Hi everyone. I hope that someone will read this & be able to offer some advice. My son who is now 21 was diagnosed with jia at the age of 9. We have had many ups and downs through out the years. Fighting medication, not turning up for appointments, massive flare ups, realisation that he cannot manage alone, long periods of remission, getting life back then wham, its back again. He is now in the worst state I have ever seen him, all his joints are now affected, no medication appears to be working. I fear he is giving up hope. He is very emotional, not himself at all. He has closed everyone out. Locks himself away for days. I don't know what to do.
Sorry to come on here with such depressing news. Please may I just mention that we have had some good times too