Pocket duties again please.

kellerman

I have been told I must see the onco today a week before next chemo. So I have to go to the outpatients with all the bugs I'm trying to avoid and she just doesn't get it. On top of which they also want me to have a scan one week after next chemo so more bugs.
Maybe its just me being fussy but none of this makes sense.
I did speak to my GP on the phone who has given me my pain dullers etc and quite understands why I don't want to go in to see her.
I did 2 years in onco and we were very careful to avoid patients being in contact with any bugs that might affect there immune system before the next chemo. Just won't even be just chemo patients it will be a mixture of goodness knows what.Ireally don't have any choice as I need to see her as my eyes are still sticky and although the thrush has gone from my mouth I want to make sure she she prescribes the tablets for the next chemo as we have an argument about this due to budgets and she would be happier if the GP prescribed them.
Oh boy I feel rough enough this morning without dragging myself myself up to the hospital for 2.30.
This is my moan for today and now I'll bathe my eyes again and fondly hope you are all having a better day than me. Take care please. Love May xx

Slosh

I must admit this doesn't seem to make sense to expose you to the possibility of bugs in tbis way. It must make everything even harder when you feel you have to fight just to get tbe treatment you need. You can put me in your pocket

stickywicket

I'm in May and bug-free to the best of my knowledge. You will be more aware than most of the antibac gel etc but I don't know whether or not your hands will cope with it right now. I hope all goes well. ((()))

villier

Sorry May think I have a virus don't want to add to your problems, I will be thinking about you, hope you get through this unscathed...............Marie xx

mig

I'm in as well May. Mig

dreamdaisy

Oh the stupidity of this gets my goat (well, more precisely, one of my many goats). I have a long-held and very deep love for the NHS but it seems that at times it loses its reason. All I can suggest is taking a huge wad of anti-bac wipes and keep wiping everything within sight (including other patients ). Wipe anything before you touch or sit on it, and include her desk when you get in. I think I'm bug free but am coming along in a hazmat in case I'm not. DD

Boomer13

I don't post often on your threads, but I am aware of your heartbreaking situation. I am bug-free and would happily be in your pocket as needed.

Take care,
Anna

kellerman

Not really sure she appreciated me as I kept wiping everything except her but not a bad appointment really. No scan until I have the last chemo and she prescribed eye drops and ointment and also the tablets for thrush in case I get it again.I told her if she gives me the tools to deal with the side effects I can cope.
SW quite right about my hands I have very little skin on them and virtually none on the soles of my feet however I can cope with this as long as I wear cotton socks and gloves although I feel stupid having to do so in this heat.
Just bought myself a very flattering scarf as the wig is too hot an itchy in the heat.Now to have some fun putting the drops in my eyes as obviously I can't trust John to even get close.You lot are wonderful but please use the sunsreen if you are out in this heat.....I'd hate for anything nasty to happen to you. Take care May xx

dreamdaisy

She 'lives' with the theory - you are living with the ghastly reality so who cares what she does or does not appreciate? I know I don't.

I hope you can manage the drops - could his carers step in to help you? I freely admit that I don't know how these things work but if they could . . . . Your courage, humanity and humility hit me anew, I am struggling with psoriasis in some strange places but coping with a lack of skin in useful places? Who cares what the healthy think? For my money you are one brave woman. DD

Numptydumpty

I totally agree with DD, you are one brave woman.
Good luck with the drops.
(((()))) take care,
Numpty

hileena111

Hi May
I'm sorry I've been out all day and am only seeing this now
It does seem particularly stupid.
Good Luck with next appointments....UI'll be there if I know about them
Love
Hileena

stickywicket

kellerman wrote:

Not really sure she appreciated me as I kept wiping everything except her

Oh go on, May! Go the whole hog next time There in your pocket, I've never had my face washed so much for years

It sounds to have gone OK though for which I'm glad. I really have nothing to offer re eye drops. If Mr SW couldn't do such things for me I'd have to get a neighbour in. Not at all convenient – either for me or the neighbour. Well done on the scarf solution. It sounds much cooler.

dachshund

Hello May
you wipe what you want when you go anywhere it's keeping you safe from germs that's all that matters.
take care
joan xx

dreamdaisy

As usual our lovely dachshund hits the nail on its head. Who cares what the healthy think about our behaviour? :? I suspect they would crumble with a mere one hundredth of what you are facing; I know I would. ((( ))) DD

stickywicket

Hello May. I'm thinking of you. (((())))

dachshund

Hello May
i hope everything goes well for you.
take care
joan xx

barbara12

Hello May sorry I'm late seeing this I was away for a few days..I love the thought of you going round the room wiping it down...good for you..you are such an inspiration ..good luck with the chemo will have everything crossed for you (((())) xx

nearlybionic

Hi May
sorry i have missed this thread but not been online recently.
You did right! You have to look out for yourself, and who cares what anyone else thinks. I hope you are managing with the drops. I wish i could help x
Thinking of you x
NB