care
Love
Hileena0 -
Oh May, you really don't need this! I think you have to do what you think is best, Rheumy or no Rheumy, although I'm sure he/she can't drop you for refusing drugs.
If you think you look ten years younger and you're looking with just one eye, you probably look twenty years younger when looking with two
In any case, I bet you rock that wig
I'm pleased you're feeling better in yourself, and sincerely hope you continue to do so.
Take care, Numpty0 -
How dare your rheumatologist react in that way. :x You are facing an awful dilemma health-wise and I reckon your body is under enough of a chemical onslaught at the moment, don't you? Your rheumatologist cannot dismiss you for not doing what he/she thinks is necessary but the lack of understanding is appalling.
I am very cross.
Now, to more practical matters. Congratulations on buying a wig, they are an instant way to boost one's moral and self-esteem (and change one's look if you end up with a choice ) Are you a blonde, brunette or a red-head? Purple and sparkly or blue and sleek? Go on May, get a sparkly one and wear it to your next rheumatology appointment! DD
PS ((( ))) xHave you got the despatches? No, I always walk like this. Eddie Braben0 -
May this is not good for you,but I am sure the onc is the best one to listen to for the min..you are such a strong brave lady...I for one am always here for you to unleash everything its good for the mind and body...(((())) xxLove
Barbara0 -
None of this disagreement came as a surprise to me. Onco is relatatively new lovely lady, rheumy is a bit of a prig.I always knew that I'd end up on the side of the onco and be fighting her corner.I just find it ridiculous that the rheumy can't see anything but his point of view.
Now for the wig.....well I was fair and didn't realise how grey I was until it came out. I tried quite a few and the one I got is fair with some tones in.Sensible head. Of course if we get a heatwave I'll fall back on a scarf as they are warm to wear.A wig I mean.
I might just get a blue glittery one(or even purple) just for special occasions.
I have heard this morning that there is to be a meeting about my care but no date has been fixed. Its a pity the rheumy has nothing better to do.I'm sure many people are waiting for appointments but he obviously likes the last word. However I will be there so as its my body I will be having the final say.I have spoken to the oncologist's secretary this
morning and from what I can gather she is pleased I am allowed at this meeting.....think she is bullied by the rheumy.Its just his pig headed attitude.
Thanks for your continued support and please everyone take care Love May xx0 -
For multiple asterisks' sake! Who's body is this? Yours or the rheumatologist's? Can he see no further than the end of his own curled up, disapproving nose? (No reply needed.)
I am on your side, May. It sounds as if the onco is too, plus the entire AC forum. It's enough. Shall we all come to the meeting? I have a wonderful image of a huge bunch of crips, with our crutches, rollators, scooters and wheelchairs holding up placards saying 'There's more to life than arthritis'.
P.S. (((())))If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
For multiple asterisks' sake! Who's body is this? Yours or the rheumatologist's?
My thoughts are with you, and I hope an intelligent and compassionate way forward can be found for you at the meeting.0 -
Oh May! (((( )))) My initial thoughts were "don't you have enough going on without the rheum fighting his corner so vociferously?!" I agree with Stick too, it's your body and your choice. We have a saying in social work; nothing about me, without me. You are a whole individual and they all need to look at you holistically, just in terms of a condition with symptoms that need treating. I'm sorry you're having to face this battle of doctors when it's the last thing you need right now.
Be kind to yourself and take good care x0 -
Oh dear May as if you haven't enough on your plate, as you say it is your body and up to you what gets put in it. I am sure we can rustle up some supporters for that day to cheer you on.................take care.........Marie xxSmile a while and while you smile
smile another smile and soon there
will be miles and miles of smiles
just because you smiled I wish your
day is full of Smiles0 -
Oh dear May, in the name of all that's reasonable......you've got enough on your plate without a pig headed prig!!!!!!!!! :x It's your body and your decision, only you know what you can and can't cope with right now, don't be pushed around please, there are other rheumys out there if needs be.
Sorry didn't mean to rant, but bullies really annoy me.
PLease have a bucket full of hugs ((((((((((((((((((( ))))))))))))))))).
Deb xx0 -
Hello May. I'm thinking of you very much. (((())))If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Hello May
i will be there for you. the Onco lady seems to know you better and you are the only one who knows your body.
good luck May take care
thinking of you ((((((((May))))))))
joan xxtake care
joan xx0 -
Good for you May standing your ground...the onco sounds very nice, and I am sure you know you are in safe hands..will be thinking about you ...I have two wigs because my hair went so thin, they are very light to wear so if you need any info just pm me...good luck with the meeting...((())) xxLove
Barbara0
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