Hi, my eldest (now14) was diagnosed with jia at 6. We had a really rough ride to get diagnosis and get on top of it. She had been to a soft play centre and came home with ankle swelling which we put down to an injury, within a week she was unable to walk, turn over in bed and go to school. Eventually got it managed and following a number of years on mtx and anti inflams she is now in remission.
She also had hairloss from birth which always happened after a flare up and fevers, one of her jia side effects.
She has a sister who is now 7. This daughter has complained on and off about joint pain over the years mainly about joints not affected in her older sister so unlikely to be copying. She also has the hair loss incidents following fevers. We had her investigated by the rheum consultants at the children's hospital and at the time there was no evidence there might be a link.
4 weeks ago my youngest had a fever but carried on doing everything over the weekend including going on a trampoline. She came off the trampoline complaining of ankle pain. This has not settled and is still swollen. We have been to the gp ands have had X-ray to rule out fracture etc.
The girls also have a brother in between them. No hair issues and no joint problems.
I am really finding this a challenge. I have always had a mums feeling something wasn't quite right. I work in the nhs and have a background in musculoskeletal treatment (which is probably a bad thing!). It may just be a complete coincidence, I hope it is. We had such a nightmare few years and it was horrible seeing my eldest going through it I'm not sure I can do it again. I know I will, and it may not be the case, but I'm finding it tough.
Has anyone got any info on the likelihood of 2 siblings having this? Drs say very very unlikely.
Thanks for reading my essay!