Diagnosed with RA recently
oojammyflip
Member Posts: 6
Hi,
I'm 24, in East Sussex, just been diagnosed with rheumatoid arthritis (2 weeks ago). I don't have a lot of information about RA.
So any help, tips or information would be fantastic.
Thanks
I'm 24, in East Sussex, just been diagnosed with rheumatoid arthritis (2 weeks ago). I don't have a lot of information about RA.
So any help, tips or information would be fantastic.
Thanks
0
Comments
-
Hello oojammyflip
And welcome to the forum, you have come to the right place for info,at the min I have OA so cant offer much help , but I am sure others will be along soon, it must have been such a shock to you,Love
Barbara0 -
Hello oojammyflip and welcome to the forum. All too many of us on here have RA What do you want to know? You can check out Arthritis Care's 'Publications and Resources' (Near the top of the page) but, if there's anything you want to ask us, ask away. What meds are you on?If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0 -
Hi, at the minute it's all rather new to me, I'm still in pain and feel gutted that my energy is low and I can't do what I used to. So any tips to help with general day to day would be fantastic.
I've just started methotrexate, hydroxychloroquine, folic acid and Celebrex.0 -
I'm eighteen years in and know exactly how you feel and what you mean. I am thankful that I am an old hag of 55 - it must be so much harder for you young 'uns.
Over the years I have learned to listen to my body and use my pain levels as feedback. I have learned to adjust what I do and how I do it, and how to pace myself (but I do get things wrong every now and again, we all do). I accept and understand that pain is a fact of my life but I choose to keep the pain relief to the minimum so that I can function as best I can with my mental abilities intact. I've learned that the stronger the pain relief the more you are removed from the pain, not vice-versa: it also means I have an escape route when things flare. I have PsA (psoriatic arthritis) and that in turn has led to osteoarthritis in various joints and fibromyalgia all over.
You are in the very early stages so, all being well, the meds will help. I have seen over my years of attending rheumatology that many people are doing far better than me thanks to earlier diagnosis and thus starting the meds sooner; you will hopefully be included in this number. DDHave you got the despatches? No, I always walk like this. Eddie Braben0 -
It's all a bit bewildering at first and hard to get ones head round but you are now on some proper disease modifying medication so hopefully you'll soon see a difference.
Fatigue is a part of the disease. It's worse when things are not under some control but often lurking away in the background. Go easy on yourself until you learn your own limits. Push them when you want but be prepared to pay later :roll: A good, healthy diet will help and, if you smoke, don't
Pain is a fact of our lives. Usually it's an indication of something being wrong and needing fixing as when we break a leg or somesuch. However, although there is something wrong with us we can't be totally 'fixed' so I'd suggest you aim to reduce the pain to a level you can cope with rather than eliminate it. Several people on here have got into difficulties chasing the nirvana of 'painfree' which usually involves increasingly powerful pain relief and the side effects of taking it.
There is a thread higher up called 'Ideas to make life easier'. maybe you'll find it helpful.If at first you don't succeed, then skydiving definitely isn't for you.
Steven Wright0
Categories
- All Categories
- 21 Welcome
- 18 How to use your online community
- 3 Help, Guidelines and Get in Touch
- 12K Our Community
- 20 Food and Diet
- 9.6K Living with arthritis
- 769 Chat to our Helpline Team
- 222 Work and financial support
- 6 Want to Get Involved?
- 166 Hints and Tips
- 396 Young people's community
- 12 Parents of Children with Arthritis
- 38 My Triumphs
- 126 Let's Move
- 33 Sports and Hobbies
- 379 Chit chat
- 244 Coronavirus (COVID-19)
- 34 Community Feedback and ideas