Gutted, discharged from physio

Slosh

So I have been discharged from physio. Unfortunately this is not because of progress, but because despite intensive work, and an alternate day exercise programme (muscle weakness in left leg) which takes me about 40 mins to complete, it is not having any effect and so as there is nothing more they can do for me I have been discharged.
I need to keep going with the exercises to try and keep things as they are.

I must admit there were tears when he told me this, I've been working so hard and was hoping that although I couldn't see much improvement he was going to find some.

Physiotherapist was also not impressed when I told him how OT has said I might have to wait as he concerned that I have had a couple of minor falls and suggested I go back to my GP. He is going to write a discharge letter to my GP and copy me in to it, hope it arrives in time for my PIP assessment on Monday.

dreamdaisy

Oh Slosh, I am so sorry to read this because I know how hard you have been working at this. I am not surprised there were tears, it does feel like an enormous slap in the face, probably because it is. :broken:

It is very frustrating and demoralising when we've given something our best shot but things don't work out. Once again, I am so sorry. ((( ))) DD

theresak

Really sorry to hear this Slosh - it must feel like a slap in the face after you`ve worked so hard to get some improvement.

Megrose489

So sorry, Slosh. I know how hard you've worked to improve things. ((()))

Meg

Slosh

Thank you so much for your understanding. Very different from my OH who just said "well if it's not wotking there's no point them seeing you because it's a waste of their time".
I know tbat rationally but emotions and disappointment are very different

dreamdaisy

Oh yes, that's a bloke's take on things; logical, practical, realistic and downright insensitive. ((())) DD

villier

Sorry to hear this Slosh after all the hard work we know you have put in, no wonder you were in tears and as for your OH how insensitive can you get. Good luck for Monday let us know how you get on. (((()))) xx

Ladybrown

So sorry to hear that Slosh. It's so hard when you get a setback like this. good luck with the assessment

Slosh

Thank you

stickywicket

Sorry, Slosh, I was away when this was posted and only just catching up now. I can't imagine how difficult it must have been to hear that all your hard work appeared to be not achieving much if anything. You will, in time, have the satisfaction of knowing you gave it your very best shot and, to mix the metaphors, left no stone unturned but I guess that sort of consolation is some way off yet.

Your OH is, of course, spot on but with no appreciation of the dual aspect of this - practical and emotional. I wonder how he would deal with such news himself?

(((())))

Slosh

Thank you Sticky, you are right in that there is some comfort in knowing that I gave it my best shot, but it seems that as with work I have to accept that however much I try and no matter how determined I am, my best isn't quite good enough. My physio was very sensitive in how he gave me the news, and I'm sure it wasn't an easy thing for him to have to say, I've actually been seeing him monthly since last April.
For my OH's reaction, well he wonders why I don't tell him how I am!

I suppose the only possible positive thing is that in terms of my PIP assessment on Monday it was probably best to hear the news this week.

stickywicket

Our best is always good enough. It might well fail to achieve what we want or what others want or what we were hoping for but it is always our best. No blame attaches. We must, sadly, accept and move on but never regret the time and effort put in to the failed attempt because at least, now, we know. It's a tough one, Slosh, but so are you and you will deal with it and we'll be here to help however we can.

theresak

Hear, Hear.

Slosh

Thank you both. I will take this on board, or at least do my best to!

m4r14j

sorry to hear that slosh!

I doubt that it had anything to do with you in the strict sense of the word... i got discharged from physio a few years ago because "funding is only awarded where there is improvement and tick boxes can be ticked" and then told "since the work we are doing here merely maintains your current mobility or stops it declining further - we don't have ticking boxes for that to get the funding" :shock:

so what i would say is that you have not failed anything - you have made great progress in maintaining your current mobility - YAY YOU! pat on the back! and considering your not on any meds - this is definitely so! keep up the hard work.

good luck with your PIP - if you get a good award you can always spend it on private physio - which is way way better take it from me... they actually touch you & massage you unlike the nhs ones which tend to only poke you with a stick if they must! i'm currently trying to find my own private hydrotherapy if i can scrape to it then i'll be spending my PIP on both of those.

DD i completely agree with you on male way - you described my partner but left off the fickle & indecisive up until the point where making the wrong decision - on these days he is referred to as "the man thing"

Slosh

Thanks for that, I am on meds but as I have OA rather than RA they are a mix of painkillers including one which is in the same family as Tramadol. My leg problem is not due to Arthritis so I tend not to have pain as such there, more things like pins and needles, heaviness etc.
My physio was great, and I quite understand why he had to discharge me especially as since the start of the year I had been having fortnightly 90 minute sessions with the physio assistant who specialised in rehab and longer term cases who needed more intense work. As for not being hands on far from it. When I first started seeing him last year after my neck operation he regularly gave me massage on my neck and shoulders.

If I do get PIP long term it will be put towards allowing me to work part time.