back from neurology, very relieved

Slosh

Well the first thing is I don't have MS! I feel very relieved about that as you can imagine. It's also reassuring to know that there is nothing serious wrong with my brain.
The diagnosis is a neuropsychiatric disorder where for some reason my brain itself is blocking the signals, but it doesn't mean I don't have real symptoms/or that I'm imagining things or making it up. They don't know quite why it happens but it can be the brains response to a trauma which doesn't have to be recent. The management is through a multidisciplinary team of physio, OT and psychologist and is likely to be ongoing. I shouldn't get worse in terms of my mobility and may slowly improve. Feeling completely shattered, I thought I was fairly calm about it but now that I've left that worry behind and I'm able to relax I'm realising how stressed I was about it.

Thank you all for your support

LignumVitae

Oh Slosh that is good news about not being MS. I've been skulking around the forum this morning to see if you put anything up. It sounds like there is a thorough plan of action so that is very good news and hopefully means you can start managing and treating it all. Now, feet up, pretend you are at a spa and take lots of deep breaths (and smile). (((((())))))LV

stickywicket

That's good news indeed - even though the very healthy might not think so I'm so pleased. I've been thinking of you all morning.

As for feeling shattered. When my boys were little I was great in a crisis. (They were boys so there were several crises :roll: ) Afterwards I'd just shake uncontrollably for ages.

Tea, rest, a good book and some 'normality'

Megrose489

So pleased that it wasn't what you feared, Slosh. It sounds as though they've got a good plan for managing things, so just relax now and enjoy the rest of your day.

Meg

kirst74

That IS such a relief!
Sounds good too that a plan of action is being put in place for you.
Now I hope you can relax.

Kirsty xx

villier

That is very good news Slosh, I have been thinking about you all morning, I see people with different stages of MS when I am in getting treatment for my neurological condition and was trying to muster up as much information that I could remember with talking to people but thankfully you wont need the info now. Hopefully you are sitting relaxing now with a nice cup of tea, it must be a bit of a relief for you, at least they have given you a good plan of action. xx

mig

So pleased for you Slosh. Mig

Slosh

Thank you all so much. Cups of tea and a cream cake were just what was needed. See my GP tomorrow morning for a prescription review and will feedback to him then and then I see my physio in the afternoon. To "celebrate" I have ordered myself a pair of fuschia coloured crutches!
Bought some cakes to take in to share with the team I work with at school tomorrow.

theresak

Oh Slosh, I am so very pleased for you - I too have been wondering how things went. It`s such a weight off your mind to know it`s not MS - I have two friends with MS, so am aware of the ramifications.

At least the medics seem to have a plan for you to be able to manage the condition, so hopefully you will be well looked after and be able to hope for some improvement, perhaps.

The fuchsia coloured crutches sound very snazzy, and I hope you and your friends enjoy the cakes!

Put your feet up tonight with a nice glass of something,

Tezz x

Slosh

Thank you, I have had to explain to my OH the difference in meaning between "a management plan" and a cure.

Don't know how long I will have to wait for OT and psych appointments but she did say that the OT as well as looking at how I manage at home will be able to give me advice on learning to pace myself at work.

Very pleased my orths consultant had sent me for my brain MRI ahead of todays appointment as that did help speed things up today.

dreamdaisy

I apologise for being late to this, I've been out all day. I too am very pleased and relieved - I hope the new course of treatment / management is soon put into place. I will now have a glass of cold grape juice to celebrate your news! DD

Slosh

Thank you DD and all of you.
I almost went into work today when I got home by 11 with the news, glad I didn't though as apart from the tiredness as a reaction to the appointment, I found I needed the time to process it all. It will be good to see my GP tomorrow and my physio so I can talk things through with them.

Hope you had a good day out DD.

phoenixoxo

Hi Slosh,

Sorry I'm late to this thread

I'm pleased for you too and I hope treatment continues apace :arrow: :arrow: :arrow:

Best wishes,
Phee

barbara12

I am so very pleased for you slosh...its a massive worry off your mind..x

dachshund

Hello Slosh
i'm so pleased you had good news.you must feel very relieved.
take care
joan xx

GraceB

Excellent news. Now you just have to make others understand your challenges in life. Try getting them to read The Spoon Theory or There's a Gorilla in the House.
Take care,
GraceB

frogmella

That is good news! So glad it is not MS!