Hi, Welcome!

The community is a safe space for people living with and connected to arthritis to ask questions and share experiences. Get started by registering here and posting your first comment or question!

Sign In with a Versus Arthritis account

Help us improve our website, chatbot and online community
We’d love your help to improve our digital services. It’s important to us that our website, chatbot and online community continue to support and provide information people with arthritis in the right way. We’re excited to be doing research to understand more about what’s working for you and what’s not so we can continue to improve what we’re doing.
You don’t need to be familiar with our digital services or a digital native to take part. The research will take one hour and will be run by a research consultancy SnapOut. Simply fill in the survey below to get involved. Together, we can continue to do more for people living with arthritis.

Fill in this survey to take part

ESA form on its way

DizzyDizzy Posts: 27
I've had a letter informing me to expect a phone call and then a form to move from SDA to ESA.

Having looked at the Internet all I see are horror stories which have me worried.

Have severe RA, pain etc from damage done before the likes of Anti-TNF etc which means the joints that have not been replaced are in a right state (knackered was one term used by a surgeon) meaning while I can do things I can only do them once or twice a day or for a few minutes before suffering for a time. I use a manual wheelchair (can walk short distances, I.e. Around the house, very flat ground but no more) but cannot power it myself because of my painful and weak shoulders.

I'm wondering what to ask during the phone call. I see lots about medical evidence...all I have ever had like that is a 16 year old driving ability assessment which is lurking somewhere I think but Im worse now, and a couple of surgeons letters which make mention only of hips and knees which are the least of the problems I have. I don't even have repeat prescription because it's all done by the pharmacist automatically. I have a couple of appointment letters and my enbrel alert card and methotrexate (starting this week) booklet. I also have a relatively new GP and a new replacement Rheumatologist.

I see the form says not to see the GP?

Basically looking for advice on what to expect and what can I do to make this as easy and stress free as possible because I'm worrying about it.

My head tells me I may be able to do something (I'd like to be able to do something) but my body just won't cooperate! If I managed to try and work if I went into the WRAG but couldn't manage it what would happen?

Sorry for the ramble.

Comments

  • moderatormoderator Posts: 4,083 mod
    edited 30. Nov -1, 00:00
    Hi Dizzy

    Welcome to the Arthritis Care message boards. We are a friendly group with lots of experience in Living with arthritis and its daily complications.

    If you need any technical help in posting, do just ask :)

    All best wishes
    Mod B
  • stickywicketstickywicket Posts: 25,968 ✭✭
    edited 30. Nov -1, 00:00
    Hello Dizzy and welcome to the forum :)

    I can well understand your fears and frustratios. I, too, have los of damage sone pre-DMARDS and my replaced knees and hips are the least of my worries too. Fortunately I'm now old (68) so PIP holds no fears for me but it certainly scares many on here.

    I can only suggest two things:

    1. Read up on other people's experiences on here and....

    2.....enlist the aid of CAB. They are, I understand, very good at this sort of thing.

    Good luck :D
    “There is always a well-known solution to every human problem - neat, plausible, and wrong.” H.L. Mencken
  • DizzyDizzy Posts: 27
    edited 30. Nov -1, 00:00
    Just bumping this to ask if anyone knows if it's worth a family member writing a letter explaining how my arthritis affects my life, to go alongside (hopefully) a consultants letter, to send with my ESA50 form?

    I know it's not a 'medical' opinion but it's someone who knows me best. Would they take any notice or would it just be 'thrown away'.
  • dreamdaisydreamdaisy Posts: 31,567 ✭✭✭
    edited 30. Nov -1, 00:00
    I have no idea if it would be considered but there's no harm in having one written, is there? DD
    Have you got the despatches? No, I always walk like this. Eddie Braben
  • DizzyDizzy Posts: 27
    edited 30. Nov -1, 00:00
    Thanks, you're right, it can't hurt.

    My mum is my carer as well as family so who knows my limitations better :)
Sign In or Register to comment.