Hi, my 2 year old daughter has just been officially diagnosed with systemic JIA. She actually got ill for the first time a year ago, she was covered in a rash with high temperatures. Her blood showed inflammation but they couldn't find any on her joints. After about a month in hospital she appeared to improve & was sent home. A year later & she was ill again - this time with inflammation in every joint & her fingers.
She copes fantastically with it, and her resilience is amazing. She doesn't realise she has an illness & I think that is the best thing.
I really just wanted to talk to other parents and find out what to expect. At such a young age it is difficult for her to explain where & when she hurts.
The diagnosis has devastated us - I think because we thought she was clear of it.
I'd also be interested to know if anyone had ever used dietary changes? My docs dismissed the idea immediately saying that only medicine will work but I've read quite a lot about avoiding certain foods. However, at 2 years old - cutting out dairy & red meat is not really a great option.