PAIN CLINIC APPOINTMENT

hileena111

Hi,
I have an appointment at the pain clinic on Tuesday.
Its going to be interesting :roll:

I haven't seen him for over a year....in fact there was no sign of another appointment.

What happened was my Ortho had seen me and was dictating a letter to the GP while I was still there.
One of the things he said was "she is under the care of the pain clinic".......I shook my head so he stopped dictating. I told him.....next thing I had an appointment for the pain clinic
I had my 2nd THR in Jan this year. It was approx. Sept last year that I saw him. He talked about my back and said that there was nothing could be done about the kypho scoliosis but I would need a 2nd THR eventually so I might as well have it and it MIGHT help my back as well.......he did stress MIGHT.

Well since that...I've had the 2nd THR, Fractured Greater Trochanter Bone, Told I'll be on crutches the rest of my life.......He'll have a lot to take in since he last saw me

Wish me luck on Tuesday and hope he comes up with some pain dullers although this cortisone injection seems to be working.
You can only have a few of them cant you?

Love
Hileena

Slosh

Hope it's a positive appointment. You deserve it.

hileena111

Hi Slosh
Thanks for that......I hope so as well

Love

Hileena

stickywicket

Hope it goes well, Hileena, and you get something positive out of it.

villier

Hope he can help Hileena you deserve a bit of luck. xx

theresak

Good luck with the appointment, Hileena.

In my experience, they like to keep cortisone injections to about six months apart, although my own rheumy has given me two in fairly quick succession when things were tough. She always gives the maximum dosage too.

Tezz x

hileena111

I had a feeling it was 6 months but don't know where I got that from Have no idea of the dosage??? Must ask the next time I see him.
Thanks Sticky, Marie and Tezz.........are you going to be in my pocket again on Tuesday???? I'll probably be on my own this time.

Love
Hileena

villier

Count me in Hileena I will be there can't have you causing mayhem on your own xx

Megrose489

Hope it goes well for you on Tuesday, Hileena and that you find it helpful. I'll be in your pocket.

My GP told me that I could have three cortisone injections in a year into the same joint, but I've had two injections within the space of three months when the first one didn't work. Unfortunately, the second one hasn't worked either :shock: but hey ho! I'm afraid I don't know the dosage. It's good that your injection appears to be working. Take care.

Meg

hileena111

Hi
Bit of an update on the injection.......One of the things that was really bothering me before it, was sleeping on my left side.
My pelvic bone....agony!!! If I slept on the other side I automatically rolled on to the left side {the one I favour}and that wakened me immediately.


For the first 2 weeks after it. It was great......I slept on that side with no problem and no pain.

The past 2 nights I've wakened at 5am and then 6am......with that bone sore again.
That's still better because I couldn't lie on it before at all.

After the first 2 weeks I thought it was working with not having any pain at night and getting a decent nights sleep.......bliss
Pain everywhere else but I'm used to that

Now....not sure what to think.....I see him in 3 to four weeks and will tell him.

Its the pain clinic tomorrow and I don't think he'll interfere with it.
I'll post an update after I see Dr Coe tomorrow
Love
Hileena

dreamdaisy

I hope the appointment is helpful, Hileena, and that you are given some help with pain relief. DD

dachshund

Hello Hileena
i hope you get some help you have been through a lot.
good luck
joan xx

barbara12

I will have everything crossed for you Hileena..you really do need some relief from all this...will be thinking about you xx

theresak

I'll be there Hileena - hope it goes well. I can't sleep on my left side because of the trochanteric bursitis. It cleared up for a while after a guided injection, but has once again reared its ugly head.

Tezz x

phoenixoxo

Hi Hileena,

I hope very much this is a useful appointment for you and of course I'm happy to perform pocket duties, with plenty of chocolate biscuits

Best wishes,
Phee

hileena111

Hi
Thanks you everyone for your support.
DD Don't know what pain relief he can come up with but I can always hope
Joan.....Thanks
Barbara.....be careful what you cross your fingers are OK aren't they? Don't want anyone making things worse
Phee.......more choccie biscuits........fantastic. I'll be getting fatter Or will the rest have eaten them before I get a chance

Love
Hileena

phoenixoxo

hileena111 wrote:

Phee.......more choccie biscuits........fantastic. I'll be getting fatter Or will the rest have eaten them before I get a chance

Well, luckily I'd brought a mega-pack this time, so we managed to save a few for you – just

I hope the appointment went well

Best wishes,
Phee

hileena111

Hi Everyone
Well the appointment was nothing out of the ordinary.
At least he has now caught up with all that has happened since I last saw him.
The other thing is I'm now on the radar
As for any pain killers/dullers
The best is that he suggested I have a chat with my GP and talk over medicines with her. I said she wasn't one for a chat like that......If you remember she was the one who tried to dissuade me from going to a pain clinic in the first place. :x
So in his letter to her he is going to suggests she prescribes a morphine based one if the pain gets worse.
I don't really want morphine but if I need it at least she has been told to prescribe it.
When I get my copy letter I'll post again and say what meds he advised if it was necessary.
Said the only patches {when I asked} were fenatyl??????spelling and they were a steroid. That's what I'm trying to avoid ...one side effect is crumbling bones............they are bad enough now
He suggested another one....forgotten the name and he looked it up.........sorry it is contra indicated.....{epilepsy tablets}
I always thought that if there was a chance they MIGHT clash I wasn't going to take them because 33 years is a long time to be clear......dont want to lose my licence.
He put another twist on it.....if it causes a seizures.....you have had 2 THR's, 1 greater trochanter bone which is fractured and osteoporosis.....so if you did fall......you could fracture something else quite easily. So he's going to be careful about how they interact with other tablets.
So that's about it really.
Love
Hileena
Oh.....got a couple of crumbs Phee......thanks

dreamdaisy

It's so complicated when we have other conditions apart from arthritis but he sounded to be thorough which is a good thing. I am not surprised that there was not much on offer for you pain-relief wise, disappointed yes, surprised no. Fentanyl is the word you were after, I don't know much about them but the steroid element has taken me aback. If you need the strong stuff then you need the strong stuff and your GP must accept that need, surely it's part of her brief. I sorted out my meds drawer the other day and found that all my tramadol tablets had expired in 2012 - just as well I haven't taken any! DD

stickywicket

It's good that the Pain Clinic are liaising with your GP, especially ifthey are providing a bit of ammo in your favour

I add my surprise to DD's. I'm pretty sure fentanyl is an opiod not a steroid. In fact, when I checked, I discovered it's "approximately 80 to 100 times more potent than morphine and many times more potent than heroin." :shock: :shock: :shock: I think you're well off it, Hileena

barbara12

Hileen at least like the others have said your pain clinic is liaising with your GP and being careful..I was told the morphine was a last resort and there would be nothing after that..I do have the patches but don't always use them..I think the injection has been a success so hopefully they will be able to do another very soon..x

theresak

Glad he was so thorough, Eileen - all you want is to feel the medics are listening and trying their best for you.

It's such a tightrope, balancing drugs we need with the effects they may cause. Since my PHN has been flaring so nastily my GP has suggested Gabapentin, but quite honestly I really don't want yet another drug in the mix, so will have to grin and bear it.

Tezz x

phoenixoxo

hileena111 wrote:

Oh.....got a couple of crumbs Phee......thanks

Hi Hileena,

Well, that's a bit of a mystery about the leftover biscuits. All I can think is that the doc must've pickpocketed them as we were all on our way out the door

I think we might forgive the theft, though, as it's good that he's up for a bit of liaison with your GP. I hope they're able to come up with suitable pain relief for you

Best wishes,
Phee

hileena111

Hi
I'll find out more when I get the copy letter....
He's lovely and very helpful.
He also said "if I write to the GP and advise stronger painkillers IF necessary {he knows I don't want them but as a stand by} he if she has that letter in front of her she is more likely to prescribe them then the blame will fall on him not her

Tezz Gabapentin is another one I cant take....its an anti convulsant as well as other things so that would mess up the ones I take....... probably overdose :roll:

DD Had to laugh at your tramadol LOL.....That just reminded me I have got oromorph in my med drawer that hasn't been used and I wouldn't....Not sure of the expiry date
:? That's from when I fractured my pelvis and SI joint and she gave them to me but monitored them very strictly.....well not that strictly otherwise I wouldn't have any there
I don't want to take any more meds.
Hopefully the cortisone injection will keep on working
He mentioned the nerve block injection and the facet joint injections he had tried and they didn't work.
If this doesn't work I might ask about acupuncture again???
We'll see
Thanks everyone
Love
Hileena

JamesFoote

My doctor has put me on morphine untill things get sorted.

I read an amazing artical about addiction and what it is and after reading it I felt so much better about taking this drug.

The big thing is I don't take it every day or anything like it is good to know it is there and if I am talking to people and meds come up there reaction when you say you are on morphine, this happened when I was asked to help build a fence no one of my syndigate waters Nd I said I could not.

Don't worry about the drugs you need because if you need them then you need them.

Wishing you well

James

hileena111

Thanks James
I know if I need them I'll need them......but it will be a last resort
The time I fractured my pelvis for about a week I was in agony {it was sore the rest of the time} but this one period was dreadful and I had no hesitation in taking morphine then.
The pain isn't that bad.
My main problem with this fracture is that I couldn't sleep onb my left side because the pelvic bone was really sore when I put any pressure on it. I wasn't getting sleep but still trying to do the same amount of things the next day with little sleep.
That's the side I favour when sleeping so even when I managed to get to sleep on the other side I would roll over and that would waken me....no matter how many times I managed to sleep on the ringht side I ALWAYS rolled over on to the other side...even with pillows propping me up
So this cortisone seems to have helped this and at least I can sleep now....that is a big bonus
Thanks for your reply
Love
Hileena