Anaemia totally changed me

bubbadog

Seen I've had this extreme Anaemia I'm not me, I've lost the happy go lucky positive me. Now I'm tired all the time can't do my usual things because if I do I'll need to go to bed after because I can't stay awake. For some reason my taste buds and inside of mouth have become sensitive to food with strong taste, example salt and I can't eat anything with slight spice example Korma Curry because it burns the inside of my mouth!! It's made me loose my appetite and I can only eat bland food. This has totally depressed me. My G.P says it can happen in but it's rare.
My poor OH is doing what he can to accommodate my strange eating habits at the moment and he even wants us to go away early January to give me something to look forward to. But at the moment I just want to feel like me again. I'm taking Iron & Folic acid tablets but no change in me yet? Has anyone ever felt like this from Anaemia and how long does it take to go?

LignumVitae

Bubba, is it worth just checking your symptoms with a rheumatology nurse to be sure that you aren't suffering side effects from the sulpha or do they predate the sulpha? I'm no medic but I wonder if not all of your symptoms are anaemia and some are due to a new med and your body coping with that.
I was on iron tablets at the end of my pregnancy and after the girls were born because I lost a lot of blood during the birth (I just managed to escape a transfusion which I am still heartily glad about). I never felt better on them but then, I had two aliens stealing pretty much any surplus iron I put into my system and I was ghostly pale for months after. I didn't struggle with appetite though.
I wonder if some of your mood is down to so many things going wrong suddenly - the anaemia, the flare, the finger break. It's a lot to take on and if you can't get out much then it all builds up and doesn't help your mood. As a none medic I prescribe some dark chocolate, a long kitty cuddle and your favourite films or books. If you are stuck in the house then you might as well treat yourself a bit.

frogmella

I agree with LV, bubba. Maybe it isn't all down to the anaemia? Have the doctors given you any indication if the way you are feeling is normal or if they have seen it before? I understand about feeling down though. When you have all these horrible things and you have no energy it is really easy to start feeling blue. I think LV's suggestion of treating yourself might help a bit. I also find watching a weepy and having a good cry helps! Sorry you are having such a tough time. Sending you big hugs. ((())) xxx

stickywicket

I'm with the others. This doesn't sound like the anaemia I've experienced which has always been quickly sorted by a course of iron tablets. I've never heard of extreme anaemia. You sound no better and, indeed, marginally worse. Maybe another check with the doc.

theresak

I had a similar thing happen when I was taking MTX - it played absolute havoc with my taste buds - I thought I`d never enjoy food again. I`ve always loved garlic - the stronger the better - but while on MTX I couldn`t bear it anywhere near me. Sometimes my tongue felt "burny" too. I was eventually taken off MTX and my taste buds returned to normal.

With me, a course of iron sorts anaemia out - your problems sound similar to mine, so it would be worth checking.

Slosh

A work colleague of mine who was very anaemic used to have weekly iron injections, however she wasn't anything like you describe yourself as feeling which sounds truly awful, I do hope you can get some answers, and start to feel better soon.

villier

Oh Bubba I have been lucky and never been anaemic so can't really comment, I think another word with your doc wouldn't do any harm. I sincerely hope you get some answers soon. xx

bridesmum

I was very anemic during my 3rd pregnancy and had to take extra strong iron tablets. They were enteric coated as the uncoated ones made me very sick. I had to have a transfusion during and after my caesarian section. I don't remember anything like you're describing though, perhaps a visit to your doctor is in order? Good luck, hope you feel better soon.

hileena111

Hi Bubba
I'm constantly anaemic {am at the minute} a blood transfusion after each THR
But never felt like you do
My main things are tiredness, very very heavy limbs. Its an effort to put one leg in front of the other
I've got OA among other things so cant blame it on any of the RA meds
Like everyone says....back to your doctor next week is the only suggestion
Love
Hileena

Megrose489

Sorry to read that you feel so unwell, Bubba. I've never been anaemic, thankfully, but would agree that a trip back to the doctor's with a list of symptoms seems a sensible option. Hope you're soon feeling much better.

Meg

dreamdaisy

I feel like that most of the time thanks to my PsA and its required meds. DD

bubbadog

Thank you for your replies, I'm back to see my G.P on Wednesday morning so will make a list of things to ask her. We've booked a holiday for January so I've got something to look forward to! I think we deserve it, will be off to sunny Dubai hotel stay & cruise! I do hope to sort my taste bud problem by then!!

tkachev

Good luck Bubbadog. Have a lovely time.

I'm anaemic and on iron tabs but am always tired . The only thing I feel has helped me is a steroid injection which I have at the start of the summer hols so that I am awake enough to care for my Son who on the autistic spectrum.
I haven't noticed any any issues with taste and certainly haven't lost my appetite.

Elizabeth

stickywicket

I don't want to be a party pooper but I suggest you get your travel insurance sorted asap. I couldn't get cover for anaemia when it was unresolved (ie the endoscopy was clear so they wanted a colonoscopy but it couldn't be done before I travelled). I took a huge risk that year because, if anything had gone wrong in any way, I'm sure they'd have tied it in neatly to anaemia, the source of which was still unclear and therefore not covered.

Tia1723

Hi bubba,

I am not anaemic (at-least as per my knowledge !!!) but diagnosed with vitamin deficiencies. So my GP started me on folic acid and other multivitamin tablets. Since then, I have developed bitter taste in mouth especially in the morning. So, off let I was just wondering, if it has any link with folic acid tablets. I read it could be side effect of folic acid, especially if it is taken in higher doses. However, I didn’t experience like loss of appetite and sensitive taste buds. Sorry, I can’t be of more help. Hope you sort out this issue at earliest.


Love,Tia.